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11-09-2007, 02:28 PM
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#1
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Senior Member
Join Date: Nov 2006
Location: South Carolina
Posts: 183
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Where is Joy and Cristy?
Hi Everyone,
I have not been on this site for awhile, I started my reconstruction in August, then 4 days after my surgery, my Mother passed away. Being back to work full time and everything going on, I have only stopped by to read a few post. I have looked for post from Joy and Cristy and have not seen any. Has anyone heard from them.
Vannessa, I read your post about your scans, Congradulations!!! That is always wonderful news!!
__________________
Anita
er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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11-09-2007, 03:10 PM
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#2
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Anita,
We all worry when members do not post over a period of time, but there are several ways of checking activity in order to ease your anxiety:
1. Look up the member in our member's list, it will show when the person last visited the website.
or
2. Click on the "Search" button on top of the page. Then click on "advanced search" type in the member's name and hit enter. All posts made by that member will be listed.
I did this and noticed that Joy had visited the site yesterday, but could not find a member named Cristy. Check your spelling as we have several members named Christine on this site.
Regards
Joe
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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11-09-2007, 11:59 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Am I Christy?
If I am, then I am here! Or at least I am somewhere...I haven't posted much lately and have only been able to skim the postings - it's so hard to keep up with everyone - but it's been great seeing so many good reports, and of course I think of all you constantly. The good news is I'm MIA because I'm just super busy - with work and various travels. I think I have like 10 working days left this year!
I don't know what I was thinking...but I'm going on vacation to New Zealand for 2 weeks starting Nov 20... I have labs/doctor/infusion in the morning, then back to work, then get on the plane that evening. 2 weeks later, get off the plane and go directly to SF for...the next infusion!
Then the following week to San Antonio...then the following week to Chicago for the holidays! Then the spa trip (will I ever be ready for that!)
Seriously, the trial coordinator at UCSF really ROCKS. I'm lucky to have doctors and trial coordinators who "get" that the whole reason I'm doing treatment is so I can have a life...so they just need to work around my travel schedule LOL!
I put her through the paces in anticipation of my holiday travels - in between my trip to White Christmas in Chicago and the Spa trip the first week in January I had only one day in town! So on Jan 2, I have full labs drawn...then PET/CT...then back to see the doctor...then infusion...then (thank God!) go to the spa. I have to remember to get a note for the TSA since I will be radioactive when I get to the airport...
After that I'm afraid I'm grounded. My Mastercard will have turned to dust and my boss will chain me to my desk. So I promise to check in more faithfully here on my lifeline!
Much love to everyone...
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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11-10-2007, 07:41 AM
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#4
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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Chisty I'm glad that you are busy with work, travel ..and treament too mean that you take care your body lol ..I wish you a nice trip to New Zealand ...have fun ...fun ..and comeback safety for Christmas in Chicago and Dont worry your mastercard is going to be OK and eat a lot of kiwit ....
__________________
Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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11-10-2007, 11:31 AM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Chrisy - my better half comes home from New Zealand on Nov 19th! Two ships who pass in the night.... I will tell him to make his bed and leave it nice and tidy for you. LOL
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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11-11-2007, 06:48 AM
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#6
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Senior Member
Join Date: Nov 2006
Location: South Carolina
Posts: 183
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Yes, you are Christy
So sorry I mispelled your name!!
Glad to hear about all of your travels, what a wonderful time you must be having!!
Love the new picture with the long hair!
Happy Hollidays!!
Anita
__________________
Anita
er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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11-11-2007, 07:16 AM
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#7
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Chrisy
Are you Chrisy or Chris Y?
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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11-11-2007, 04:42 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Oh Pink! You always ask the HARDEST questions!!!
To my Her2support family, I'm chrisy. Before I was married, I was Chris Y. Now I"m Chris T (but you can see the problems inherent in creating a screenname around that!). In real life, I answer to Aunt Chris, Belov-ed, or just plain Chris! Come to think of it, I'll answer to just about anything! In retrospect, I also like MADAME X but now ABB has claimed that one!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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11-13-2007, 03:58 PM
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#9
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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I'm here too!
It is so nice when people are thinking of you-thank you so much. I, like Chrisy, have been trying to keep up with posts and everyone's events. But have not posted much because of LIFE. It does not mean, though, that I'm not sharing your sorrows, frustrations or joys.
I have had my friend of 29 years staying with me a lot this year and it has been really great. We have kept very 'busy' with catching up on movies, reading our "Rolling Stone" magazines, going out, chatting and cheering each other up. She is off to Park City, Utah to work the Sundance Film Festival as film festivals are what she does. It will be lonely without her here.
My kids are quite emotionally challenged and challenging these days. My 11 year old seems to be on the verge of womanhood and my 8 year old seems to be regressing to toddler-hood. We could fill a tub with the tears. So I have been trying to really focus on them when we are home together.
My ex got his 2nd new puppy and that has been fun and busy.
I'm still working at my sister's bakery and that is a lot of fun, but it is work. I made our scone mixes ALL DAY today. We make everything from scratch but we mix the dry ingredients together and put them in the fridge for later when the wet are added and baked. I blew my nose today after work and, I'm not kidding, there was ginger, cloves, cinnamon, nutmeg and flour in there!
We also have a lot of school commitments this time of year and we are preparing for our annual Thanksgiving trek to Pagosa Springs to be with my parents-can't wait!!!!
Health wise, I feel great and I'm still on tykerb/xeloda. As of 2 weeks ago the CMP was all normal and that has been a good indicator of liver function, which is always our main concern. I'll have it checked again next week and continue to hope for NORMAL. I think I'm scheduled this month for a CT and of course I'm praying for continued regression (for all of us).
I've done really well on this combo and still get nervous about when that ride will end. It is so dumb, but I just want to keep on treatments that don't cause my hair to fall out. I'm sick of just getting it back and loving it and having to lose it (3 times so far). I know it is petty.
I still feel like a loser a lot of the time, especially since I want to date again (the on-line thing stinks and I've had weird experience after weird experience). And I just can't help but feel that no one would be interested in me with cancer and 2 kids. Just when I feel like I look good and go out with friends it is always the others that seem to attract people. And it is true that the great ones are taken. And of course the limited places to meet people is a problem.
So that is the update.
I think of everyone everyday and wish I could fix all of us and answer questions, but there are such smarte people here who do that so well. Thank you to all of you!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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11-14-2007, 09:30 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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Mamacze (Kim in CT)
I know how you feel...I hadn't "seen" Kim in a while and found out that she's been taking care of her mother-in-law , who is finishing chemo for her breast cancer. Kim thinks things will lighten up somewhat in December and be able to visit the board more often.
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