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01-21-2012, 11:11 AM
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#21
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: CHELEE - how are you? Anyone know?
Thanks Ruth. I have been concerned about her too. I even tried to find information on another board where she stopped posting in July. So far I have not been successful on the other board, although I did hear from another lady with a similar name. It was nice of the other lady to respond though. I will try the other board again later today.
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01-21-2012, 08:13 PM
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#22
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: CHELEE - how are you? Anyone know?
I checked the other board today. No news !! We hope you can find out how Chelee is Ruth.
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01-22-2012, 03:42 AM
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#23
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: CHELEE - how are you? Anyone know?
Hello...I'm checking in to let you all know I'm OK. Just on over load with far too many things that are going on in my life. It's bad enough to deal with cancer...then factor in a bunch of other stressful things and it's been one but very rough road to travel for a while now. I am just mentally, emotionally and physically exhausted! I really can't take much more. I really am at my wits end. I will explain more later to you all. Thanks to all of you for checking in on me. Also Ruth called and left a message for me that got my attention. I SO MISS all of you. Thanks so much for the messages, & your concern. I didn't mean to worry anyone. I apologize. I keep you all in my thoughts and prayers. (I really do!) I'll update you more as soon as I can.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-22-2012, 11:36 AM
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#24
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: CHELEE - how are you? Anyone know?
Chelee,
Thank you so much for checking in with us !!
Thanks for the prayers. We appreciate them. You have been in our prayers and thoughts too.
I am very sorry to hear there have been some stressful things going on in your life and you feel a bit of overload and are exhausted. Please take good care of yourself !!
I hope you can get a little rest and relaxation soon.
I think I have your e-mail address, so I am going to send you mine. Feel free to keep in touch anytime you feel up to it or just want to contact one of us.
Drop by this site anytime you feel up to doing so. You are always welcome here no matter what is going on in your life.
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01-22-2012, 01:43 PM
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#25
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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Re: CHELEE - how are you? Anyone know?
No apology necessary. Just feel the love, girl...feel the love. And know that we would take some of your stress if we could.
XOXO
Maureen
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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01-22-2012, 01:50 PM
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#26
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Re: CHELEE - how are you? Anyone know?
Dear Stephanie,
I agree with you, let's add Chelee to our prayer list.
Thank you so much for keeping an eye in our sister.
Love,
Adriana
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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01-22-2012, 03:23 PM
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#27
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Senior Member
Join Date: Sep 2011
Location: Lovington, New Mexico
Posts: 100
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Re: CHELEE - how are you? Anyone know?
So glad Chelee posted, but so sorry she feels overwhelmed by everything. Thoughts and prayers are with you Chelee.
__________________
7/25/2011 Diagnosed DCIS and IDC on left from biopsy.
8/9/2011 Bilateral mastectomy
7mm clear margins Stage 1b, grade 3, 0/4 SLN ER- PR+ Her-2/neu +
9/19/2011 Started TCH every 3 weeks, TC for six cycles, Herceptin for 1 year
May all of your dreams bloom like daisies in the sun....
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01-22-2012, 05:37 PM
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#28
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: CHELEE - how are you? Anyone know?
Hey, Chelee, you know that avatar of yours with the squirrel-type animal clinging to that string? Well that is YOU, my friend! All I can say is HANG IN THERE until the tide turns. It will get better! Prayers for peace and strength coming your way.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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01-22-2012, 05:57 PM
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#29
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: CHELEE - how are you? Anyone know?
Chelee,
Good to hear from you. Lean on us if we can help!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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01-22-2012, 09:31 PM
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#30
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: CHELEE - how are you? Anyone know?
Your in my prayers also Chelee!
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01-23-2012, 07:37 AM
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#31
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: CHELEE - how are you? Anyone know?
Thanks for posting Chelee. Sorry everything is so overwhelming for you now, but it has to get better!!
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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01-23-2012, 09:00 AM
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#32
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: CHELEE - how are you? Anyone know?
Glad to hear from you, Chelee.
Amelia
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01-24-2012, 01:19 PM
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#33
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: CHELEE - how are you? Anyone know?
Love u Chelee ~ so glad you posted. We are here for you and want to help you in anyway possible.I just wish I lived closer to give you a big hug & physical support.
Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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01-24-2012, 01:25 PM
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#34
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: CHELEE - how are you? Anyone know?
Dear Chelee -
So sorry to hear that times are tough. Hoping that all our prayers have somehow made things just a teensy bit better. We all will continue to send our prayers, best positive wishes, etc. going your way.
Wishing for 2012 to let up on you, and give you a break.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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01-24-2012, 03:11 PM
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#35
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Re: CHELEE - how are you? Anyone know?
Hey Chelee! Keep 'em guessing, and stay one step ahead!
As ever,
AlaskaAngel
__________________
Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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