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05-31-2013, 07:13 AM
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#21
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Senior Member
Join Date: May 2011
Posts: 137
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Re: Doxil...q28 days -time is of the essence
Jessica- adding my heartfelt thoughts and prayers with the others. Hopeful- and lifting you- praying for strength, clarity and peace.
__________________
3-16-11 dx IDC 4.4 cm tumor, right breast,HER-2 neu 3+++, Stage III
3-25-11 PET scan shows 3 mets to liver and 1 to spine, Stage IV
4-12-11 start clinical trial of TDM1 infusion 1x every 3 weeks.
6-14-11 CT scan after 3 cycles shows NO liver spots, reduced spinal met from 18mm to 13mm and right breast mass from 4.4 to 4.2 cm.
8-12-11 Mastectomy rt. breast.
10-11 scans reflect stable cancer
12-11 MRI reveals area of concern in brain, CT scan reveals 3mm spot on lung. Watch and wait and rescan in a few weeks. Round 13 TDM1 complete.
2-21-12 Scans reveal progression in lungs with 4 new small mets. Officially off tdm1. Start halaven and radiation for single brain met, 1 spot in spine.
3-13 stereotactic radiosurgery for single brain met.
5-31-12 Halaven stopped due to low blood counts. Start tamoxifen and cont. Herceptin 1x3 weeks.
7-11-12- brain mri shows shrinking brain met and no new lesions. Cont. Herceptin and Tamoxifen
10-2-12 Stable tumor markers. Continue Herceptin and Tamoxifen
4-9-13 progression in lymph node under arm and new lung spots. Stop Tamoxifen. Add Xeloda to Herceptin.
6-10-13 Stereotactic radiosurgery to two new brain mets. Stop Xeloda due to lung mets progression. begin Tykerb 7-2-13.
10-29-13 Begin radiation to my lungs and one lymph node under my arm. Stop Tykerb until completion and then recommence.
1-31-14 Progression in lungs. Oophorectomy performed.
2-18-14 Begin Arimidex and continue Herceptin
7-7-15 progression with spots on colon, in pelvic region, and in lungs. Begin Taxotere, Perjeta and Herceptin.
11-15 Switch to weekly Taxol, and continue with Perjeta and Herceptin.
12-23-16 PET scan shows Complete Response with no new spots. Continue on with TPH indefinitely.
3-16-16 Still no evidence of disease, break from Taxol. Continue on with Perjeta and Herceptin.
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05-31-2013, 09:47 AM
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#22
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Senior Member
Join Date: Oct 2011
Location: British Columbia, Canada
Posts: 139
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Re: Doxil...q28 days -time is of the essence
Jessica,
Could some of the issue be fibrosis? You just had radiation 6 months ago.
You will continue to be miraculous and amazing and this treatment will work. Wish I could be there to give you a huge hug and give you strength. I'm glad you have your family with you.
__________________
Dx Age 47 July/09 Stage 2B/3
Left Mast. Aug 09- 1 of 3 positive nodes in axillary dissection (yes only 3)
ER+ 90%, PR+ 20%, HER2+++
4 x AC, 4 x Paclitaxol and H (Neupogen for 7 cycles), Herceptin complete Nov 10
Mar–Apr 2010 25 Rads
Apr 10-Oct 11- Tamoxifen
Oct 11 – 3 cm met to sternum
Oct 11-Letrozole for 3 mths, start Clasteon-bone remodeller
Nov-Dec 11 - Happy 50th Birthday -20 rads to sternum
Jan-April 2012 Taxotere/Herceptin-6 cycles (Neupogen for 5)
Herceptin every 3 weeks-Letrozole added Nov 2012
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05-31-2013, 12:19 PM
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#23
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: Doxil...q28 days -time is of the essence
Jessica,
Ugh. I wish that you had received better news.
My friend posted yesterday that "If God only gives us what we can handle, he must think I'm a real bad ass."
Well I think that you are really strong and courageous, spirited and tenacious.
I hope the Doxil kicks the cancer's butt and that even tho it is kicking your butt - that you will bounce back again even stronger.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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05-31-2013, 03:39 PM
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#24
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Senior Member
Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
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Re: Doxil...q28 days -time is of the essence
Jessica
Adding my best wishes along with all of your friends here. I am sorry you are scared, let's hope the cancer is terrified, seeing doxil come its way!
Dawn xx
__________________
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
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05-31-2013, 03:53 PM
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#25
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Senior Member
Join Date: Dec 2006
Posts: 415
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Re: Doxil...q28 days -time is of the essence
Hi My Friends~
Thank you for your encouragement & prayers. I can feel them, I can!
We meet with in-home hospice tomorrow - not because I necessarily think we're
"at that point", but it is the option I have chosen and would like to know as much
about the program and what to expect.We leaned on the nurses so much when my dad was in hospice and I want my mom and sisters to have that support again.
I had a long, very honest conversation with my NP and I feel less disoriented about what to expect.
As I always say, Knowledge is Power.
I don't think it will necessarily make things easier, but it is somehow helpful.
I haven't given up!
My NP said it's too early to say whether the Doxil is working or not - and I'll have some good days and some bad days, and I have to remember that I am still anemic and all the SE's of chemo are still in play. It's confusing though, bc when I feel well, I think it's working. When I don't feel well I'm scared that it's not.
I am keeping the Faith my friends~
Jessica
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05-31-2013, 06:18 PM
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#26
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: Doxil...q28 days -time is of the essence
Thanks for posting again Jessica.
It makes sense that you would want to have as much support as possible for yourself as well as for your mom and sis. I am glad that you had a good talk with your NP and that it helped you get centered. Please let me know if there is anything you need or I can do to help out. I am not far away!
Love,
K
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