Wednesday night prayers coming from me too

[Joy]

It is funny how quickly we can gain a habit. At least this is a healthy one. Every wednesday, once i realize it is wednesday-you know how that is-i hope, I kick it in for all of us.

I have been missing everyone and thinking about so many of you and following your updates.

I would like to share mine as I am very scared and sad. I have been on Tykerb and Herceptin for 6 weeks ish. Both of which I have been on before and had progression, but never had combined the two.

In the meantime I have not been feeling well. My whole torso feels tight and uncomfortable and sharp pains plague it frequently. I have rationalized it to be so many other things, but today's vist to the onc confirmed, at least by physical exam, what i was fearing. My liver is very swollen. Digestion is weird (full too fast, nothing sets right). We don't know 100% if it is irritated or mets freaking out or what. Markers had come down and then went up a little and enzymes did the same. They have all been worse, but it is the wrong direction. Bilirubin is good and A/G is a smidge low.

So, this is yet another treatment that has not worked. Epirubicin/Cytoxan worked, but we are hesitaant to go there again so quickly. I think that I am no longer her2 pos and that is why DM-1 failed and herc/tyk maybe failing. I am scared, scared, scared. Scared that no treatment is going to work any more, scared that I will never feel well again, scared that just when everything else in my life is exactly where I have always wanted it, that i will be taken.

Any thoughts or success stories after liver swelling would be SO appreciated. Tips or tricks for taking care of this are also very appreciated. I eat a lot of organic produce and grains-a little ice cream now and again-I'm only human. I have been supplementing with:

Milk Thistle
Fish/Krill Oil
Reishi
D
cal/mag
probiotics
lecithan
B's
just adding IP-6 again now
and adding Shitake/Maitake too

would really like to add Vodka today, but probably not a good idea

So Eric, Caryn, Sheila, Gemma, Irene, Marie, Ed and everyone who needs parayers or not-I am sending them with tremendous love and admiration.