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Old 08-03-2014, 08:57 AM   #1
knmtwins
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Posts: 19
Vision / off balance when looking up

So, I am cycle 1, day 19, TCHP, and still having visual issues. If I look up I get slightly off balance and scrolling on the computer still makes me a little nauseous. Significant improvement from day 3 - 8 where I couldn't even get on the computer, but would love to hear how others deal with this.
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5/24/14 Found by getting a crumb out of my bra.
5/30/14 Doctor couldn't find it, until I put her finger on it, ordered a Dx Mammo
6/3/14 US core biopsy and marker
6/4/14 Dx IDC 1.5cm
6/5/14 ER+ PR+
6/6/14 met breast surgeon
6/10/14 chest X-ray, clear; blood panel, clear
6/12/14 MRI - now sized at 2-3cm
6/11/14 HER2 overexpression
6/19/14 Saw plastic surgeon, will do skin sparing
6/26/14 BRACA new 2014 guidelines BRACA can be run for adopted
6/20 - 7/7 Lots of different ideas, saw 3 oncologists, changed from mastectomy to Neoadjuvant chemo. with Perjetta
7/16/14 Chemo Cycle 1 of 6; TCHP
12/2/2014 Skin sparing BMx, with TEs, SNB
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Old 08-03-2014, 12:40 PM   #2
BonnieR
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Join Date: Jun 2007
Posts: 2,210
Re: Vision / off balance when looking up

Didn't have this problem but just wanted to respond to you! I assume your doctors are aware of what's going on? There are myriad side effects and we need to be vigilant in following up. And of course it could be unrelated. Though not as likely
Hope it continues to improve
Keep the faith
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 08-03-2014, 02:28 PM   #3
knmtwins
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Join Date: Jul 2014
Posts: 19
Re: Vision / off balance when looking up

BonnieR,
Yes they are aware, on day 5, I was having ocular migraines, just the visual disturbances, so had to go make sure my retnas / retnae (who knows the plural spelling) were fine.
__________________
5/24/14 Found by getting a crumb out of my bra.
5/30/14 Doctor couldn't find it, until I put her finger on it, ordered a Dx Mammo
6/3/14 US core biopsy and marker
6/4/14 Dx IDC 1.5cm
6/5/14 ER+ PR+
6/6/14 met breast surgeon
6/10/14 chest X-ray, clear; blood panel, clear
6/12/14 MRI - now sized at 2-3cm
6/11/14 HER2 overexpression
6/19/14 Saw plastic surgeon, will do skin sparing
6/26/14 BRACA new 2014 guidelines BRACA can be run for adopted
6/20 - 7/7 Lots of different ideas, saw 3 oncologists, changed from mastectomy to Neoadjuvant chemo. with Perjetta
7/16/14 Chemo Cycle 1 of 6; TCHP
12/2/2014 Skin sparing BMx, with TEs, SNB
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Old 08-03-2014, 02:34 PM   #4
BonnieR
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Posts: 2,210
Re: Vision / off balance when looking up

BTW. I find it interesting how our cancer is discovered. Getting a crumb out of your bra is unique. And thank God for it!
I remember when I was a naive 17 year old brand new nursing school student and feeling so embarrassed when a lecturing doctor told us that most breast tumors are found by husbands!
Keep the faith
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 12-01-2014, 03:01 PM   #5
rondo
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Join Date: Dec 2008
Location: Monterey County, CA
Posts: 37
Re: Vision / off balance when looking up

Sorry I just found this post. sounds like a vestibular problem. The nausea and visual problems are part of it, but it affectcs balance as well. I developed similar symptoms during chemo and they continued to progress after I finished treatment. Eventually, my balance became so impaired I started falling. I had just attributed this to weakness, but it is an actual neurological issue. My oncologist said it was caused by the taxotere and after some persistence, I obtained a referral for vestibular rehab therapy. None of my doctors had any concept about this problem except the MO but she didn't know where to send me for help. An ENT made the referral. The therapy was incredibly helpful. Interestingly, it also helped with my cognitive issues. According to my vestibular therapist, this problem (vestibular hypofunction) is very common after chemotherapy. I have talked to several women who developed poor balance after chemo. Don't give up in seeking help. The therapists know far more than the doctors and validated all my concerns which had been dismissed by my other providers. vestibular.org is a great resource for all balance disorders, which are very common and not necessarily caused by chemo.
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IDC 6 mm l.b. 3/08 age 49; ER <1%+; PR -; KI67 40%; HER2 +++by FISH; lumpectomy/snb 4/08; extensive dcis found at surgery (didn't show in bx or mammo); micromet in sn; MRI breasts and chest 4/08-NED; re-excision l.b. 5/08; refused axillary node dissection; no ca found in re-excision tissue. TCH q 3 wk x 6 finished 10/08; whole breast rad x 7 wk finished 12/08; refused axillary and supraclavicular rad. Herceptin thru 6/09. Refused tamoxifen & aromatase inhibitors.
1/13 so far so good:-) have vestibular hypofunction from chemo but its all good since now officially on borrowed time!
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Old 12-01-2014, 05:26 PM   #6
Nurse4u2day
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Join Date: Feb 2014
Location: California
Posts: 426
Re: Vision / off balance when looking up

Hmmmm... Vestibular hypo function very interesting. I am going to have to check that out.
Prior to chemo my vision was fine but these last 3 weeks my vision as well as my balance ( lightheaded ) has been off. My vision has become a bit blurry and the light headed episodes had really put a fear in me. So last Monday I had a ct of my brain, and with in an hour my Oncologist called to say it was all clear YEAH!!!. So now I have an appointment with my eye doctor tomorrow . Out of the blue I decided to try on a pair of over the counter reading glasses and wow it helped with my vision. Also I was not wanting to get on the computer because of the nausea . I have since bought an over the counter pair of eyeglasses and it has helped significantly. Now I can get online a lil more and my lightheaded episodes have decreased. My thought is at my age 46 the vision starts to slowly go ( 40-50) and chemo just accelerated or has exasperated the process. But the vestibular function is interesting . Also I'm still on the herceptin.
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11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
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