|
Lucky streak didn't extend to me :-(
Well unfortunately last week's streak of good results didn't extend to me. My latest scans show progression in my lungs. This is despite me feeling fantastic, my skin lesion gone and my tumour markers normal. I was convinced I was going to get a NED report today so I am completely shattered to have progression as a result.
I am trying to pick myself up and keep going as without these scans I wouldn't know the state of the disease. I took my girls to see the musical Annie - luckily it was dark as I cried throughout at poor orphan Annie with no Mum and Dad. I am so worried for my kids. I have been actively envisioning attending my 5 year old son's wedding and it seemed so achievable - now I have to get to seeing him start school next year.
I know I am not out of options but this has me floored as my results after 4 1/2 weeks on the treatment were the best I'd seen with substantial reduction and many tumours gone. I am not quite back to the worst i've been but progression none the less.
So the plan is a PET (not standard here in Australia) on Thursday to see if the spots are actually warm, then to see if we can biopsy something to see what we are dealing with (last biopsy failed to get tissue). We are looking into TDM1 trial but currently I won't qualify as all tumours are sub2cm.
There are no pertuzamab trials here beyond first line.
Shattered...
__________________
Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
|
Threaded Mode