***What was your date of dx, stage, treatment and current status...???***

[tricia keegan]

DX 07/04/05
Lumpectomy 07/24/05
3/9 nodes
A/c x4
Taxol/herceptin x12 weekly
35 rads completed 04/26/06
Herceptin 3 wkly for a yr
Idc Highly triple positive

[Sheila]

Diagnosed in Feb. 2002 at age 49 (50th birthday gift!)
Found on routine mammo via calcifications, had been getting mammos every 6 mos due to family history of BC.
STAGE 1
Left mastectomy 2/2002, 0.7cm IDC, Her2 +++ by IHC, ER-, PR-, 18 nodes neg.
No chemo recommended due to neg nodes and small tumor size.
Reconstruction with tissue expander / silicone implant 9/2003
Enlarged lymph nodes in collarbone area found during reconstruction, biopsied & found to be Her2+++ Breast Cancer. Graduated to.................
STAGE IV, 9/2003 with mets to lymph nodes.
Herceptin started every 3 weeks. Stable until 3/2006 when lymph nodes in collarbone reappeared (gift for my 54th birthday)
Began Xeloda 4/2006 with Herceptin, lymph nodes shrank by 75% after 1 cycle.
Continue on Herceptin and Xeloda.
Just passed my 4 year mark...looking to the big 5 year one!!!!!

[Sue2001]

Excellent idea!

I found a lump while in the shower. Ultrasound showed 3 tumors.
Dx 1-11-01 at age 40.
Stage 3
ER-, PR-
Her2+++
4/13+ lymph nodes
Mastectomy on one side 2-6-01, had to take the muscle to get clear margins

Took part in phase 3 clinical trial for Herceptin:
Dose dense AC x4
Taxol weekly x12
Herceptin weekly for1 year
34 rounds of radiation

Still have troubles with Lymphedema, Neuropathy and Muscle Spasms.

NED for 5 years now, Sue

[Maggie]

DX 7/04
Lumpectomy 7/9/04
1.2 cn
Stage 1
Infiltrating Medullary Carsinoma
8 nodes negative
ER/PR neg HER/2 3+ (strong positive)
A/C X 4
33 rads ending 12/23/04
Herceptin approved for early stage in November, started 11/05 every 3 weeks for a year.

Maggie

[Olivia]

Found lump as a fluke - just adjusting bra.
Age 34 - Dx 12/12/04
1/12/05 Bilateral mastectomy with latisimus dorsi reconstruction and sentinel node biopsy
Stage 1 (2 lesions right breast .9 cm and .6 cm)
Grade III
Node negative
ER/PR-
HER2+
4 rounds of dose dense Adriamycin and cytoxin
4 rounds taxol
No rads
Started 1 year of Herceptin on 5/05(will be done 5/06) yikes!

Olivia

[panicked911]

semi regular mamos since age 35. I was diagsied at age 43.
7/22/05 - mamo tech.thought something wrong with left breast then said Ok. I insisted to Ob/GYN wanted sonogram
9/2/ 05 ( my deceased mother's birthday) had sonogram which showed small regular shaped tumor on right side. All docs said nothing to worry about the edges are smooth. Went to see surgeon anyway -she also not alarmed did sono in her office.
9/13/05 - biopsy at major medical center
9/14/05 (daughter's 10th birthday) diagnoised with er+ tumor right side.
9/18/05 see surgeon memorial Sloan kettering in NYC - not one small tumor but 3 ( two peas and a pencil point ) first surgeon biopsied "wrong" tumor.
10/5/05 - partial lumpectomy - three nodes removed.
three tumors in total 1.2, 1.2 .01 - one ever showed up on mamograms - her2+, er ( 80%) pr (70%)
started on tamoxifen 10/19/05
Nov. started weekly herceptain
December started monthly Lupron shots and switched to arimidex
1/15/06 - reexcission- radiooncologist did not like the pathology report - margin increased all around from .2mm to .1 cm. patholgy report on reecision came up completely negative.
2/12 started rads.
3/27 completed rads
april 18, last weekly herceptain - now going one every three weeks.
six month MRI scheduled for May 21. Keeping my fingers crossed.

[Jackie]

Stage II, DX 4-05
EP +, HER2 +++,
1 node, 1.6mm
Simple Mast/Reconstruction Left breast 6/05
4x AC/4xTaxotere/Herceptin--finished chemo 11/05
Herceptin to cont. for yr.--stopped due to drop in Muga--hopefully to restart soon
47yrs. old

[julie a]

Diagnosed June 2004
2.7cm lump er/pr - HER2 +++ grade 3 no lymph node involvement
lumpectomy,6 months chemo and 3 months radiation
Rediagnosed January 2006
2 cm lump with mastectomy and tissue expander HER2 FISH ++?
March ct scan shows lung lesions - largest 8 mm
Will have last chemo of Adriamycin this week and start HERCEPTIN shortly

Good luck and best wishes to all!!
Love the site
Julie

[MJo]

Dx 10/28/05 Lumpendectomy 11/04/05
Stage 1 (.55 cm)
Node negative (Sentinel node)
ER+/PR+
HER2++
Onctoype score of 31 (21% chance of recurrence in 10 years)

Started chemo week before Christmas. Finished three dose dense A/Cs. Skipped 4th due to illness (anemia, respiratory infection and asthma). Started dose dense Taxol and Herceptin in March. Have finished three Taxols and five Herceptins. Having an easier tiime with Taxol, although I had to wait three weeks for my third due to low blood count.
Will have six weeks of Rads, and one year of Herceptin. Doctor advises five years of Arimidex

All the very best....MJo

[MJo]

Dx 10/28/05 Lumpendectomy 11/04/05
Stage 1 (.55 cm)
Node negative (Sentinel node)
ER+/PR+
HER2++
Onctoype score of 31 (21% chance of recurrence in 10 years)

Started chemo week before Christmas. Finished three dose dense A/Cs. Skipped 4th due to illness (anemia, respiratory infection and asthma). Started dose dense Taxol and Herceptin in March. Have finished three Taxols and five Herceptins. Having an easier tiime with Taxol, although I had to wait three weeks for my third due to low blood count.
Will have six weeks of Rads, and one year of Herceptin. Doctor advises five years of Arimidex

All the very best....MJo

[Christine MH-UK]

Diagnosis 10/2003, age 38. ER-/PR-, very aggressive and pregnancy-affected breast cancer, which worsens matters.
Chemo (6*FEC75) before surgery, so no accurate staging. Oncologist's guess was 2B. Mastectomy. At surgery, 8/19 nodes positive, so 4 rounds of taxotere given after surgery. 15 rads (including area around the collar bone).
One year herceptin started late (10/2005).
Currently NED.

[DeborahNC]

Diagnosed 9/04
Stage 0
DCIS right breast, comedo type ER+
Lumpectomy
33 rads
Refused Tamoxifen

Diagnosed 9/05
Stage 1
Bilateral mastectomy (chose prophy for left breast although it was healthy)
SNL-negative in 3 nodes taken
IDC .7cm, DCIS (comedo) 3 cm
Her+++ Er+(weakly)/PR-
Completed 9 of 12 Taxol/Herceptin infusions
Will stay on Herceptin every 3 weeks through October
Will begin AI after Herceptin treatment finished
PET and brain MRI clear 12/05

[Audrey]

Dx July 2001, age 36
15 cm tumor! (did NOT show up on mammogram?!) presented as bloody nipple discharge) 11 + lymph nodes
ER/PR-, Her2+
Stage III
Treated with mastectomy, A/C, weekly Taxol, followed by one year of Herceptin
Radiation
Prophylactic mastectomy on remaining breast
Reconstruction
Last date of herceptin--March 2003
NED!!! Celebrating 5 years of survival this summer
Made it to 40 and counting!

[Petesmom]

Diagnosed 1998 at 45 years old with IDC 8mm tumor right breast,ER+ HER2- 11 nodes dissected none positive. Had lumpectomy with rads. No chemo, 5 years of Toremifene. No hx of bc in my family.

Diagnosed March 2005 with IDC with DCIS right breast 7mm, ER+, HER+++ (IHC test) no nodal involvement. Had mastectomy, was put on Tamoxifen, no chemo. Opted for ooph in October 2005 to be put into menopause and to begin Arimidex.
Annual mammogram in March on remaining breast showed NED.

Petesmom

[Valerie]

Hi All,
Diagonosed in Feb 2004 at age 49 after routine mammogram showed calcifications. No family history.
tumor .4 cm
nodes negative
er + pr indeterminate
her2neu+++
Lumpectomy April 1, 2004
4 rounds Adriamycin and Cytoxan because Oncotype Dx test showed a high probablility of recurrence.
Radiation
Started one year of herceptin in Nov. of 2005. Yes, that is late but it seems like a good idea.
I also had ovaries out due to cysts on both of them in 2004.
Femara.
So far the femara and herceptin have been ok. Now I just need to lose the weight I gained while on the chemo. Eat smarter and exercise more.

[Les]

Hi, Lump found during mamogram November 2003 Age 44, 1.3 cm I had a lumpectomy no nodes stage 1 I had 4 a/c and 37 rads.and now tamoxifen . er/pr+ Her2+++ no herceptin to far out from chemo my onc. didn't think I should take it.Love and peace to you all.
thanks Leslie

[Jean]

Was dx. 4/15/05 (age 54)
3MM tumor
node neg. er postive, pr negative
her2 +++ postive by FISH
grade 1
Lumpectomy followed with 32 treatments of radiation
Recently had Oncotype DX test performed came back off the charts. 4/19/06
Went for PET scans , CT scans and bone scans on 4/26/06
After scans results come back I will begin chemo/and herceptin.
I am one year out from dx. and I have finally found an answer.
All the dr. went by the tumor size and the node negative status and
did NOT think the Her2 postive required chemo or herceptin.
THEY ARE WRONG....went to L.A. and saw Dr. Slamon.....

Jean

[Jean]

I am on Arimidex since 5/05....

Jean

[sadie]

10-03-05 Diagnosed after clustered microcalcifications found on routine mammogram at age 51 post menopausal.
No lump to feel; although surgeon said he could feel firmness in the area.
10-12-05 Biopsy 6mm / HER2+++ (IHC test) / spotty margin.
10-19-05 Lumpectomy 4mm more for total of 1cm / margin clear / sentinol node negative/ Her2++(IHC test) / ER+ PR weakly+ / Grade 3 / Stage 1 IDC
November 2005 began Adriamyacin & Cytoxin Every 3 wks x4
2/10/06 began Taxol w/Herceptin every wk x12
Will continue with Herceptin every 3 wks until Feb 2007
7/7/06 Had last of 30 rads
7/11/06 Beginning to take Arimidex for 5 yrs.
4/25/06 Mammogram of affected breast; couple of benign calcifications;negative for cancer.
Sept 06 Onc will order full mammogram & MRI of rt breast due to high density.
Prognosis:Onc would be "shocked if there was a recurrence. Should live a long & happy life." I'm keeping my fingers crossed & praying every day.

[lindaw]

Diagnosed October 2002

Large tumour(6-8cm) right breast.3-5 nodes. Pre op chemo - doxorubicin/doxetaxol(6 rounds)
Feb 2003 Mastectomy followed by 6 weeks rad.
May 2003 Hera trial - 4 months into it skin mets- tiny.Off trial and receive Herceptin anyway and taxol.
4 months taxol - skin recurrence.On to navelbine - can't remember how long - skin recurrence.
Xeloda - went well for a long time and then stopped it just before op for other side Feb 2004 2cm tumour ( new primary)and 5 nodes.
Can't remember - shortly after skin mets and carboplatin - 4 months - no response.
2005 Tried Xeloda again - but no response this time.
Late 2005 - Doxil - 4 rounds - just stable.
All of these chemos with herceptin - now having a break after several difficuklties with port ops. Will have radiation ( 3 weeks) soon just to try something different and have a break.

Lindaw