I had my first treatment with Enhertu on Friday. So far the side effects are minimal - I have a stomach ache and the usual fatigue. Of course, both could still be a result of the second Y90 radiation treatment I had at the beginning of the month. I will go back to the onc office this Friday for bloodwork and possible iv fluids. I am going on vacation in a couple weeks and the oncologist wants to make sure I am in the best possible shape to enjoy the trip. Typically, bloodwork isnt done the week after treatment with Enhertu. And there aren't Nuelasta shots with this either - so definitely not traditional chemo.
Anyone else on Enhertu? I'd love to hear your thoughts/experiences.
Hi Donna
I'll be starting on Enhertu soon. Unfortunately there are new lesions in my liver, after 2+ years NED following a liver resection. Have been swinging between hope and despair for a couple weeks. But now that the appointments are being fixed I can sense relief as well. Enhertu is not on the market yet in Europe, so I'm enrolling in the DESTINY 12 trial, which compares patients with and without brain mets. Everyone gets Enhertu and we all get a full screening before.
How can I find the enhertu facebook group? I'm also interested to here people's responses to the treatment.
smim
I dont know how to access the group on facebook. I have never been a facebook user. I get treatment #3 next Friday. So far, the worst side effects have fatigue and constipation. And so far, I still have my hair.
I am not on any social media with the exception of this group. I do not use my real name. This FB page is an excellent site with a ton of information and support.
Best wishes,
jackie
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
@Donna: Nice to hear you've still got your hair. I was told about 1/3 lose it? but also that it sometimes comes back during treatment, and no idea if a cold cap would work.
I'll be starting end of the month. After an ungodly number of measurement exercises because it's a trial.
I've been on FB for a while now, but I don't post my cancer stories there. Totally anonymous on a forum like this is one thing; but having acquaintances and colleagues in on my most vulnerable issues ... i'm still not sure i'm ready for that.
But I am on a forum for metastatic breast cancer on facebook that's also "private" like the enhertu one. I'll be the only Enhertu user on that group.
The good thing about private FB groups is that the people in the group see only what you post in the group and your public profile- so there's a level of anonymity still
It took some getting used to, that I was "posting about cancer issues on facebook" - but it's really not the same as the usual facebook experience.
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