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03-13-2008, 01:47 PM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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~Mighty Oaks Petscan Saturday~Prayer Requests
This Saturday Ed will be going for another petscan to check his progress with this new combo of A/C he has been on for 4 months. His tumor markers keep declining steadily towards normal and just a reminder that he is a very tumor marker sensitive person. Tomorrow will mark his 7th treatment of chemo w/5 left if he can tolerate it and boy is he getting tired (almost 18 mths of straight treatment).
This is a scary time for us because last time he was almost there before and the cancer grabbed the upper hand. I am very scared about this part of the journey. Hearing good news will be the other half of the miracle we been searching and begging for. I am afraid that with having Inflammatory BC and all this treatment that the cancer will remain with that upper hand!
I am also concerned with the fact that Ed failed on Herceptin AND Tykerb, how will we manage his Inflammatory BC after?? Guess I am just ranting, neither here nor there. Just scared is all!
And without sounding negative just facing our realities, he may never get better. As much as this hurts to think and say it is reality. He is having a real tough time getting well.
Wish us luck friends because we are not giving up. We are still demanding our miracle. And we are here to say "Watch out cancer because as PinkGirl said....The Mighty Oak is yesterday's nut that stood its ground!!"
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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03-13-2008, 01:53 PM
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#2
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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I will be praying for the Mighty Oak.
Amelia
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03-13-2008, 01:55 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hugs to you both
Hi Marie and Ed,
You betcha I will be praying. I said a prayer before I typed this response and will continue to ask the Lord for Ed's healing to continue.
Of course you aren't being negative Marie. Being a realist, as you say, is not being negative. "Negative" no way describes our Marie. You just are pouring out your innermost feelings to us and I for one am happy you did. You need to be honest with yourself and your feelings also.
I ask our Lord for Ed's Petscan to be positive. No progession - no cancer. I know Ed must be so tired. I ask our Lord to CONTINUE to give him the strength he needs to continue with treatment. God has been faithful thus far and I'm counting on it to continue. And for you Marie, I ask the Lord to hold you close and give you His peace as you continue to be the wonderful caregiver, prayer warrior for us here and the loving friend you are to all.
Hugs to you both....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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03-13-2008, 02:51 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Marie I'll be thinking and praying for you both, and the best results..warm wishes and lots of positive vibes are winging there way to you right now.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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03-13-2008, 03:28 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Still standing on that miracle, Marie! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-13-2008, 03:49 PM
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#6
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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I'll be praying for you, Marie, and The Mighty Oak. Love, Bill
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03-13-2008, 05:21 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Saying a pray for Ed. Praying for healing and strength to carry him through. Prayers for you too Marie. Make sure that you are taking care of yourself, also.
HUgs,
Lexi
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03-13-2008, 05:55 PM
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#8
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Senior Member
Join Date: Dec 2005
Posts: 274
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Dear Marie,
Please know that you can count on my prayers that all will be good with Ed's scan. You are a very strong couple and I pray that God gives you even more strength to get past this.
With Love,
Liz J.
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03-13-2008, 06:32 PM
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#9
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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Prayers
Marie:
I will definitely pray for your precious husband. I know how very much you want a miracle. With our God, ALL things are possible! Nothing surpasses the power of prayer and you have an entire army of fighters praying. How awesome is that.
Lisa
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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03-13-2008, 06:46 PM
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#10
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Marie,
Of course you are worried! You have been a tower of strength and your dedication and devotion keeps me in awe.
I will be praying for Ed and you that Saturdays petscan brings you
only positive news.
Non rinumciare alla speranza.
Special Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-13-2008, 07:26 PM
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#11
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Senior Member
Join Date: Jan 2008
Posts: 154
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You and your husband have been in my prayers since we first started chatting a bit. I think the world of you and treasure the great advice and help that you have given me. I will be saying an extra prayer tonight for you and your husband, and sending you both big hugs.
God bless you both! 
Doug
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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03-13-2008, 07:33 PM
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#12
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Marie, I'm agreeing in prayer with all of the posters above me. You know how much we care for you and the Mighty Oak. You're both always in my prayers. Hang tough, we are all waiting for your miracle.
big hugs for both of you
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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03-14-2008, 04:23 AM
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#13
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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As always my prayers are with you both.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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03-14-2008, 06:33 AM
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#14
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Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
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BIG prayers and lots of love for Marie and Ed.
Blessings
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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03-14-2008, 07:02 AM
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#15
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Marie,
Sending lots of prayers from Canada. I am praying for clean scans for the Mighty Oak.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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03-14-2008, 07:08 AM
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#16
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Marie & Ed,
Will be praying for great results as well.
Mary
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
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03-14-2008, 08:28 AM
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#17
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Senior Member
Join Date: Sep 2005
Posts: 232
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Praying for Ed and you, too.
Karen
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03-14-2008, 09:12 AM
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#18
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Thanks Pals
Thank you so much for the prayers and well-wishing. Right now we are off to chemo for #7 of those 12. Whoowoo!! And awaaay weeee gooooo!!>>Prayers and Love Right Back At Ya>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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03-14-2008, 12:08 PM
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#19
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I was out walking in our beautiful Wisconsin weather and offered up a prayer for Ed and you. Praying for a perfect scan. Praying, praying, praying and knowing our God knows our hearts and knows what's best.
Hope chemo went well.
Love,
Mary Jo
P.S. Marie, your new avatar looks like Fall leaves to me and kind of has me in a funk - I keep thinking winter is returning soon when I see it. Couldn't we see some beautiful babe in a bikini or something? 
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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03-14-2008, 02:58 PM
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#20
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Senior Member
Join Date: Aug 2007
Location: Newport Beach, CA
Posts: 161
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Keep the faith, Marie and Ed
Together you two will get through this and those of us on this board are rooting for both of you. We understand, and that's the beauty of everyone here on the her2 site. We've got you covered and are here for you.
Vic Z from So. Cal.
__________________
Diagnosed 12/03 at age 53
1.5cm tumor, ER-PR-, Her2 3+(rt side)
Stage 1B, Three negative nodes from Sentinel Node Biopsy
Paget's of the nipple, Infiltrating Ductal Carcinoma and DCIS of the rt breast
Bloom-Richardson score 8/9, P53+ 60-70%, Ki-67+ 30-40%
Skin-sparing mastectomy with immediate lat-flap reconstruction and saline implants, 1/04
Chemo: FAC, five sessions every three weeks Feb.-May 04, then switched to HTC weekly for 12 weeks, June-Aug 04
Zometa every 6 months for osteopenia, started April 09
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