Hi; I don't have Dr. Pegram's contact info but here's a link to a thread from this site that was started a couple of months ago when one of our members was asking for ideas on who to see for a consultation. You could "private message" some of these gals for the contact info on the docs they recommend, and Mel Gordon's post mentions he has contact info for Dr. Pegram.
Looking For A Specialist, Please Provide Some Names:
http://her2support.org/vbulletin/sho...ghlight=pegram
Also, don't know if you've entirely ruled out the EAP trials of Tykerb/Xeloda which I understand are available now in Australia. You mention you are against Taxanes, but Xeloda is not a taxane; here's a bit I copied from Medline about Xeloda:
"...Capecitabine is in a class of drugs known as antimetabolites. Capecitabine resembles a normal cell nutrient needed by cancer cells to grow. The cancer cells take up the capecitabine, which then interferes with their growth..."
So, a start for you, hope this helps.
<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Hybrid Mode
