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Re: Start, stop, start, stop
Vicki,
So sorry to hear of the difficulties you are having with the X/T. There are others on the board with my info than myself so I hope they quickly chime in.
I was not on X/T, but my onc added Tykerb to Herceptin hoping that would do the trick. (it didn't). I faced a serious case of the trots and it REALLY took in out of me (no pun intended).
I was able to get it under control with large doses of Immodium. Has your onc. informed you have how much you can take? I was amazed at how much they recommended.
If Immodium doesn't get it under control, there are prescription drugs. Are you on one of those? If not, request it. I could not keep myself properly hydrated which negatively impacts so many functions in our system.
I can't add anyhting for the challenging Xeloda impacts.
I certainly hope your efforts pay off!!! Maybe push for an earlier than usual scan, so that you can move on if this isn't the ticket.
Lori
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2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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Hybrid Mode
