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Old 07-11-2013, 05:41 PM   #1
Join Date: Jul 2011
Location: Pingree Grove, Il
Posts: 15
Questions about the dreaded hair loss??

Ok so how do I ask this without seeming completely vain? Ill just get to the point. I am on new meds which causes complete hair loss (eyebrows/lashes as well) did anybody ever try falsies when their eyelashes fell out?? I lost them before back in 2006, I mean I know all about it, but was just curious if anyone's tried them and if so, any success??
Laurie :)

*2006..Dx w Stage1 DCIS age32 Had lft breast mastectomy
-4 cycles A/C 12wks..4 cycles Taxol/Herceptin 12 wks (herceptin 1yr total)
*2007..prophylactic rt breast mastectomy
*May2011..was told I was CURED & within 2 days was reDX w stageIV mets to my liver,lungs,&bone
-6wks Herceptin(little progression to liver)
-started clinical trial on July 19th T-DM1....Hopeful!
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Old 07-11-2013, 07:34 PM   #2
karen z
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Posts: 1,477
Re: Questions about the dreaded hair loss??

Hi. No, when I was on chemo in 2005 (very similar drugs to you) I lost nearly all of my hair on my head and eventually all body hair and (the last too go) nearly all eyelashes and eyebrows. I could handle trying (sometimes) to come up with some eyebrows but left the lash situation alone. Of course by then my dry eyes had gotten so bad on chemo I was out of the type of contact lenses I had worn for years and was wearing glasses. I think that helped actually as I felt less self-conscious.
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Old 07-13-2013, 03:20 AM   #3
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Location: "Love never fails."
Posts: 5,808
Re: Questions about the dreaded hair loss??

I've heard/read that T-DM1 does not cause as much side effects/hair loss as the regular Herceptin. Check out (use the 'Search' button) the T-DM1 threads for details.

Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 07-13-2013 at 03:26 AM..
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Old 07-13-2013, 04:40 AM   #4
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Posts: 184
Re: Questions about the dreaded hair loss??

I don't think it's vain. I thnk we want to hold on to whatever feminity that we can.
I would worry about an infection so I went with eyeliner and got pretty good with it. I found if I use the gel with a brush (loreal) it is gentler and smudge it with a powder liner (sonia kachuk, target) it looks pretty good. I started having fun with it too. I don't know if people were being kind but I had a number of compliments on my pretty eyes.
3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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Old 07-13-2013, 06:14 AM   #5
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Posts: 645
Re: Questions about the dreaded hair loss??

I hear you! I was more concerned about losing my eyebrows/eyelashes than my hair. After all, that's what wigs are for!

Eyebrows got really sparse but never lost all of them so could still fill them in with eyebrow pencil and no stencil. Never lost all my lashes.

Like Karen, I stopped wearing my contact lenses, so my glasses hid the brows and lashes. Plus, the bangs on the wig provided great coverage!
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 07-13-2013, 12:13 PM   #6
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Location: Sunny San Diego
Posts: 2,214
Re: Questions about the dreaded hair loss??

Oh . . . I never had the best eyelashes, but gluing on the lashes is just so challenging. Practice, Practice.

My brows came in thinner, and I draw little lines in with pencil and smudge. It makes me feel I look younger, and I can change the color of my brows (fun!).

I started wearing glasses too. I think they help create a more balanced look.

It isn't just vanity, having hair, brows and lashes makes me feel more comfortable.

After all, we are girls and we like to look pretty!
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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