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11-08-2006, 10:30 AM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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the continuing madubois63 story 11-8-06
Hello All - I am at day 5 after the transplant. So far so good! I have minor problems but mostly feel pretty good. My counts are REALLY low. I have been walking around the nurses station, doing hand exercises and just trying to pass the days. I MAY be able to leave the hospital next week, but I'll have to stay in the Kevin Guest House nearby the hospital for a bit. It has a private apartment for transplant patients, and I spend 5 hours a day in the clinic. So far no fevers (really good) and I really have to be careful not to get any infections. I am no longer blood type B+ but as is my donor I am A+ (weird). I don't know if I am allergic to anything (if she is then I will be), and I will need all new immunizations like a baby...You all continue to be in my prayers and I thank you all for the prayers, cards e-mails and telephone calls!!! Love to you all - Maryann
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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11-08-2006, 11:06 AM
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#2
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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God bless you sweet lady.
You are in my prayers. Stay strong.
Hugs,
Karen
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11-08-2006, 11:56 AM
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#3
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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Amen to that!!
Keep up that healing.
Gricel
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11-08-2006, 12:21 PM
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#4
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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MaryAnn -
Thanks for the great update.
It is wonderful that you used a little bit of your precious energy to make contact here. You know there are scores of us here thinking of you in every good way possible.
NO fever! That is an excellent sign. Who cares what blood type we are - just so we HAVE blood and it is healthy.
Please let us know how you are from time to time so we won't worry that you have hit one of those speed bumps and are slowed down for some reason.
You are blessed, young lady!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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11-08-2006, 12:48 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Maryann!
Great news! And most of all I applaud your courage! God bless you, girl!
ma
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MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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11-08-2006, 12:56 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Keep kickin ass woman!!!!!!! Your strength is unbelievable!! - kim
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11-08-2006, 01:05 PM
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#7
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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great news
wonderful news that you are doing so well.
This is really a re-birth for you. Keep up the good work Maryann
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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11-08-2006, 01:39 PM
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#8
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Maryann, thanks for the update. I think about you everyday and can't imagine what its like going through what you are doing through. You are an amazing woman. Like Steph said who cares about blood type as long as its healthy blood. So far so good. Keep up the good work. Sending you a big hug, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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11-08-2006, 02:11 PM
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#9
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Maryann
It's great to have an update from you and delighted
you're doing so well.
All my good wishes to you for a quick recovery.
Tricia
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11-08-2006, 02:24 PM
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#10
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Maryanne,
Wow! You sound like you are doing great! I am really excited for you! I think you WILL be home for Christmas!
Hugs and Prayers,
Lexi
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11-08-2006, 02:39 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Maryanne,
You continue to inspire us. Thank you so much for posting. I have been thinking of you and its good to hear from you after the transplant. I hope you continue to improve and will be home sooner than you thought.
Best wishes,
Babara H.
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11-08-2006, 04:54 PM
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#12
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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MaryAnne,
So glad things are moving in the right direction..I think of you often and wonder how you are doing. So glad to read your post!
What a true inspiration you are
Thinking of you
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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11-08-2006, 08:23 PM
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#13
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Senior Member
Join Date: Nov 2005
Location: Colorado
Posts: 76
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Dear Maryann,
It is so good to hear that things are going well for you.
Stay strong,
Karen
__________________
Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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11-08-2006, 08:31 PM
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#14
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Maryann, so wonderful to read your update!!! And I will keep the prayers coming that you will be home soon, how great is that!
<3 Lolly
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11-08-2006, 08:36 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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So glad things are going well, and I continue to keep you in my prayers. Is there an address you can give us to send something your way? PM to me if you prefer. You are one of our heroes!
________
CLASS ACTION LAWFIRM
Last edited by sassy; 08-22-2011 at 08:58 AM..
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11-08-2006, 08:47 PM
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#16
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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So happy to hear you are doing so well. You are truly a remarkable women!
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11-09-2006, 05:54 AM
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#17
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Maryann-
We all read your posts so eagerly - what great news. That has to feel weird with the blood, but of course the great news is no infections...Keep your spritis up, and know you're in our thoughts and prayers!
Kind regards,
Shell
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11-09-2006, 06:30 AM
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#18
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Thank you for the inspiration and the information. I wish you a great holiday season ahead. It sounds like you've met some wonderful people through this experience. MJO
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11-09-2006, 07:21 AM
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#19
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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MaryAnn,
Thank you for the update. You are an amazing soul. We are all pulling for you and so happy to hear any updates when you have the strength.
Love and peace, Carolyn
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11-09-2006, 10:01 AM
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#20
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Senior Member
Join Date: Sep 2005
Posts: 290
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Great
Great to hear you are doing OK so far Maryann. The transferrance of the donor's allergy profile is almost comical. Let's just hope she wasn't allergic to Godiva chocolate, or potato chips. That would be a real setback in my book...lol
Best Wishes,
Tom
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