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Old 04-11-2013, 07:02 PM   #1
jacqueline1102
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Join Date: Apr 2012
Posts: 183
Post Must watch this video from Ted.com

Hello all,

I thought I would pass along the link to this video. Hopefully, it will be helpful for the dense breasts women. Please pass this along to the ladies you know. There is a quote in the video that indeed, breasts are becoming an economic and political issue.

http://www.ted.com/talks/deborah_rhodes.html

My husband was rather upset about this after he watched. Dr. Rhodes is trying to help us.

Take care,

Jackie
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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Old 04-11-2013, 09:27 PM   #2
lasarles
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Posts: 62
Re: Must watch this video from Ted.com

Thank you Jackie for posting this. We desperately need this..NOW! I speak from experience, as one with dense breasts I found my lump 10 months following mammogram. Oh how things might have been so different if found back then.
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05/2011 Mammogram - Clear
3/12/12 Found Lump Lt Breast (BSE).
3/13/12 44th Birthday, Mammogram, Ultrasound.
3/15/12 Needle Biopsy on Lump and Suspicious Node.
3/20/12 Dreadful "C" Word.
ER90% PR90% Her2+
1 cm, IDC, Stage 1, Grade 2
4/19/12 Portecath, Lumpectomy & Sentinel Node Removal. 0/4 Node Involvement...Yea!!
Margins Clear......Yea!!
5/17/12 Chemo Begins. TCH x 4.
Herceptin Weekly x 4, every 3 wks thereafter for 1 yr. Muga Scans every 3 mos.
8/13/12 Rads x 30
9/24/12 Start Tamoxifen
10/22/12 CT/Whole Body Bone Scan. No Cancer Detected......Yea!
1/31/13 Annual Mammogram and Ultrasound....NED....:)
5/23/13 Final Herceptin Appt
6/25/13 Port Removal
5/2017 Stop Tamoxifen (Thickening of Uterine Walls)
5/2017 Start Arimadex
6/2018 Start Lupron Shot
9/2019 Stop Arimidex and Lupron Shot
6/2020 Last Oncology Appt
4/2024 NED (No Evidence of Disease)
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Old 04-12-2013, 08:08 AM   #3
mmoons
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Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
Re: Must watch this video from Ted.com

Mamogram did not find my 6.8 centimeter tumor. Nor did a "diagnostic mamogram". I know I am one of a million woman.

Thank you so much for sharing this, Jackie.
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IDC & DCIS, HER2+++ Diagnosis: October 1, 2008
  • Tumor: 6.8 centimeters, never showed on mammograms
  • ER-/PR-
  • November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
  • Stage IIIc
  • Lapatinib Clinical Trial start: November, 2008
  • Surgery: May 5, 2009
  • Started Herceptin: May 19, 2009
  • Started Radiation (33 rounds): June 10, 2009
  • September 2009: Moved to Michigan to be closer to family
  • 12/09 - still on Herceptin until May 2010
  • August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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