Calling all stage iv sisters

[Jackie07]

Seasons Greetings!
Current stats:
Total 92members* and 400 * years 5 months as of Dec 15, 2011

@ - members gleaned from other threads
*Including the founder of this group, Christine ((1990) 1999 Chest Brain NED 2001~), those who have posted on this thread, and members gleaned from other threads

[Introduced to one of our new members this thread which Jean had started in January. Then I noticed SoCalGal's tally (145 years for all 33 members) back in March. Thought I'd double check and add the ones after her posting. And I came up with 220 years and three months. (60 members* and 284* years as of July 9, 2011.) And it suddenly downed on me that I have survived my first diagnosis of stage I for 8 years. My recurrence in 2007, a Stage IIb, was caused by a series of failures - the surgeon thought she had had a clean margin, she didn't; the radiologist thought the shadow on the mammograms was 'scar tissue', it wasn't; my oncologist thought I was 'cured', he was wrong; my family doctor thought I was hypochondriac, he was also wrong ...

Will I have another recurence and become stage IV one of these days? Nobody knows. But just knowing the fact that so many of our stage IV sisters have beat the odds/on maintenance/receiving active treatment gives me confidence that whatever happens in the future, there is hope.

Thank you, stage iv sisters, for sharing your fighting spirit and triumph with us. 6-15-2011]

From NancyL: "Go to http://www.mbcnetwork.org/ and read stories about women who have been metastic for many many years. I also have a good friend, Stage IV for 11 years, continuously on Herceptin and doing well."

Name ____________ Er Pr Her2 (Initial Diagn) Stage IV Diagnosis _________ Clinical. Trials _______ Triumph years since StageIV ___ (NED = No Evidence of Disease)

Adriana Mangus__ Er- Pr- Her2+ (June 1994 Er+Pr+) July 2003 Lung ________T-DM1___________ 8 year 5 months and counting
Ahoff (Ann) ____________________________May 2010 IBC _______________________________ 1 year 7months and counting
AndiBB ______________Er-Pr-Her2+ (1995 IV ILC) Aug 1998 Liver ____Herceptin 10 years ________ 16 years 4 months and counting (NED since 1999)
@ Angela ( - NC) ________ Er-Pr-Her2+ (May 2003) Dec 2006 Lung Feb 2007 Brain (Cyber knife) ___5 years and counting
Angela R _____________________________ (2009) April 2011 _____________________________ 8 months and counting
Annmask _________________ DCIS Her2 + (1999) Jan 2008 _______________ MM111 __________ 3 years 11 months and counting
Asahizuru _______________________ (1990, 1996) 2002 Bones Spine _________________________9 years and counting
Barbara H ________________________ (May 1998) May 2004 Brain _________________________ 7 yrs 7 months and counting (NED)
@Bunty (Marie) ___________________ (Dec. 2000) Oct 2007 Lung June 2011 Liver _____________ 4 yrs 2 months and counting
@cdbernal (Charlyn) _________________________ Aug? 2006Liver _________________________ 5 yrs 4 months and counting]
Ceesun (Cathy) _________________________ June 2006 Lung ______________________________ 5 yrs 6 months and counting
Chelee _________ Er+ Pr+ Her2+ (Dec. 2005 IIIA) Sept 2009 Bone ____________________________ 2 yrs 3 months and counting
Choyces ______________________________July 2011 neck node and lung __will do Seattle vaccine trial ___ 5 months and counting (full response to Herceptin, Tykerb and Paclitaxel)
Chrisy________________Er- Pr- Her2+ (June2002) Sept. 2004 Liver _________T-DM1____________ 7 yrs 3 months and counting
Colleen007______________________ Er- Pr- Her2+ Oct. 2005 Liver, spine, femur _______________ 6 yrs 2 months and counting
CoolBreeze________________________ (Aug 2009) May 2011 Liver __________________________ 7 months and counting
CourtneyL _____________________Er- Pr- Her2+ April 2008 Liver Lung (NED) Bone Brain ________ 3 yrs 8 months and counting
Dawn ______________________ (March 2006 IIIA) Feb 2009 Bone Liver (NED April 2011) ________ 2 yrs 10 months and counting
Dawny _________Er- Pr- Her2+ (May 27 2011)lung nodes chest + neck Abraxane weekly - 16 weeks Herceptin every third week (Sept 26 NED)
DEBBIE S ______________________ Er- Pr- Her2+ Oct. 2004 Liver ____________________________ 7 yrs months and counting
Deena H ____________ Er- Pr- Her2+ (March 2010) Oct. 2010 Lung ___________________________ 1 year and counting
@Delaney _________________ Er- Pr- Her2+ (2008) 2010 Nodes Skin Lung Hip Brain __ Allto Trial _1 2/3 years and counting
DMWARN [wife of]___________________ (1999) 2000 Spine Lung __________________________ 11 yrs and counting
DianaMK ________________________ _(Dec 2006) June 2010 Skin Lung ______________________ 1 yr 6 months and counting (NED March 2011)
@Dianedack__________(Er+Pr+ Oct 2001 2 nodes) May 2009 Liver 2011Lung, Liver, Brain, Neck Node _ 2 yrs 7 months and counting
DQ1____________________ Er+ Her2+ (May 2009) Feb 2011 Mediastinal nodes Lung ____________ 10 months and counting
Emelie B____________________Her2+ (Nov. 2006) Jan. 2010 Sternum lung liver bone ___________ 1 yr 11 months and counting (NED)
Fauxgypsy ____________________ Er+ Pr+ Her2+ Feb 2007 Liver ____________________________ 4 yrs 10 months and counting
Flossie __________________ Er+ Her2+ (Jan 2006) July 2008 Brain Rib neck ____________________ 3 yrs 5 months and counting
Fullofbeans ________ Er-Pr- Her2+ (June 2006) August 2006 Liver ________UW peptide trial _____ 5 yrs 4 month and counting
@Gracepang _________________ Her2+ (Jan 2004) 2009 Liver Lung 2010 Brain ________________ 2 yrs and counting
Hraby73 (Holly) ________________ Er+ Pr+ Her2+ April 2011 Liver Lungs _____________________ 8 months and counting
Hutchibk ___________ Er+ Pr+ Her2+ (Nov. 2003) Aug. 2005 Chest nodes Bone Brain ___T-DM1__ 6 yrs 4 months and counting
Jacqui ______________Er-Pr- Her2+ (Oct. 2009) Feb. 2011 Brain (VMAT radiation) _____________ 10 months and counting
Jeana _______________________ (June 2010 IIIA) April 2011 Brain (WBR) chest wall lung _______ 8 months and counting
@jkdowl _____________________ (Dec 2010 III) Feb 2011 Bones ____________________________ 10 months and counting
Joan M ______________ Er- Pr- Her2+ (Sept.2003) Jan. 2007 Lung Brain (NED)_________________ 4 yrs 11 months and counting
Joan S. _____________________________________April 2007 _____________________________ 4 yrs 8 months and counting
Kaim _________________Er- Pr- Her2+ (Sept 2011) Nov. 2011 Bones and Liver________________ 3 months and counting
Kathy T _____________________ Er+ Her2+ (1984) Jan. 2003 Bone ________T-DM1 (2 yrs) _______ 8 yrs 11 months and counting
Kavy ____________________________ (April 2005) Nov. 2005 Lung Liver _____________________ 6 yrs 1 month and counting
KDR (Karen) __________________ Er- Pr+ Her2 + June 2010 Liver ____________________________ 1 yr 6 months and counting
KG1993 (Kim for her Mom) _____________Her2 + Aug. 2011 Bone Liver _______________________ 4 months and counting
Kim in CA _______________ Er+ Her2+ (Feb 1997) Sept 2001 Liver ______UW [Seattle]vaccine____ 10 yrs 3 months and counting (6 yr NED)
Kim in DC ____ Er- Pr- Her2+ (Aug 1998) 2004IBC Feb. 2008 Skin Sternum _____T-DM1 (2 yrs)_____ 3 yrs 10 months and counting
Kiwigirl _______________Er-Pr- Her2+ (Oct 2009) Feb. 2011 Brain (VMAT radiation) ____________ 10 months and counting
Kmswilson ____________ Er- Pr- Her2+ (Dec 2010) Jan 2011 Liver Bones ______________________ 11 months and counting
@KristinSchwick ___________________ (Aug 2010) May 2011 Bones _________________________ 7 months]
Krisvell _____________ Er+ Pr- Her2+ (June 2009) Jan 2011 Brain _____________________________ 11 months and counting
kykeon22 (Son of Ha) _________ Er+Pr+Her2+ Feb 2008 Lung Liver ___________________________ 3 years 10 months and counting
Lauriesh (Laurie) ____________________________ July 2010 2 Liver mets (RFA) ________________ 1 year 5 months and counting (6 months NED)
Linda b ___________________________ Er+ Her2+ Feb. 2007 Lower back & Neck _______________ 4 yrs 11 months and counting
Lori R _________________________ Er- Pr- Her2+ Oct. 2007 Liver ____________________________ 4 yrs 2 months and counting
Mamacze _____________________________ (2001) 2004 Liver and lungs ___Seattle Vaccine ______ 7 yrs and counting (NED)
Mandamoo (Amanda)___Er-Pr-Her2+ 2B (Feb 2011) June 2011 skin, axilla node, lung ___Bolero3 __ 6 months and counting
Marilyn _______________________________ (2000) July 2001 Bones _________________________ 10 yrs 5 months and counting
Mary L _______________________ (Oct 2003 IBC IIIB) July 2004 Skin __________________________ 7 yrs 5 months and counting (NED since Oct 2007)
@Michka______________Er+ Pr+ Her2+ (Aug. 2006) Dec 2010 Liver (NED) June Sternum _________ 1 year and counting
Missyw _____________ Er+ Pr+ Her2+ (Jan. 2001) Aug 2006 Liver _____________________________ 5 yrs 4 month and counting
Mtngrl (Amy) ________________ Er+ (April 2011) May 2011 Liver ____________________________ 7 months and counting (NED 12/05)
Nancy L_______________ Er- Pr- Her2+ (Sept 2004) Feb 2009 ________________________________ 2 yrs 10 months and counting (NED)
Nsebesta _______________________________ (2001) May 2004 Liver _________________________ 7 yrs 7 months and counting (NED since 2005)
PAFB ____________________________ (Jan. 1997) Jan 1998 Metastasis ____ Herceptin till 4/2011 __ 13 yrs and counting
Pam P_________________ Er+ Her2+ (June 2001) IBC Sept 2002 Bone Brain (WBR)_________________ 9 yrs 3 months and counting
PatE _______________________________________ Oct 2007 Liver spine ______________________ 4 yrs 2 months and counting (NED)
@Patrice1968 _______________________________ Sept 2010 Spine, Ribs, Uterus, and Liver ______ 1 year 3 months and counting
@Peggy09 ____________________________________ Feb. 2010 Liver, bone, lymph nodes ________ 1 yr 8 months and counting (NED)
Phil (‘s wife) ___________________________________________ 2006 _________________________ 5 years and counting
pibikay (Hema) ____________ Er- Pr- Her2+ (2010) March 2011 Vertebrae, Liver ________________ 9 months and counting
Radiant __________________ (2005) 2010 Liver & Soft Tissue Mediastinal nodes _______________ 1 yr 10 months and counting
Ricky (‘s wife) _______________________________ 2006 Liver ______________________________ 5 1/2 years and counting (3 + years NED)
Sandra Digilio ______________________ (Dec., 2009) Sept. 2011 3 spots in bone _______________ 3 months and counting
Schoolteacher (Amelia) ______________ Nov 28. 2007 L4 __________________________________ 4 yrs 1 month and counting (NED since 4-16-2008)
@Shaysmom (Kelly) _______________ (2001 Stage III) 2002 Ovaries 2009 Mediasternum ________ 9 yrs and counting
Sheila _______________ Er- Pr- Her2+ (Feb 2002) Sept. 2003 Neck nodes _______T-DM1(3) ______ 8 yrs 3 months and counting
Sherryg683 __________________________________ Dec 2005 Lungs ________________________ 6 yrs and counting
SoCalGal (Flori) _________________ (1996; 2002) March 2007 Lung Sternum 2008 NED in Brain __ 4 yrs 9 months and counting
StephN ___________________________ (Sept 2000) Jan 2002 Liver __________________________ 8 yrs 11 months and counting (NED since 2005)
Survivor2be (Andrea) _________triple – (Sept 2010) 9/2011 Her2+ brain ______________________ 3 months and counting (4 weeks NED)
SuThorn _______________ Er+ Pr- Her2+ Sept. 2007 Liver __________________________________ 4yrs 3 months and counting (NED since 1-2008)
tammymarie1971(30) ____ Er+ (Dec 2001) 2004 liver 2005 Spine/Hip __________________________7 yrs 9 months and counting
@Tiquer505 _____________Er- Pr- Her2+ (1997) Four recurrences so far _______________________5 yrs and counting
Tonya ___________________________ Aug 2006 Liver _____________________________________ 5 years 4 months and counting
TriciaK ________________ Er+ (1985) 1990 spine, 2004, 2010 lung ____________________________ 21 years and counting
Trish ____________ Er (2+) Pr (3+) Her2 (3+)(May 2004) Dec. 2006 Liver 2008 Bone ______________ 5 years and counting
Unregistered _____________________ Jan. 2007 ___________________________________________4 yrs 11 months and counting
Unregistered (8-25-2011 #106) __________________________________________________ ________ 9 years and counting
Vicky____________________________March 2011 Liver Spine________________________________ 9 months and counting
Vivienne [Mom of]_________________March 2011 Liver_____________________________________ 9 months and counting
@Waterdreamer___________________June 2008 Nov Lungs and bones ________T-DM1___________3 yrs 6 months and counting
Yankeebikachic ___________(April 2006 IIIC) July 2008 Nodes in sup. clav._______________________ 3 yrs 5 months and counting (NED)

[Adriana Mangus]

Hi Amy,

I'm also a long term bc survivor --1994 and counting.

Just completed 14 months on the TDM1 trial, looking now to get into a different clinical trial.

I am still here, first on prayers and good friends, 2nd on the excellent care I've received from my oncologist, Doctor Godfrey. God bless him! 3rd and final...life is wonderful, even when things don't seem to go your way, you must continue on keeping your faith, be proactive, educate yourself, participate on clinical trials if you can, after all this is your life, take control of it.

Stay positive.


Love,

Adriana

[iamlisaann]

Hi everyone,
I've recently rediscovered her2support. It's been awhile since I've been on here but know the importance of letting the sisterhood know updates. When I updated my status last I don't believe I even had my first surgery...oh how time flies. Well, after all of this, my most recent scans Dec 1st show NED.

My story:
I'm now 46. First diagnosed at 41 ER/PR neg, Her2+++, fish pos. No history of breast cancer or any cancer for that matter in my family. June 06 found lump in right breast, size of a walnut & felt lump under right armpit. Grew to 4.7cm in a very short time. July 06 diagnosed Stage IV BC also large node (3.3cm) right axilla & small liver METS. Started neoadjuvent chemo 8/06. 4 X Adriam/Cytox., 12 weeks Taxol/Herceptin weekly. Will continue Herceptin for 1 year. Right Breast Lumpectomy and Lymph node dissection 6/07 and 36 rounds of radiation. Complete clinical remission!?!? During Herceptin treatment discovered Brain Mets 4.7cm frontal lobe. Decided it was time to leave my town and head to UCSF (where my breast surgery was performed). Brain
surgery 1/08 and 5 days of Cyberknife to follow. Met with my new UCSF Oncologist 3/08 and started Avastin/Tykerb trial 4/08. Continue Brain MRI and CT Scans Thorax every 3-4 months. Treatment every 2 weeks. To date NED.

I've been reading such wonderful inspirational posts on here and hopefully I can be an inspiration to some of you as well.

Keep up the fight!

Lisa

[elcalabrese]

Hi Everyone.
I found this board years ago when I was dx stage 4 back in 2002. It was a lifeline for me. Here I am, now, almost 10 years later. Still on herceptin, but considered NED.
Eleanor

[Pmoore]

Hi All, I am fairly new to the site .I was dx stage IV 2010 after almost 7 years from my initial dx in 2003. Pia

[Jackie07]

Seasons Greetings!
Current stats:
Total 97 members* and 414 * years 1 months as of Jan 28, 2012

@ - members gleaned from other threads
*Including the founder of this group, Christine ((1990) 1999 Chest Brain NED 2001~), those who have posted on this thread, and members gleaned from other threads

[Introduced to one of our new members this thread which Jean had started in January. Then I noticed SoCalGal's tally (145 years for all 33 members) back in March. Thought I'd double check and add the ones after her posting. And I came up with 220 years and three months. (60 members* and 284* years as of July 9, 2011.) And it suddenly downed on me that I have survived my first diagnosis of stage I for 8 years. My recurrence in 2007, a Stage IIb, was caused by a series of failures - the surgeon thought she had had a clean margin, she didn't; the radiologist thought the shadow on the mammograms was 'scar tissue', it wasn't; my oncologist thought I was 'cured', he was wrong; my family doctor thought I was hypochondriac, he was also wrong ...

Will I have another recurence and become stage IV one of these days? Nobody knows. But just knowing the fact that so many of our stage IV sisters have beat the odds/on maintenance/receiving active treatment gives me confidence that whatever happens in the future, there is hope.

Thank you, stage iv sisters, for sharing your fighting spirit and triumph with us. 6-15-2011]

From NancyL: "Go to http://www.mbcnetwork.org/ and read stories about women who have been metastic for many many years. I also have a good friend, Stage IV for 11 years, continuously on Herceptin and doing well."

Name ____________ Er Pr Her2 (Initial Diagn) Stage IV Diagnosis _________ Clinical. Trials _______ Triumph years since StageIV ___ (NED = No Evidence of Disease)

Adriana Mangus__ Er- Pr- Her2+ (June 1994 Er+Pr+) July 2003 Lung ________T-DM1___________ 8 year 6 months and counting
Ahoff (Ann) ____________________________May 2010 IBC __________________________________ 1 year 8 months and counting
AndiBB ______________Er-Pr-Her2+ (1995 IV ILC) Aug 1998 Liver ____Herceptin 10 years ______ 16 years 5 months and counting (NED since 1999)
@ Angela ( - NC) ________ Er-Pr-Her2+ (May 2003) Dec 2006 Lung Feb 2007 Brain (Cyber knife) 5 years 1 month and counting
Angela R _____________________________ (2009) April 2011 _______________________________ 9 months and counting
Annmask _________________ DCIS Her2 + (1999) Jan 2008 _______________ MM111 __________ 4 years and counting
Asahizuru _______________________ (1990, 1996) 2002 Bones Spine ________________________ 9 years and counting
Barbara H ________________________ (May 1998) May 2004 Brain _________________________ 7 yrs 8 months and counting (NED)
@Bunty (Marie) ___________________ (Dec. 2000) Oct 2007 Lung June 2011 Liver _____________ 4 yrs 3 months and counting
@cdbernal (Charlyn) _________________________ Aug? 2006Liver __________________________ 5 yrs 5 months and counting]
Ceesun (Cathy) _________________________ June 2006 Lung ________________________________ 5 yrs 7 months and counting
Chelee _________ Er+ Pr+ Her2+ (Dec. 2005 IIIA) Sept 2009 Bone ____________________________ 2 yrs 4 months and counting
Choyces ____________________ July 2011 neck node and lung __will do Seattle vaccine trial ___ 6 months and counting
Chrisy________________Er- Pr- Her2+ (June2002) Sept. 2004 Liver _________T-DM1____________ 7 yrs 4 months and counting
Colleen007______________________ Er- Pr- Her2+ Oct. 2005 Liver, spine, femur _______________ 6 yrs 3 months and counting
CoolBreeze________________________ (Aug 2009) May 2011 Liver __________________________ 8 months and counting
CourtneyL _____________________Er- Pr- Her2+ April 2008 Liver Lung (NED) Bone Brain ________ 3 yrs 9 months and counting
Dawn ______________________ (March 2006 IIIA) Feb 2009 Bone Liver (NED April 2011) ________ 2 yrs 11 months and counting
Dawny _________Er- Pr- Her2+ (May 27 2011)lung nodes chest + neck Abraxane weekly - 16 weeks Herceptin every third week (Sept 26 NED) __________________________________________________ ______ 8 months and counting
DEBBIE S ______________________ Er- Pr- Her2+ Oct. 2004 Liver _____________________________ 7 yrs 3 months and counting
Deena H ____________ Er- Pr- Her2+ (March 2010) Oct. 2010 Lung ___________________________ 1 year 3 months and counting
@Delaney _________________ Er- Pr- Her2+ (2008) 2010 Nodes Skin Lung Hip Brain __ Allto Trial _1 2/3 years and counting
DMWARN [wife of]___________________ (1999) 2000 Spine Lung ___________________________ 11 yrs and counting
DianaMK ________________________ _(Dec 2006) June 2010 Skin Lung ______________________ 1 yr 7 months and counting (NED March 2011)
@Dianedack__________(Er+Pr+ Oct 2001 2 nodes) May 2009 Liver 2011Lung, Liver, Brain, Neck Node _ 2 yrs 8 months and counting
DQ1____________________ Er+ Her2+ (May 2009) Feb 2011 Mediastinal nodes Lung ____________ 11 months and counting
elcalabrese (Eleanor) _______________________ 2002 Stage IV ___________ Herceptin ________ 10 years and counting
Emelie B____________________Her2+ (Nov. 2006) Jan. 2010 Sternum lung liver bone ___________ 2 yrs and counting (NED)
Fauxgypsy ____________________ Er+ Pr+ Her2+ Feb 2007 Liver _____________________________ 4 yrs 11 months and counting
Flossie __________________ Er+ Her2+ (Jan 2006) July 2008 Brain Rib neck ____________________ 3 yrs 6 months and counting
Fullofbeans ________ Er-Pr- Her2+ (June 2006) August 2006 Liver ________UW peptide trial _____ 5 yrs 5 month and counting
@Gracepang _________________ Her2+ (Jan 2004) 2009 Liver Lung 2010 Brain ________________ 2 yrs and counting
Hraby73 (Holly) ________________ Er+ Pr+ Her2+ April 2011 Liver Lungs _____________________ 9 months and counting
Hutchibk ___________ Er+ Pr+ Her2+ (Nov. 2003) Aug. 2005 Chest nodes Bone Brain ___T-DM1__ 6 yrs 5 months and counting
iamlisaann (Lisa) __________ Er- Pr- Her2+ (June) July 2006 Liver Brain ___UCSF Avastin/Tykerb __ 5 years 7 months and counting (NED)
Jacqui ______________Er-Pr- Her2+ (Oct. 2009) Feb. 2011 Brain (VMAT radiation) _____________ 11 months and counting
Jeana _______________________ (June 2010 IIIA) April 2011 Brain (WBR) chest wall lung _______ 9 months and counting
@jkdowl _____________________ (Dec 2010 III) Feb 2011 Bones ____________________________ 1 year and counting
Joan M ______________ Er- Pr- Her2+ (Sept.2003) Jan. 2007 Lung Brain (NED)_________________ 5 yrs and counting
Joan S. _____________________________________April 2007 ________________________________ 4 yrs 9 months and counting
@KaiM _________________Er- Pr- Her2+ (Sept 2011) Nov. 2011 Bones and Liver________________ 3 months and counting
Kathy T _____________________ Er+ Her2+ (1984) Jan. 2003 Bone ________T-DM1 (2 yrs) _______ 9 yrs and counting
Kavy ____________________________ (April 2005) Nov. 2005 Lung Liver ______________________ 6 yrs 2 month and counting
KDR (Karen) __________________ Er- Pr+ Her2 + June 2010 Liver _____________________________ 1 yr 7 months and counting
KG1993 (Kim for her Mom) _____________Her2 + Aug. 2011 Bone Liver _______________________ 5 months and counting
Kim in CA _______________ Er+ Her2+ (Feb 1997) Sept 2001 Liver ______UW [Seattle]vaccine____ 10 yrs 4 months and counting (6 yr NED)
Kim in DC ____ Er- Pr- Her2+ (Aug 1998) 2004IBC Feb. 2008 Skin Sternum _____ T-DM1 (2 yrs) ___ 3 yrs 11 months and counting
Kiwigirl _______________Er-Pr- Her2+ (Oct 2009) Feb. 2011 Brain (VMAT radiation) ____________ 11 months and counting
Kmswilson ____________ Er- Pr- Her2+ (Dec 2010) Jan 2011 Liver Bones ______________________ 1 year and counting
@KristinSchwick ___________________ (Aug 2010) May 2011 Bones _________________________ 8 months and counting
Krisvell _____________ Er+ Pr- Her2+ (June 2009) Jan 2011 Brain _____________________________ 1 year and counting
KsGal _____________ Er-Pr- Her2+ (Oct 2011) Dec 2011 Liver ________________________________ 1 month and counting
kykeon22 (Son of Ha) _________ Er+Pr+Her2+ Feb 2008 Lung Liver ___________________________ 3 years 11 months and counting
@Laura4252 ________ (High grade DCIS 2005 recur 2009) April 2011 Left Lung __waiting for vaccine __ 9 months and counting
Lauriesh (Laurie) ____________________________ July 2010 2 Liver mets (RFA) ________________ 1 year 6 months and counting (6 months NED)
Linda b ___________________________ Er+ Her2+ Feb. 2007 Lower back & Neck ________________ 4 yrs 11 months and counting
Lori R _________________________ Er- Pr- Her2+ Oct. 2007 Liver _____________________________ 4 yrs 3 months and counting
Mamacze _____________________________ (2001) 2004 Liver and lungs ___Seattle Vaccine _____ 7 yrs and counting (NED)
Mandamoo (Amanda)___Er-Pr-Her2+ 2B (Feb 2011) June 2011 skin, axilla node, lung ___Bolero3 __ 7 months and counting
Marilyn _______________________________ (2000) July 2001 Bones _________________________ 10 yrs 6 months and counting
Mary L _______________________ (Oct 2003 IBC IIIB) July 2004 Skin __________________________ 7 yrs 6 months and counting (NED since Oct 2007)
@Michka______________Er+ Pr+ Her2+ (Aug. 2006) Dec 2010 Liver (NED) June Sternum _________ 1 year 1 month and counting
Missyw _____________ Er+ Pr+ Her2+ (Jan. 2001) Aug 2006 Liver _____________________________ 5 yrs 5 month and counting
Mollecat _________________________ July 2011 nodes by lung, above clavicle, in neck _________ 7 months and counting
Mtngrl (Amy) ________________ Er+ (April 2011) May 2011 Liver, lung ________________________ 8 months and counting (NED 12/05)
Nancy L_______________ Er- Pr- Her2+ (Sept 2004) Feb 2009 _________________________________ 2 yrs 11 months and counting (NED)
Nsebesta _______________________________ (2001) May 2004 Liver __________________________ 7 yrs 8 months and counting (NED since 2005)
PAFB ____________________________ (Jan. 1997) Jan 1998 Metastasis ____ Herceptin till 4/2011 _ 13 yrs and counting
Pam P_________________ Er+ Her2+ (June 2001) IBC Sept 2002 Bone Brain (WBR)_______________ 9 yrs 4 months and counting
PatE _______________________________________ Oct 2007 Liver spine ________________________ 4 yrs 3 months and counting (NED)
@Patrice1968 _______________________________ Sept 2010 Spine, Ribs, Uterus, and Liver ______ 1 year 4 months and counting
@Peggy09 ____________________________________ Feb. 2010 Liver, bone, lymph nodes ________ 1 yr 11 months and counting (NED)
Phil (‘s wife) ___________________________________________ 2006 ___________________________ 5 years and counting
pibikay (Hema) ____________ Er- Pr- Her2+ (2010) March 2011 Vertebrae, Liver ________________ 10 months and counting
pmoore (Pia) ______________ Er- Pr+ Her2+ (2003 II) 2010 Lung Er+ Pr+ _______ Herceptin ______ 2 years and counting
Radiant __________________ (2005) 2010 Liver & Soft Tissue Mediastinal nodes _______________ 1 yr 11 months and counting
Ricky (‘s wife) _______________________________ 2006 Liver _________________________________ 5 1/2 years and counting (3 + years NED)
Sandra Digilio ______________________ (Dec., 2009) Sept. 2011 3 spots in bone _______________ 4 months and counting
Schoolteacher (Amelia) ______________ Nov 28. 2007 L4 ____________________________________ 4 yrs 2 month and counting (NED since 4-16-2008)
@Shaysmom (Kelly) _______________ (2001 Stage III) 2002 Ovaries 2009 Mediasternum _______ 9 yrs and counting
Sheila _______________ Er- Pr- Her2+ (Feb 2002) Sept. 2003 Neck nodes _______ T-DM1(3) ______ 8 yrs 4 months and counting
Sherryg683 __________________________________ Dec 2005 Lungs ___________________________ 6 yrs and counting
SoCalGal (Flori) _________________ (1996; 2002) March 2007 Lung Sternum 2008 NED in Brain _4 yrs 10 months and counting
StephN ___________________________ (Sept 2000) Jan 2002 Liver ____________________________ 10 yrs and counting (NED since 2005)
Survivor2be (Andrea) _________triple – (Sept 2010) 9/2011 Her2+ brain ______________________ 4 months and counting (4 weeks NED)
SuThorn _______________ Er+ Pr- Her2+ Sept. 2007 Liver ____________________________________ 4yrs 4 months and counting (NED since 1-2008)
tammymarie1971(30) ____ Er+ (Dec 2001) 2004 liver 2005 Spine/Hip ________________________ 7 yrs 10 months and counting
@Tiquer505 _____________ Er- Pr- Her2+ (1997) Four recurrences so far ______________________ 5 yrs and counting
Tonya ___________________________ Aug 2006 Liver ________________________________________ 5 years 5 months and counting
TriciaK ________________ Er+ (1985) 1990 spine, 2004, 2010 lung ___________________________ 21 years and counting
Unregistered _____________________ Jan. 2007 ____________________________________________ 5 yrs and counting
Unregistered (8-25-2011 #106) __________________________________________________ ________ 9 years and counting
Vicky ____________________________ March 2011 Liver Spine ________T-DM1 ________________ 10 months and counting
Vivienne [Mom of]_________________March 2011 Liver_____________________________________ 10 months and counting
@Waterdreamer ___________________ June 2008 Nov Lungs and bones ________ T-DM1________ 3 yrs 7 months and counting
Yankeebikachic ___________ (April 2006 IIIC) July 2008 Nodes in sup. clav.___________________ 3 yrs 6 months and counting (NED)

[LizDT]

Reading your posts, every one of them, gives me hope and faith. I am Liz T, Mary Ann D's sister of the heart and friend forever. She would have derived great joy in reading these posts, she loved you all... I am not (and pray I will never be) stage 4, I was dxed in May, 1999, had 19 positive nodes and was told by first surgeon "you have 18 months to live". Yesterday I was informed by onc that I am still NED, Praise the Lord!!!... I discovered, through sisters like all of you and my dear Mary Ann , that bc is not a death sentence. There is life after dx. So sisters, thank you for telling your stories... Bless you all, this is a tough journey, but, we are not alone. So many shoulders to lean on, so many voices raised in prayer, and so many survivors saying NO to the beast and YES to life.

[KsGal]

Jackie, I just want you to know how much your work on this thread has been appreciated. I came to this site thinking I had something like 9-18 months to live, end of story. This thread and the statistics have given me so much hope. It used to be that the thought "I am dying" when through my head several times a day. It doesn't happen like that anymore.
Im still just a baby in the stage IV game, having an initial BC diagnosis in October, and getting a stage IV diagnosis in December with mets to liver. I have a long road ahead of me, but I have hope and faith after reading all of your stories, and I want to be someone who can inspire others some years down the road. Im on taxotere, carboplatin and herceptin right now, and Im doing pretty well after my second treatment. Hoping beyond all hope that Herceptin works for me. Big hugs to you all, I appreciate you so much.

[Lettik]

Hello all, I am relatively new to this site, but I was diagosed with Stage IV er-/pr- Her2+ grade3 in November 2009.

I was in shock and didn't have a personal computer at the time, so I read everything, and I mean everything I could. Sometimes, I was sorry I did because I didn't know what to think about treatment, survival, doctors, and advice, so I went into overload. Since we are all different, what worked for one may not work for another.

Then there were times, when I was very discouraged and so, I wrote. I wrote about all of it. I wrote when I was angry, when I didn't understand what was going on with my body. I wrote when I was depressed and I wrote trying to change my attitude. Then, I just stopped!?

I made an appontment to see a therapist, but she was 20 or more years younger than I was, and wanted to know what I was hoping to get out of the sessions.
What? See you later.

Then it was going to the breast cancer support group, but they really didn't want someone who was Stage IV and facing "no cure" as they called it.

In Octobger, 2011, my older brother sent me a laptop as a surprise gift. I was also thankful, grateful, and blessed, not only to him, but because I found this site.

Even though I didn't post, I read most everything on this site. When I found this thread, I could not believe the heartfelt stories and how much, some of you have been through. It has been my motivation, inspiration, and comfort, on those days when I just cannot stop the mind from thinking about cancer. I would like to get to the day when "cancer" it is not on my mind, when I wake in the morning and when I go to bed at night.

Thanks to this site, and all of you, I believe I will get there.

Healing energy to all,
Lettik

[Jackie07]

Current stats:
Total 103 members* and 453 * years 3 months as of March 6, 2012

@ - members gleaned from other threads
*Including the founder of this group, Christine ((1990) 1999 Chest Brain NED 2001~), those who have posted on this thread, and members gleaned from other threads

[Introduced to one of our new members this thread which Jean had started in January. Then I noticed SoCalGal's tally (145 years for all 33 members) back in March. Thought I'd double check and add the ones after her posting. And I came up with 220 years and three months. (60 members* and 284* years as of July 9, 2011.) And it suddenly downed on me that I have survived my first diagnosis of stage I for 8 years. My recurrence in 2007, a Stage IIb, was caused by a series of failures - the surgeon thought she had had a clean margin, she didn't; the radiologist thought the shadow on the mammograms was 'scar tissue', it wasn't; my oncologist thought I was 'cured', he was wrong; my family doctor thought I was hypochondriac, he was also wrong ...

Will I have another recurence and become stage IV one of these days? Nobody knows. But just knowing the fact that so many of our stage IV sisters have beat the odds/on maintenance/receiving active treatment gives me confidence that whatever happens in the future, there is hope.

Thank you, stage iv sisters, for sharing your fighting spirit and triumph with us. 6-15-2011]

From NancyL: "Go to http://www.mbcnetwork.org/ and read stories about women who have been metastic for many many years. I also have a good friend, Stage IV for 11 years, continuously on Herceptin and doing well."

Name ____________ Er Pr Her2 (Initial Diagn) Stage IV Diagnosis _________ Clinical. Trials _______ Triumph years since StageIV ___ (NED = No Evidence of Disease)

Adriana Mangus__ Er- Pr- Her2+ (June 1994 Er+Pr+) July 2003 Lung ________T-DM1___________ 8 year 7 months and counting
Ahoff (Ann) ____________________________May 2010 IBC __________________________________ 1 year 9 months and counting
Alex1 ___________Er- Pr- Her2+ (Feb 2010) Aug 2011 Liver, lymphatic, skeletal ____________________ 7 months and counting
AndiBB ______________Er-Pr-Her2+ (1995 IV ILC) Aug 1998 Liver ____Herceptin 10 years ______ 16 years 6 months and counting (NED since 1999)
@ Angela ( - NC) ________ Er-Pr-Her2+ (May 2003) Dec 2006 Lung Feb 2007 Brain (Cyber knife) 5 years 2 month and counting
Angela R _____________________________ (2009) April 2011 _______________________________ 10 months and counting
Annmask _________________ DCIS Her2 + (1999) Jan 2008 _______________ MM111 __________ 4 years 1 month and counting
Asahizuru _______________________ (1990, 1996) 2002 Bones Spine ________________________ 9 years and counting
Barbara H ________________________ (May 1998) May 2004 Brain _________________________ 7 yrs 9 months and counting (NED)
@Bunty (Marie) ___________________ (Dec. 2000) Oct 2007 Lung June 2011 Liver _____________ 4 yrs 4 months and counting
@cdbernal (Charlyn) _________________________ Aug? 2006Liver __________________________ 5 yrs 6 months and counting]
Ceesun (Cathy) _________________________ June 2006 Lung ________________________________ 5 yrs 8 months and counting
Chelee _________ Er+ Pr+ Her2+ (Dec. 2005 IIIA) Sept 2009 Bone ____________________________ 2 yrs 5 months and counting
Choyces (Tina) __________________ July 2011 neck node and lung __ waiting for vaccine trial ___ 7 months and counting
Chrisy________________Er- Pr- Her2+ (June2002) Sept. 2004 Liver _________T-DM1____________ 7 yrs 5 months and counting
Colleen007______________________ Er- Pr- Her2+ Oct. 2005 Liver, spine, femur _______________ 6 yrs 4 months and counting
CoolBreeze________________________ (Aug 2009) May 2011 Liver __________________________ 9 months and counting
CourtneyL _____________________Er- Pr- Her2+ April 2008 Liver Lung (NED) Bone Brain ________ 3 yrs 10 months and counting
Dawn ______________________ (March 2006 IIIA) Feb 2009 Bone Liver (NED April 2011) ________ 3 yrs and counting
Dawny _________Er- Pr- Her2+ (May 27 2011)lung nodes chest + neck Abraxane weekly - 16 weeks Herceptin every third week (Sept 26 NED) __________________________________________________ ______ 9 months and counting
@dchips1 (Darita) ______Er- Pr- Her2+ Jan 2006 Liver/pelvis 2007WBR osteonecrosis 2009 GKRS 6 years 2 months (1/2011 NED)
DEBBIE S ______________________ Er- Pr- Her2+ Oct. 2004 Liver _____________________________ 7 yrs 4 months and counting
Deena H ____________ Er- Pr- Her2+ (March 2010) Oct. 2010 Lung ___________________________ 1 year 4 months and counting
@Delaney _________________ Er- Pr- Her2+ (2008) 2010 Nodes Skin Lung Hip Brain __ Allto Trial _1 2/3 years and counting
DMWARN [wife of]___________________ (1999) 2000 Spine Lung ___________________________ 12 yrs and counting
DianaMK ________________________ _(Dec 2006) June 2010 Skin Lung ______________________ 1 yr 8 months and counting (NED March 2011)
@Dianedack__________(Er+Pr+ Oct 2001 2 nodes) May 2009 Liver 2011Lung, Liver, Brain, Neck Node _ 2 yrs 9 months and counting
DQ1____________________ Er+ Her2+ (May 2009) Feb 2011 Mediastinal nodes Lung ____________ 2 years and counting
elcalabrese (Eleanor) _______________________ 2002 Stage IV ___________ Herceptin ________ 10 years and counting
Emelie B____________________Her2+ (Nov. 2006) Jan. 2010 Sternum lung liver bone ___________ 2 yrs 1 month and counting (NED till 1-2012)
Emy ____________________ Er+ Her2+ (2001 DCIS) 2010 Lung 2011 Liver ______________________ 2 yrs and couonting
Fauxgypsy ____________________ Er+ Pr+ Her2+ Feb 2007 Liver _____________________________ 5 yrs and counting
Flossie __________________ Er+ Her2+ (Jan 2006) July 2008 Brain Rib neck ____________________ 3 yrs 7 months and counting
Fullofbeans ________ Er-Pr- Her2+ (June 2006) August 2006 Liver ________UW peptide trial _____ 5 yrs 6 month and counting
@Gracepang _________________ Her2+ (Jan 2004) 2009 Liver Lung 2010 Brain ________________ 2 yrs and counting
Hraby73 (Holly) ________________ Er+ Pr+ Her2+ April 2011 Liver Lungs _____________________ 10 months and counting
Hutchibk ___________ Er+ Pr+ Her2+ (Nov. 2003) Aug. 2005 Chest nodes Bone Brain ___T-DM1__ 6 1/2 yrs and counting
iamlisaann (Lisa) __________ Er- Pr- Her2+ (June) July 2006 Liver Brain ___UCSF Avastin/Tykerb __ 5 years 8 months and counting (NED)
Jacqui ______________Er-Pr- Her2+ (Oct. 2009) Feb. 2011 Brain (VMAT radiation) _____________ 1 year and counting
Jeana _______________________ (June 2010 IIIA) April 2011 Brain (WBR) chest wall lung _______ 10 months and counting
@jkdowl _____________________ (Dec 2010 III) Feb 2011 Bones ____________________________ 1 year and counting
@jml (Jessica) ________ May 2002 Liver 2007 supclav. Node 2010 Brain Novalis 2010, WBR 2012 _ 11 years 9 months and counting
Joan M ______________ Er- Pr- Her2+ (Sept.2003) Jan. 2007 Lung Brain (NED)_________________ 5 yrs 1 month and counting
Joan S. _____________________________________April 2007 ________________________________ 4 yrs 10 months and counting
@KaiM _________________Er- Pr- Her2+ (Sept 2011) Nov. 2011 Bones and Liver________________ 3 months and counting
Kathy T _____________________ Er+ Her2+ (1984) Jan. 2003 Bone ________T-DM1 (2 yrs) _______ 9 yrs 1 month and counting
Kavy ____________________________ (April 2005) Nov. 2005 Lung Liver ______________________ 6 yrs 3 month and counting
KDR (Karen) __________________ Er- Pr+ Her2 + June 2010 Liver _____________________________ 1 yr 8 months and counting
KG1993 (Kim for her Mom) _____________Her2 + Aug. 2011 Bone Liver _______________________ 6 months and counting
Kim in CA _______________ Er+ Her2+ (Feb 1997) Sept 2001 Liver ______UW [Seattle]vaccine____ 10 yrs 5 months and counting (6 yr NED)
Kim in DC ____ Er- Pr- Her2+ (Aug 1998) 2004IBC Feb. 2008 Skin Sternum _____ T-DM1 (2 yrs) ___ 4 yrs and counting
Kiwigirl _______________Er-Pr- Her2+ (Oct 2009) Feb. 2011 Brain (VMAT radiation) ____________ 1 year and counting
Kmswilson ____________ Er- Pr- Her2+ (Dec 2010) Jan 2011 Liver Bones ______________________ 1 year 1 month and counting
@KristinSchwick ___________________ (Aug 2010) May 2011 Bones _________________________ 9 months and counting
Krisvell _____________ Er+ Pr- Her2+ (June 2009) Jan 2011 Brain _____________________________ 1 year 1 month and counting
KsGal _____________ Er-Pr- Her2+ (Oct 2011) Dec 2011 Liver ________________________________ 2 months and counting
kykeon22 (Son of Ha) _________ Er+Pr+Her2+ Feb 2008 Lung Liver ___________________________ 4 years and counting
Laura4252 ____ (High grade DCIS 2005) recur 2009 April 2011 Left Lung _______________________ 3 years and counting
Lauriesh (Laurie) ____________________________ July 2010 2 Liver mets (RFA) ________________ 1 year 7 months and counting (6 months NED)
Lettik _______________ Er- Pr- Her2+ November 2009 Liver mets _TDM1 2010 ; Everolimus 2011 __ 2 years 3 months and counting
Linda b ___________________________ Er+ Her2+ Feb. 2007 Lower back & Neck ________________ 5 yrs and counting
Lori R _________________________ Er- Pr- Her2+ Oct. 2007 Liver _____________________________ 4 yrs 4 months and counting
Mamacze _____________________________ (2001) 2004 Liver and lungs ___Seattle Vaccine _____ 7 yrs and counting (NED)
Mandamoo (Amanda)___Er-Pr-Her2+ 2B (Feb 2011) June 2011 skin, axilla node, lung ___Bolero3 __ 8 months and counting
Marilyn _______________________________ (2000) July 2001 Bones _________________________ 10 yrs 7 months and counting
Mary L _______________________ (Oct 2003 IBC IIIB) July 2004 Skin __________________________ 7 yrs 7 months and counting (NED since Oct 2007)
@Michka______________Er+ Pr+ Her2+ (Aug. 2006) Dec 2010 Liver (NED) June Sternum _________ 1 year 2 month and counting
Missyw _____________ Er+ Pr+ Her2+ (Jan. 2001) Aug 2006 Liver _____________________________ 5 yrs 6 month and counting
Mollecat _________________________ July 2011 nodes by lung, above clavicle, in neck _________ 7 months and counting
Mtngrl (Amy) ________________ Er+ (April 2011) May 2011 Liver, lung ________________________ 9 months and counting (NED 12/05)
Nancy L_______________ Er- Pr- Her2+ (Sept 2004) Feb 2009 _________________________________ 3 yrs months and counting (NED)
Nsebesta _______________________________ (2001) May 2004 Liver __________________________ 7 yrs 9 months and counting (NED since 2005)
PAFB ____________________________ (Jan. 1997) Jan 1998 Metastasis ____ Herceptin till 4/2011 _ 13 yrs 1 month and counting
Pam P_________________ Er+ Her2+ (June 2001) IBC Sept 2002 Bone Brain (WBR)_______________ 9 yrs 5 months and counting
PatE _______________________________________ Oct 2007 Liver spine ________________________ 4 yrs 4 months and counting (NED)
@Patrice1968 _______________________________ Sept 2010 Spine, Ribs, Uterus, and Liver ______ 1 year 5 months and counting
@Peggy09 ____________________________________ Feb. 2010 Liver, bone, lymph nodes ________ 2 yrs and counting (NED)
Phil (‘s wife) ___________________________________________ 2006 ___________________________ 5 years and counting
pibikay (Hema) ____________ Er- Pr- Her2+ (2010) March 2011 Vertebrae, Liver ________________ 11 months and counting
pmoore (Pia) ______________ Er- Pr+ Her2+ (2003 II) 2010 Lung Er+ Pr+ _______ Herceptin ______ 2 years and counting
Radiant __________________ (2005) 2010 Liver & Soft Tissue Mediastinal nodes _______________ 1 yr 11 months and counting
@Redwolf8812 (Penny) _______ Er- Pr- Her2+ (July III) Nov 2010 Skin ___________________________ 1 yr 4 months and counting
Ricky (‘s wife) _______________________________ 2006 Liver _________________________________ 5 1/2 years and counting (3 + years NED)
Sandra Digilio ______________________ (Dec., 2009) Sept. 2011 3 spots in bone _______________ 5 months and counting
Schoolteacher (Amelia) ______________ Nov 28. 2007 L4 ____________________________________ 4 yrs 3 month and counting (NED since 4-16-2008)
@Shaysmom (Kelly) _______________ (2001 Stage III) 2002 Ovaries 2009 Mediasternum _______ 9 yrs and counting
Sheila _______________ Er- Pr- Her2+ (Feb 2002) Sept. 2003 Neck nodes _______ T-DM1(3) ______ 8 yrs 5 months and counting
Sherryg683 __________________________________ Dec 2005 Lungs __________________________ 6 yrs 2 months and counting
SoCalGal (Flori) _________________ (1996; 2002) March 2007 Lung Sternum 2008 NED in Brain ___4 yrs 11 months and counting
StephN ___________________________ (Sept 2000) Jan 2002 Liver ____________________________ 10 yrs 1 month and counting (NED since 2005)
Survivor2be (Andrea) _________triple – (Sept 2010) 9/2011 Her2+ brain ______________________ 5 months and counting (4 weeks NED)
SuThorn _______________ Er+ Pr- Her2+ Sept. 2007 Liver ____________________________________ 4yrs 5 months and counting (NED since 1-2008)
tammymarie1971(30) ____ Er+ (Dec 2001) 2004 liver 2005 Spine/Hip _________________________ 7 yrs 11 months and counting
@Tiquer505 _____________ Er- Pr- Her2+ (1997) Four recurrences so far ______________________ 5 yrs and counting
Tonya ___________________________ Aug 2006 Liver ________________________________________ 5 years 6 months and counting
TriciaK ________________ Er+ (1985) 1990 spine, 2004, 2010 lung ____________________________ 21 years and counting
Turbo ________________________________ Lung 2007 ________Herceptin only __________________ 5 yrs (NED)
Unregistered _____________________ Jan. 2007 ____________________________________________ 5 yrs 1 month and counting
Unregistered (8-25-2011 #106) __________________________________________________ ________ 9 years and counting
Vicky ____________________________ March 2011 Liver Spine _T-DM1 lungs brain 2-2012 Halaven_11 months and counting
Vivienne [Mom of]_________________March 2011 Liver_____________________________________ 11 months and counting
@Waterdreamer ___________________ June 2008 Nov Lungs and bones ________ T-DM1 _______ 3 yrs 8 months and counting
Yankeebikachic ___________ (April 2006 IIIC) July 2008 Nodes in sup. clav. _____________________ 3 yrs 7 months and counting (NED)

[Jean]

To all the stage IV sisters....

"You are amazing" AMAZING....heartfelt thanks to all of you who have taken the time to share your feelings, thoughts and experiences so that so many others can learn from you. God Bless All.

Special thanks to Jackie "our own dear record keeper"

[laura4252]

I have been Stage IV since 2009. I am on Herceptin every 3 weeks, and just started Xeloda three weeks ago. Lung mets, two tumors in right breast. No MX. It's good to hear that we can live fully even with this diagnosis.

[turbo]

stage !V lung mets 5years on Herception only NED

[mschwab]

You are all so fantastic. Your unbelievable courage and strength is an inspiration to me. Thank you so much for sharing your struggles and triumphs with all of us in this community.

Maryann

[Pray]

What Maryann said! Thank you each and everyone of You!

[Emy]

I was diagnosed in 2001 with ductal ca...had rt mastectomy...In 2010 incorrectly diagnosed with primary lung cancer, removed lower right lobe of lung and received 16 weeks of chemo for lung ca(wrong chemo....should have been for breast ca)....In 2011 had liver mets, retested all tissues...never had lung cancer, wrong chemo....was breast cancer..in aug 2011, started taking letrozole daily and every 3 weeks Herceptin...tumor markers went down by Dec 2011, now are doubling higher every 3 weeks...dr said letrazole stopped working....any options???
er+, Her2+, PR-

[alex1]

15 Aug 2011 – Oral chemotherapy started – Tykerb 250, Xyloda 500
28 Feb 2012 – PET-CT Scan –hepatic metastasis,lymphatic
metastasis,skeletal metastasis

I.V. 3 weekly chemo started PacliALL given as suggested by Onco . What are other options ?


_________________________________________________
Age 38 years
17 Feb 2010 – Mammography – Mass in right breast suspicious of malignancy
19 Feb 2010 – FNA from right breast – Duct carcinoma cells seen
04 Mar 2010 – Right radical modified mastectomy – tumor 3X3X2, LN1/19 +ve
15 Mar 2010 – Hormone receptor – ER negative, PR negative, c erb B2 –
positive score3
25 Mar 2010 – Detection of HER-2/neu by FISH - positive
1 Apr 2010 – Chemotherapy Started – 3 CEF + 4 Docetaxel + Herceptin (3wkly X 17)
30 May 2011 – Course of Herceptin completed
9 Aug 2011 – CT Scan – focal lesion 3.2X2.9cm in segment IV of liver
10 Aug 2011 – PET-CT Scan – solitary hepatic metastasis, precaval LN
suspicious mets
15 Aug 2011 – Oral chemotherapy started – Tykerb 250, Xyloda 500
28 Feb 2012 – PET-CT Scan –hepatic metastasis,lymphatic
metastasis,skeletal metastasis

[Jackie07]

Alex1,

Penny has just started PARP trial. And T-DM1 has been the buzz word for a couple of years. You can go to the clinical trials board and browse. You can do a 'Search'. You might want to check with your hospital/clinic for clinical trials available in your area, or go directly to the clinicaltrials.gov website.

Hang in there. There are a lot of options available these days. I'm sending you good vibes.

[Salli]

Hi everyone. I just joined this site after a couple of days of browsing. What a great group of women. I am Stage IV with mets to bone and liver. First diagnosis was 2 cm, left breast, no node activity. Did a mastectomy. Was never given an option for further treatment at that time. This was back in November, 2008. In October 2010, due to excruciating pain in my spine, discovered bone mets to T11 and T12 area of spine. Also found liver mets with PET scan. I've been on Anastrazole and Zometa infusions since October, 2010. Last PET scan done 5 months ago showed NED. Will continue with Anastrazole and Zometa. Just for some added encouragement, in my oncologist's office there is a board with patient diagnosis and years since diagnosis. There is a mets board with patients stating 14 years and one stating 19 years. Go sisters......

[Jean]

Hi Salli,
Welcome and thank you for your up lifting story.
So happy for you and that you are dancing with NED.

Hugs and Blessings being sent your way.
Jean