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06-14-2007, 06:36 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Coatbridge, Scotland
Posts: 73
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Herceptin No More !!!!!!
Have just been taken off Herceptin, after, having been on it for nearly 4 years....
I am a 2 times survivor, my first cancer ( Breast ), rearing its ugly head 6 years ago. Result... Lft breast Mastectomy 2001
2 years later I found to my horror, that it had returned. Same side, chest wall...
What I have since been told, is, that I have had two different kinds of Cancer, the first was Hormone sensitive and I went through a severe clinical trial called..Taxotere.., ( It nearly killed me )
The secondary was protein based and after tests proved to be Her2 +++
I qualified for Herceptin, ( The wonder drug ) and it has worked miracles....
Cos I am Here......
I have since been taken off Herceptin and put on a drug called " Femara" A Hormone based drug....
My problem now is.......! what type of Cancer will come back.. If its Gonna .!!!!!! Anyway, What I really want to say is ......If your on Herceptin, Keep your chin up, cos this drug is the major breakthru. Keep well and keep informed x best wishes to all Geri xx
p.s. God Bless
xxxxxxxxx
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06-14-2007, 06:38 PM
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#2
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Congrats!
Dear Geraldine: Sending you a big hug and congratulations on your battle vs the beast...so far you are winning..
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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06-15-2007, 06:53 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Congratulations! I hope that everything works out good for you and you continue to beat this thing!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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06-16-2007, 02:00 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Hi Geraldine!
Geraldine thats wonderful and I'm sure you'll continue to beat this. You must be delighted at having no treatments to look forward to now!
I hope you continue to do well. I see you're from Scotland? I have a son who moved to Dundee four years ago and loves it. My friend from this site Carol H was also from Dundee but moved back to Ireland to be with her husbands family when her cancer spread. Good luck to you and stay well.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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06-16-2007, 02:16 PM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 215
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Hi Geraldine
Congrats on no more Herceptin. I am also a Scot. Born and raised in Montrose, now live in Florida. I had my year of Herceptin and finished last November, feel great and see my Onc next week. Hugs to you,Jeanette
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06-16-2007, 02:31 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Geri, It sounds like you've been through your share and your doing GREAT now.  I truly do believe herceptin is a big player in that. Let me just say, Congratulations to you. You said your problem is you want to know what kind of cancer will come back if it does. Don't think that way...because its NOT coming back. Positive thinking girl. (I know...easier said then done...right.) You had Taxotere and 4 yrs of herceptin...I think your going to go great...I really do. Hang in there. Celebrate and enjoy.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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