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ummmmm....still waiting!
Still waiting for them (lawyers, probably!) to finalize the documents bringing UCSF into the trial. on January 17 they told me it was supposed to be in the next couple of weeks; earlier this week they said "hopefully by the end of the week".
Anyway, when they get the docs signed, then they can enroll me in the trial. I might get to be numero uno!
I must admit, I'm a bit nervous going into my 3rd week with NO treatment at all. They have sent me for the "entry exams" of ECHO, chest xray and (another) Pet/CT which were January 30 and 31. So now another clock is ticking as these tests cannot be more than 2 weeks old! I'm really hoping we can get started next week - which is the date they have been shooting for.
In the meantime, yesterday I had tests in 2 different UCSF locations which gave me the chance to experiment using their shuttle system. Assuming I get in this trial, I'm considering taking public transportation which would get me to SF (near the Pet/CT scan facility) then hop a couple shuttles to get to where the doctor is. With the price of gas, that will actually SAVE me money and although it will likely take a bit more time, it would be sleeping on the train or reading or meditating vs. fighting rush hour traffic. So the day was not a waste, although it definitely would have been more worthwhile if I'd been able to get treated!
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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