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Frustrated
I am so angry about this damn disease I could just spit tacks. It's been 1.5 years of pain/fear/being positive/pretending it's nothing (with two young kids at home).
Today, I just want to be angry. Even my very loving and supportive husband just does not "get" that being in menopause sucks, taking hormones on top of that sucks even more. I could just throw the meds out the window and feel good again…. but it's not possible or I'd be basically holding a gun to my own head (as my oncologist reminds me).
I really appreciate all you women on here. I know that many of you have such unbelievably difficult struggles with this disease and I was lucky to find mine early. I'm just mad today. Just mad. And, I couldn't think of anyone else to talk to who would get it.
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Kathryn Ellman
8/2013 Diagnosed age 42 with boys aged 2.5 and 6, Stage 11b, 1 cm her2+++, 30% ER positive, 5% PR positive, Rt Breast. Also DCIS in second spot of rt breast, high grade.
9/2013 Bilateral mastectomy, 3 nodes positive
10/13 Started AC/TH, Perjeta and Herceptin
1/14 Finished Chemo
3/14 Radiation, 5 weeks
4/14 Started Tamoxifen
6/14 Discontinued Tamoxifen due to extreme joint pain, exhaustion and depression
6/14 Started Exemestane and Zolodex shots to suppress ovaries
11/14 Finished Herceptin
11/14 Discontinued Exemestane due to similar side effects as Tamoxifen.
1/15 Reconstruction
3/15 CT Scan (routine) shows possible liver mets.
3/15 PET/CT scan shows no mets - huge sigh of relief
4/15 Began Letrozole. Knee and hip joint discomfort but minimal. Otherwise, knocking on wood - so far, so good!
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