HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 05-24-2011, 08:13 PM   #1
CoolBreeze
Senior Member
 
CoolBreeze's Avatar
 
Join Date: Dec 2009
Posts: 562
Possible Liver Mets?

I'm two years out from my HER2+ breast cancer dx. Mastectomy, carbo/taxol/ herceptin a year, finished December '10. At that time, I started having left side flank pain. My doc sent me for an abdominal CT, which came out fine. Pain never left. A month ago I started bloating up and gained two pants sizes, and considering that I was a size 0, that is a significant percentage. My doc admitted his alarm and suspected ovarian cancer. Sent me for another CT.

I got a call yesterday from his office that he wants to see me. I asked if it was ovary, but his secretary says they found a spot on my liver.

I told her I was freaking out a little, and she said, "don't freak out." You know how you hang on every word at times like this? I keep calming myself down with it, thinking she knows something I don't. Yet, she probably was just saying what I would say to somebody - it'll be okay, even if you have mets.

I go in tomorrow at 10:45.

I know that even cancer patients have benign spots on their liver and I know about hemangiomas and cysts.

But, would a doctor call me in to talk about a spot if it wasn't mets? Would my CT be clean five months ago and now show up with a spot if it was benign?

I suppose he could be calling me in to tell me he wants to do more tests but he could have done that over the phone. But, maybe he thinks said tests require explaining.

I guess I want to know what other patients have experienced with their mets diagnosis. My anxiety level is pretty low most of the time but it's spiking right this second. As I said in my recent KevinMD article, we have to live with this awful uncertainty. It's a new lifestyle almost, these ups and downs.

My symptoms are bloating, feeling full quickly, not much appetite (although I do eat) and oddly, weight gain, all in my belly. I have pain on a 4-5 level on my LEFT side, and have for months.

If you've been through anything like this, I'd appreciate your insight.
__________________
http://butdoctorihatepink.com

08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
CoolBreeze is offline   Reply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:53 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter