Good and Bad News

michka · 06-09-2017, 09:42 AM

Thanks to all for your kind answers.

Lani, thanks once more for the precious information. I did not know about the problem between TDM1 and radiation.
On Monday I am going to have a "lumbar puncture" . The imaging is not clear and they want to check if there are leptomeningeal metastases. They have been wondering since September . I thought that if it was the case it would have been clear by now. I had 4 MRIs since september because of my eye and several radiologists looked at the MRIs. They can't tell. There is a strange small zone that did not grow.
I know I have very few options and many chemos are not available in France for treating CNS tumors. I will discuss the Dana Farber article with my onc.
(back in 2006 I flew to Dana Farber because a stupid onc in France said I did not need Herceptin right away. As I had found this wonderful forum I knew Herceptin existed. I met Dr H Burstein who said "you need it!").

I believe immunotherapy will be the solution one day, but too late for me. I still can gain a few months.
Love to all.
Michka