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04-21-2013, 01:05 PM
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#1
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Senior Member
Join Date: Dec 2006
Posts: 415
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Ascites, anyone?
Hi Friends,
Anyone have experience with ascites & successful intervention?
To make a long story short, I have had gradually increasing belly "bloating", but have just really noticed how significant and unyielding it is ~10 days ago.
An unexpected, unrelated ER visit showed a small amount of fluid in me pritoneum but not enough to safely aspirate.
I'm currently still on vacation & am delaying dealing with my reality, but head back to Atl tomorrow.
Just wondering if anyone can share some wisdom?
Keeping the Faith~
Jessica
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04-21-2013, 03:45 PM
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#2
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Ascites, anyone?
Sorry no wisdom to share, but I hope you will be feeling better soon.
Take good care of yourself.
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04-21-2013, 06:04 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: Ascites, anyone?
No wisdom, but want you to know know I'm thinking of you Jessica.
Much love,
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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04-21-2013, 10:15 PM
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#4
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Ascites, anyone?
I didn't have any intervention, but I did have some abdominal ascites with my mets to the liver. My doctor said most of it was towards the back, whatever that means, and didn't act like it was too much of a big deal. Wish I could be more informative. Certainly thinking of you and sending lots of prayers.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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04-22-2013, 08:12 AM
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#5
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Senior Member
Join Date: May 2010
Posts: 184
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Re: Ascites, anyone?
Hi jml, I had ascites last year. My BC went to bowel with blockage, in hospital for blockage when they saw the fluid on CT, they drained it. Seemed like a lot to me but said it was small. Went on abraxane herceptin and tykerb. Did well, doc checked abdomen regularly but seemed under control. Kidney cancer L side ablated then most recently BC to R kidney when I started getting blocked up again. Now on Kadcyla (1 TX) and feeling better already. Not much discussion or seeming concern once I had results with the abraxane but back to checking abdomen again. I think because I had tumors to watch as long as I wasn't bloating they weren't too concerned with the ascites but I also assumed it too was controlled with chemo.
Hope this helps and things go well for you.
__________________
3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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04-22-2013, 11:18 AM
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#6
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Senior Member
Join Date: Dec 2006
Posts: 415
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Re: Ascites, anyone?
Thanks everyone for you support & responses.
I'm so disappointed by this new complication bc it indicates that the Pertuzumab, Herceptin Taxotere combo isn't doing the job- inspite of pretty darn good scans that showed my liver to be clean. Clearly iits not  . Ugh-another failed combo- so disappointing and scary.
I fly back to Atl today & expect to see my docs as soon as I get back. I want to find out what's going on, but am scared.
Keeping the Faith~
jessica |
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04-22-2013, 02:20 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Ascites, anyone?
Holding good thoughts for you Jessica!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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04-22-2013, 10:31 PM
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#8
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Ascites, anyone?
Dear Jessica -
Glad you were able to get away even if your body was giving you some new signals.
Several women over the years have posted on this development. Some were able to overcome this and my prayer is that you will join that number.
Holding you in positive thoughts for the doctor visit.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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