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Old 10-03-2012, 08:04 PM   #1
Emy
Senior Member
 
Join Date: Mar 2012
Location: New York, new york
Posts: 73
How long can herceptin/tykerb work?
Been on herceptin/ 1500mg daily tykerb since may...what experience does everyone have with the length of time before it stops working?
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Eileen's history her2+, er+,pr-, Pk13 mutation
Feb 2017. Herceptin and perjeta ..still ned
Oct 2015 dendritic cell vaccine university of Pennsylvania..6 weekly injections...boosters every 3 months
July 2015 stopped weekly taxol (2.5 years of weekly taxol) still on herceptin perjeta every 3 weeks..still ned
Jun 2014 liver ablation of 1 liver tumor..now ned
Jun 28, 2013 ca15-3 24, cea 3.8... Pet scan showed 2 liver tumors with intensity of 2.7 and 2.5 (11/13 intensity was 8.0)
Jan 2013 herceptin, perjeta every 3weeks, taxol weekly
Jan 2013 MRI showed 3 liver tumors doubled in size ca-15 is 55 end of month 71, cea 7
Dec 2012. Pet scan showed single liver nodule, having MRI liver on dec18th...MRI liver 3tumors... on herceptin, tykerb , fulvestrant ca-15-3 is 42
Sept 2012 ca-15 went from 85 to 35, pet scan showed decrease
May 2012 herceptin every 3 weeks, 1500 tykerb daily (6pills) and fulvestrant every 3 wks
May 2012 herceptin stopped working ca-15 is 85
Sept 2011 started herceptin every 3 wks and femara daily..mets to liver. Bone and lymph nodes
2011 liver mets...all samples from 2001 and 2010 reviewed...her2 positive, fish 5.4. Er positive, prog neg. Stage 4 breast ca...never was lung cancer
2010 16 weeks of chemotherapy for lung cancer (incorrect). Carboplatin and vinalbine...was actually breast ca mets
2010 misdiagnosed with lung cancer ..2cm tumor removed..lower right lobe removed
2001-2006 tamoxifen
2001. Ductal ca. Rt mastectomy
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Old 10-14-2012, 12:23 AM
Kassy
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Old 10-14-2012, 12:31 AM   #2
Kassy
Junior Member
 
Join Date: Oct 2012
Posts: 1
Re: How long can herceptin/tykerb work?
Hi,

I started Herceptin & 5 pills (1250mg) Tykerb in April 2011. For the first month I was on and off Tykerb due to severe hive. I restarted Tykerb from 2 pills in May, and then increased the dose little by little up to 5 pills until Aug. 2011. During those months my body could adjust with Tykerb without developing the hive. I've continued H&T, but have added Taxol since May 2012 due to mets in lungs, and so far this comb is effective.

Kassy's BC history
May 2010 Dx: 2.4 cm ER -/ PR - HER2 3+ Stage 3
Jun 2010 Adjuvant chemo: TCH
Sep 2010 Mastectomy, 13/21 lymph nodes involved
Oct 2010 Herceptin + Navelbine
Mar 2011 Lymph nodes biopsy surgery 3/3 cancerous
Apr 2011 Herceptin+ Tykerb
Apr 2012 mets in mediastinal lymph nodes; now stage 4 ;(
May 2012 added Taxol to Herceptin &Tykerb
Jun 2012 CT showed decrease in the size of mediastinal and right hilar lymph adenopathy
Aug 2012 CT showed no significant mediastinal or hilar adenopathy!
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Old 10-14-2012, 06:50 AM   #3
karen z
Senior Member
 
Join Date: Apr 2008
Posts: 1,477
Re: How long can herceptin/tykerb work?
Response (and resistance) to Herceptin and other therapies varies from person to person. It is one of the reason why, as a group, we are lucky to have several alternative therapies to try.
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Old 10-14-2012, 08:53 PM   #4
Emy
Senior Member
 
Join Date: Mar 2012
Location: New York, new york
Posts: 73
Re: How long can herceptin/tykerb work?
So there is no average time to be on this combination before it stops working?
__________________
Eileen's history her2+, er+,pr-, Pk13 mutation
Feb 2017. Herceptin and perjeta ..still ned
Oct 2015 dendritic cell vaccine university of Pennsylvania..6 weekly injections...boosters every 3 months
July 2015 stopped weekly taxol (2.5 years of weekly taxol) still on herceptin perjeta every 3 weeks..still ned
Jun 2014 liver ablation of 1 liver tumor..now ned
Jun 28, 2013 ca15-3 24, cea 3.8... Pet scan showed 2 liver tumors with intensity of 2.7 and 2.5 (11/13 intensity was 8.0)
Jan 2013 herceptin, perjeta every 3weeks, taxol weekly
Jan 2013 MRI showed 3 liver tumors doubled in size ca-15 is 55 end of month 71, cea 7
Dec 2012. Pet scan showed single liver nodule, having MRI liver on dec18th...MRI liver 3tumors... on herceptin, tykerb , fulvestrant ca-15-3 is 42
Sept 2012 ca-15 went from 85 to 35, pet scan showed decrease
May 2012 herceptin every 3 weeks, 1500 tykerb daily (6pills) and fulvestrant every 3 wks
May 2012 herceptin stopped working ca-15 is 85
Sept 2011 started herceptin every 3 wks and femara daily..mets to liver. Bone and lymph nodes
2011 liver mets...all samples from 2001 and 2010 reviewed...her2 positive, fish 5.4. Er positive, prog neg. Stage 4 breast ca...never was lung cancer
2010 16 weeks of chemotherapy for lung cancer (incorrect). Carboplatin and vinalbine...was actually breast ca mets
2010 misdiagnosed with lung cancer ..2cm tumor removed..lower right lobe removed
2001-2006 tamoxifen
2001. Ductal ca. Rt mastectomy
Emy is offline   Reply With Quote
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