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11-25-2006, 03:14 PM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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BIG NEWS - madubois63
It was a great gift to have most of my family here for the holiday. My sister left with my kids this morning. I miss them already! My mom stayed with me, but we are flying out of Buffalo Tuesday afternoon!!!!!!! I am going HOME!!!!! The doctors are very happy, and say I am right on track. I did get a blood transfusion today and will have another tomorrow, but they say this is normal and all is well so far. I'm so happy right now; I'm going to BURST! I will report to my 1st leukemia doctor at Stony Brook on Wednesday and resume care there as an outpatient. I'm going to sleep in my own bed!!!! I am not out of the water yet, but so far so good...I am slow and still shake a little (steroids). My eyesight (also steroids) is much better. I just can't thank you enough for all the support, prayers and love. I truly could not have done this without your support...Love, Maryann
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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11-25-2006, 03:21 PM
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#2
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Oh Wow! Can't think of better news this holiday weekend. I am sooooooo happy for you. I know this couldn't have been an easy journey to say the least. I am so proud of you for your courage and strength. I will continue to pray for your recovery and I hope each day brings better health for you. Safe travel back to home and enjoy your own bed as well as being back with your family. Your dog is going to be so happy to see you again. Take care and can't wait to hear more positive news from you.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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11-25-2006, 03:22 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear MaryannWhat fabulous news. I am so happy for you - you have been through so much and still manged to be supportive of others.
So exciting to be going home.Your lucky kids have such a great Mum.
love
linda
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11-25-2006, 03:28 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Maryann, I am so excited for you. That is just wonderful that you already get to go home. I can hear the excitement through your post.  Such perfect timing to get all that behind you just in time to ENJOY your Holidays at home with family as it should be.
Sending you warm healing thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-25-2006, 03:31 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Colorado
Posts: 76
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Dear Maryann,
What great news!!! Enjoy sleeping in your OWN bed.
Karen
__________________
Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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11-25-2006, 03:36 PM
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#6
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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MaryAnne
This will truly be a special holiday at your house..YOU ARE AMAZING!!!!
Prayers ARE heard!!! You will remain in mine...
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-25-2006, 03:41 PM
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#7
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Senior Member
Join Date: Sep 2005
Posts: 589
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A wonderful Thanksgiving message! I'm very happy for you. Eric
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11-25-2006, 03:43 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Oh, Maryann,
What fabulous news - and what an appropriate way to celebrate Thanksgiving weekend! I know that being home will help body and soul. You are amazing!
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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11-25-2006, 03:56 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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WOW!!!!!!!! This is huge news. I am so happy that you will be home soon. You are really a trail blazer. Thanks again for sharing your story.
Best wishes,
Barbara H.
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11-25-2006, 05:20 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: melbourne, australia
Posts: 267
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Great BIG news. Enjoy.
Christine
__________________
Christine
DX Sept 03 age 40 Stage 2B Grade 3 mastectomy (after 2 prior breast conserving surgeries)
"at least" 2.3 cm 3/12 nodes ER+/PR+ Her2+++
8 FEC. Tamoxifen then Arimidex. Ovaries out.
"late" Herceptin for 2 years (18months after chemo) on HERA trial. finished Herceptin Nov 2007.
Multiple bone mets May 2012 and now liver August 2012.
Abraxne, Herceptin and Zometa.
June 2013 Tykerb, Xeloda and Xgeva
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11-25-2006, 06:45 PM
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#11
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Absolutely fantastic news!
Praise God!
I'm so excited for you and your family!
May this be the 1st of many, many thankful Thanksgivings for you!
God bless,
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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11-25-2006, 07:43 PM
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#12
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Yeah! Keep up the good work. Here's hoping you don't get snowed in on Tuesday. If we had academy awards for Her 2+, you would win this year. Best wishes, Bev
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11-25-2006, 08:00 PM
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#13
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Your story fills my heart with joy.
Hugs,
Karen
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11-25-2006, 10:00 PM
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#14
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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BIG news, indeed!
This news is a ray of sunshine into the steely, snow threatening skies here.
Nothing like your own bed to rest and relax in! And I know you have a good one, as we had that discussion about good beds last year.
Your docs seems SO pleased with the way you have gone down this transplant path. I am sure you will be leaving some new friends and supporters in upstate, but home is where your heart is.
Now we will pray for safe travels home.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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11-25-2006, 10:30 PM
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#15
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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Maryanne
I'm so happy for you! Just in time for the Holidays. Now they seem so preciuos to us. Just think, next Christmas will be happier yet!!
__________________
Michele Ulmer
dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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11-25-2006, 10:42 PM
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#16
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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What wonderful news!!! Home is such a wonderful place to be.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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11-26-2006, 08:59 AM
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#17
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Have a Merry Christmas and a Happy and Prosperous New Year! And many, many more. MJO
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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11-26-2006, 12:20 PM
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#18
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Hooray for going home..How sweet it will be for you !!! So happy for you !!
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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11-26-2006, 12:57 PM
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#19
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Senior Member
Join Date: Jul 2006
Posts: 146
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Recouperation
Dear Maryann,
Am so happy you have had success with your treatment and you will be returning home and hopefully to a normal life with family. Glad you are able to return in time for holidays with your loved ones. I wish you only the best in your struggle with this terrible disease.
hugs,
ginkott1@aol.com |
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11-26-2006, 03:52 PM
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#20
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Senior Member
Join Date: Jan 2006
Location: Victoria, Australia
Posts: 95
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Congratulations Maryann.
This is the best news. I can't imagine how you must be feeling. You have worked so hard, you deserve the best. Enjoy Christmas and just being with your family. Wonderful to hear to good news.
__________________
Take care and good luck
Love Lisa
8/03 Age 39 DX 2.5 cm tumor
Invasive Ductal - Grade 3
Stage 2A
er+ Her2neu
No nodal involvement
Lumpectomy, 4 A/C - Radiation
Tamoxifen
7/04 Mets to liver - Her2+
Stop Tamoxifen
Zoladex monthly
Herceptin/Taxol 6 months
Continue Herceptin
2/06 Active again Taxol/Herceptin/Carbo - 6 months
Still active, Heart Problems - NO Herceptin
10/06 Navelbine
4/07 Liver tumours increasing
4/07 Gemzar/Herceptin
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