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Old 07-06-2011, 08:15 PM   #1
Pray
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I might be in trouble.

I saw my onc. today and Friday I need a bone scan and have to see my sur. I have to painful spots on one rib and some kind of nodule the size of a dime between two ribs the one that has pain in it and the one above it.
I am hoping to leave on a two week camping trip Saturday. I'm only out 7months from my last herceptin, isn't this kind of early to have bone met? Has anyone had this happen to them? I am trying not to worry It could turn out to be nothing right?

Ishy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 07-06-2011, 08:56 PM   #2
Rich66
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Re: I might be in trouble.

Pain and/or scar tissue near mastectomy site? What do you mean by "sur"?
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Old 07-06-2011, 09:00 PM   #3
hutchibk
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Re: I might be in trouble.

I think it's short for surgeon...
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 07-06-2011, 09:08 PM   #4
Rich66
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Re: I might be in trouble.

Ah..............
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Old 07-06-2011, 09:09 PM   #5
Pray
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Re: I might be in trouble.

Yes it is surgeon. Thank you Brenda. I am sorry I don't know know all the abbreviations everyone uses here. There seems to be so many. Thank you both for responding so quickly! When pressure was applied to two spots on one rib it was very pain full and my onc. said it was to far from the surgical site to be scar tissue and you can move it some. I have had Pain in the past 2 months, I just assumed it was just a new part I was starting to feel again.
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 07-07-2011, 10:25 AM   #6
michka
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Re: I might be in trouble.

Ishy, you have to have it checked but it may be nothing. I have painful spots on some ribs since radiation more than 4 years ago.. Did you have radiation?
Michka
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Old 07-07-2011, 02:35 PM   #7
tricia keegan
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Re: I might be in trouble.

My friend had a similar issue and pain and it turned out she had a fractured rib!!
I hope it's something easily treated than what you fear, good luck and keep us posted
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 07-07-2011, 05:25 PM   #8
Pray
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Re: I might be in trouble.

Thank you for your responses. I did have radiation on that side. It does sound logical that it could be from radiation. I had not thoutht of that. I guess I was thinking that radiation pain would all be gone by now.
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 07-07-2011, 05:39 PM   #9
yanyan
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Re: I might be in trouble.

I think it is always safe to get it checked. I suppose you have follow up visits with your oncologist every 3 months after the treatment? Do they monitor your tumor marker? If you have an elevated result, your doctor should send you for a check up on your pain. good luck with everything!
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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Old 07-07-2011, 07:38 PM   #10
Pray
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Re: I might be in trouble.

I'm ashamed to say I had a women tell me some time ago that they only check tumer markers for ovarian cancer. So I never thought to ask! I have read alot on this site about people checking there markers I didn't think it applied to me. I have'nt had the chance to 3 months with out seeing my onc.
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 07-08-2011, 07:48 AM   #11
Lien
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Re: I might be in trouble.

Hi Ishy,

Ive been told it is quite commong to get pain in the ribs after rads. I had it too, and it came and went for a few years. It scared the living daylights out of me the first time, but then it went away and didn't return until a year or so later. I could also feel some swelling that moved a little when it palpated it.

Here in the Netherlands we don't do tumor markers unless patients are stage 4 and in active treatment. They are notoriously unreliable, although for some they seem to indicate disease progression before the mets show up on any kind of imaging technique.

It is ofcourse possible that these are bone mets, but it is highly unlikely. So try not to panic just yet. (I know how hard that is).

You have done all the right things to avoid a recurrence and I know many women who had your kind of path report, who are over 10 year out from diagnosis and doing fine.

So breathe in, breathe out and get it checked to be on the safe side, but don't get too worried.

Hugs

Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 07-08-2011, 12:03 PM   #12
Pray
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Re: I might be in trouble.

Thank you Jacqueline For your reply! Positive coments always feel good!

I had my bone scan today and inbetween the sessions I saw my surgical onc. We think the little nodules are probably fatty masses. We will wait and see. I see her in 3 weeks.

During the bone scan I could see the pictures and I saw a fairly large dark spot where I am having the pain. I'm sure I am just seeing things because I asked the woman who performed the scan if she thought it looked good and she said they got good pictures and they didn't need to do any extra scans. I hope it is just nothing and I'm just parinoid. My onc. can get the results on line Tuesday. Of course I will be up north for the next two weeks where you have to be in town to use your phone! I feel pretty good about how the day went and everyone seemed up beat and positive. So I will be happy and upbeat enjoying my family on our trip! I appreciate all of you so much!

Peace,

Ishy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 07-08-2011, 02:09 PM   #13
JennyB
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Re: I might be in trouble.

Ishy,

I had terrible back pain thoughout the pregnancy that I was carrying when diagnosed and when I had the bone scan after his birth there was a big patch in the same area, my onc calmed me down said it was pregnancy related but I guess I didn't ever really beleive him no matter how much I talked myself into it. I had repeat scans a few months later and it was still there no change and no mets the patch was too symetrical. I am now calm about the back problems I guess I am in the '50%'? or so of adults with back pain.
Pain in the ribs after all that we survivors go through in that area is surely quite common?? I know I am starting to get pains there too!
Good luck with your results on Tuesday and enjoy your holidays
Jenny x
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy

Praying the Herceptin is as good as its hype!!
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Old 07-08-2011, 08:25 PM   #14
Pray
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Re: I might be in trouble.

Hi Jenny,

Thank you for your response Your beautiful Baby looks like he was worth every ounce of your back pain! Gods blessings to you. I hope there is an end to your back pain some time soon! As for enjoying our holiday I will do just that. Take good care.

Ishy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 07-24-2011, 11:51 PM   #15
Pray
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Re: I might be in trouble.

Hello,

My onc. called me on my 3rd day of vacation. I was looking at a beautiful pond surrounded by sand dunes when he said my bone scan was CLEAR! I am so Happy!! I just feel so unbelievably Blessed! I am really feeling I just might make it!!! Thank you everyone for your support!!! My onc. and my surgeon will see me again to check on the fatty spots under my arm over the next two weeks. I feel very positive and I'm no longer worried about the rib pain!
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 07-25-2011, 08:28 AM   #16
caya
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Thumbs up Re: I might be in trouble.

Great news Ishy Lacey - enjoy the rest of your vacation.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
14 Years NED!!
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Old 07-25-2011, 09:29 AM   #17
yanyan
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Re: I might be in trouble.

Great news, Ishy.. so very happy for you !!! Enjoy your vacation
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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Old 07-25-2011, 09:37 PM   #18
Pray
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Re: I might be in trouble.

Than you Caya and Yanyan! I hope I will never have to use the title of this thread again!!
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 07-25-2011, 10:30 PM   #19
Laurie7
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Smile Re: I might be in trouble.

So happy for you to receive such amazing news!!
__________________
Laurie :)

*2006..Dx w Stage1 DCIS age32 Had lft breast mastectomy
-4 cycles A/C 12wks..4 cycles Taxol/Herceptin 12 wks (herceptin 1yr total)
*2007..prophylactic rt breast mastectomy
*May2011..was told I was CURED & within 2 days was reDX w stageIV mets to my liver,lungs,&bone
-6wks Herceptin(little progression to liver)
-started clinical trial on July 19th T-DM1....Hopeful!
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Old 07-26-2011, 12:01 AM   #20
sassy
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Re: I might be in trouble.

Ishy,

So glad you got good news. Rib pain is quite common for many of us. I am six years out and still have rib pain, especially when over tired. Comes and goes.

Take a deep breath and relax now!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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