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Old 07-05-2006, 04:16 AM   #1
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dawn's Avatar
Join Date: Jul 2006
Location: Newfoundland, Canada
Posts: 153
I am new to this site also, you are such an inspiration to me. I/ve just been diagnosed in March of this year with infiltrating ductal carcinoma. 5.5cm left breast, I had a bilateral masectomy with 8/18 lymphnodes positive. ER+, pr+, her2nu+. Right now Im on my5 out of 6 chemo treatments. Then theres 25 rads. Oncs are saying 5 years chemo and herceptin. I also have a 2 year old daughter and a 5 year old son. I plan on beating this and being cured to see them grow into adults but at times its really tough and scary. So far all my tests, bone scans, muga scans, ultrasounds, cat scans have all come back clean. I find watching my kids sleep the hardest, wondering what life has in store for them. But I keep telling myself that I can beat this and everyday they are coming up with something new for cancer. How can someone at 40 years old, just starting a family end up with this disease? Im going to adopt your attitude and beat the odds also. Thanks for the inspiration.
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Old 02-04-2011, 11:49 AM   #2
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Join Date: Feb 2011
Posts: 1
Re: Young survivor

I can relate to what you are going through. You are brave and positive and that is what it takes. I have a daughter that just turned 22 and she has a 13 moth old liittle boy. She was diagnose in July 2010 with breast cancer and yes it is estrogen,progestron and her2 positive. It had already sprread to her lymphnodes. She has been undergoing chemo since sept 10 and was taken off due to heart damage to her heart and they just put her back on chemo 2 weeks ago. She has 2 treatments left of the fec and then she will go back on the hercip. She has had a hard road and still has a long way to go with surgery of both breast, radation for 6 weeks and them reconstructive surgery. But I can say that that little boy is what makes her fight. She tells me mom failure is not an option for me. I have promised to be with her every step and I will. We never know why these things happen but with the trust and faith in GOD you and she will get through this. GOD bless you for helping to spread the messages.
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Old 02-05-2011, 04:36 AM   #3
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Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
Re: Young survivor

Dawn I am very hopeful you will do well and be around to watch your children grow. My best wishes.
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Old 02-05-2011, 09:14 AM   #4
Mary L
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Join Date: Nov 2010
Location: PA
Posts: 297
Re: Young survivor

ddstokes, I wish you and your daughter the best. You are a great Mom and I know she happy to have you by her side as she battles this disease. Best Wishes. Mary l
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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Old 02-07-2011, 01:51 PM   #5
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Join Date: May 2009
Posts: 510
Re: Young survivor

Dear Dawn,

It breaks my heart to see another young woman diagnosed with this disease. Please know that you are not alone - there are many young
moms out there (have you checked the Young Survival Coalition web site?It's a great resource.

You can see at my signature below that I had a locally advanced tumor and I'm now fine. I have 3 kids, ages 8, 6, and 4. Never in my lifetime I thought I'd go through this. But here I am, braving this new frontier of survivorship.

Please feel free to come here often for
support and PM me anytime.

Best of luck to you during your treatment phase,

ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin

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Old 04-08-2011, 03:27 AM   #6
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Join Date: Nov 2010
Posts: 186
Re: Young survivor

ddstokes, I emailed you.
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Old 05-01-2011, 02:12 PM   #7
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Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: Young survivor

Thought this link belongs here:


Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.

Advocacy is a passion .. not a pastime - Joe
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