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11-20-2006, 10:18 AM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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hello from madubois63 11/20/06
Hello from gloomy <?xml:namespace prefix = st1 ns = "urn:schemas-microsoft-com[img] /><st1:City w:st=[/img]Buffalo</ST1 </st1:City>!! I hope the sun comes out soon. There were flurries today, but it is supposed to get warmer for the rest of the week. I haven't had internet service all weekend, and it was good to get on line and read. You are all in my prayers, and I miss you so much but feel your love everyday and every minute!!!! It is now day 17 after the transplant!! I can't believe it is behind me. It was tough, but it could have been so much worse. I thank God, all our angels and all your prayers for getting me through this. I am being discharged from the hospital TOMORROW!!! I was going to be staying at the Kevin Guest House apartment (cheap - insurance would pay), but there is no room available for me so I will be staying at Hope Lodge (free) in the private suite. I love the Hope Lodge and am familiar and comfortable there, so this is not a disappointment to me. My family is coming in on Thursday so dearest Ursula (Gigsons) has lovingly offered to baby sit me for the 2 nights. I will spend most of the day in the clinic, so I hope to be the least bit of inconvenience to her - especially during the holiday madness. As to my progress, my counts are bouncing back. My eyes are still a little blurry (distance) because of one of the steroids I was getting and my hands shake a bit. I had a bit of a problem with my lung (where the BC used to be). Lying around for a few days didn't help, but I am up and about now so the breathing is getting better. I walked 3/4 mile on the treadmill yesterday and I get to go to the therapy room today (yeah) and do some Pilates exercises. I change my own sheets - just another form of exercise and also do some arm exercises with small hand weights. My arms actually look a little toner. I am hoping after a week or so they will let me go home and continue clinic care at Stony Brook. We hope to get Corporate Angel Flights to take us home on a bigger plane - my mom won't go on the small plane!! I can see a future and it is very, very nice. Thank you all for carrying me this far!!! Happy Thanksgiving and blessings to you all!!!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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11-20-2006, 12:58 PM
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#2
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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It is wonderful to hear that you are continuing to improve! I will continue to keep you in my thoughts and prayers. You are an inspiration to us all. Thanks for keeping us updated. Happy Thanksgiving!
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11-20-2006, 01:24 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Maryann as always it's wonderful to have an update from you and know you
are doing so well.
I hope the recovery continues' well and you're back home as soon as possible.
I still think you're one brave lady!!
Hugs
Tricia
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11-20-2006, 01:25 PM
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#4
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Wow...amazing progress from an amazing woman ! You go girl
Thinking of you
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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11-20-2006, 03:37 PM
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#5
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Senior Member
Join Date: Sep 2005
Posts: 49
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A Thanksgiving Blessing Indeed!
Hi Mary Ann,
What wonderful news to hear from you and to know things are going well. You are quite an incredible lady.
Sending you blessings for all of the blessings you give to those of us on this board who are following your progress.
Have a blessed Thanksgiving and hugs and love to you.
Petesmom
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11-20-2006, 05:13 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Maryanne
Great news! Although I expected no less! Enjoy your holiday OUT of the hospital!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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11-20-2006, 05:56 PM
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#7
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Deceased
Join Date: Oct 2005
Location: Chadds Ford, Pa
Posts: 206
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Hi Mary Ann,
I am so inspired by your courage and fight! You have had such a rough road and you still ooze hope and strength. We all need people like you to help us through our little pity parties and show us the way. Thank you so much! And Happy Thanksgiving to you and your family.
__________________
Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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11-20-2006, 07:33 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Maryanne,
It is such a joy to read your posts, and so glad that things are going well. My prayers are that you will be going home soon to continue your journey to wellness from there. You are an inspiration and a source of hope for all of us.
________
UrChocolateDream
Last edited by sassy; 08-22-2011 at 08:58 AM..
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11-20-2006, 08:24 PM
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#9
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Maryann, it is wonderful to hear from you and upbeat as always. Now, you can look forward to Christmas and being home. Praise God for all his blessings, hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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11-20-2006, 09:51 PM
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#10
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Maryann,
You are truly amazing!!
Hugs and Prayers,
Karen
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11-20-2006, 09:58 PM
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#11
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Happy Turkey Day!
Maryann,
How wonderful to hear that you will be able to spend the holiday out of the hosiptal and with your family. I continue to say special prayers each day
for you as you are always in my thoughts and prayers.
I know your holiday will be as great as you!
Sending Hugs,
Jean
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11-21-2006, 12:14 AM
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#12
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Maryann, I am so happy to hear how well your doing. Talk about a REAL trooper...your unbelieveable girl. You have come such a long ways and I am so happy for you, because I know it wasn't easy.
That is fantastic that you got this behind you just in time to for Thanksgiving & Christmas. You hang in there and know that we all continue to have you in our thoughts and prayers.
Sending you warm healing thoughts!
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-21-2006, 05:25 AM
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#13
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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So Good To Hear From You
Hi MaryAnne
So glad to hear you are doing so well and exercising to boot. Go girl
Have a wonderful Thanksgiving - you certainly have a lot to be thankful for.
Take care
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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11-21-2006, 05:50 AM
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#14
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Maryann,
Thank you for the update - I hope you know what a breath of fresh air you are to all of us when we hear from you about your progress. Continue to feel strong, and enjoy Thanksgiving with your family.
Kind regards,
Shell
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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11-21-2006, 05:59 AM
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#15
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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MaryAnne
You are such an inspiration to all of us....you have fought hard and soon will reap the rewards...so glad you have been discharged to enjoy the Holidays. There are many prayers for you ongoing.....you are so upbeat through all of this...
YOU GIVE US ALL HOPE WITH YOUR DETERMINATION AND COURAGE~
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-21-2006, 09:51 AM
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#16
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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It's so good to hear your good news, Maryann! It is wonderful that you are on the mend and will be able to enjoy the holidays with your family. I can imagine what a blessed Thanksgiving you will have and how grateful you all are to have that ordeal not only behind you, but so sucessful that your quality of life is greatly improved. I hope you will be able to relax and enjoy all the holidays ahead. What an inspiration you are to all of us! Hugs, Tricia
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11-21-2006, 11:53 AM
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#17
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Way to go Maryanne! All I can say is that you are one amazing woman and I so look up to your strength, positive attitude and fortitude. Thank G-d for all those prayers and angels looking after you. You have truly made it through some battle and I hope and pray your recovery continues to be positive. Happy Thanksgiving.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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11-21-2006, 12:11 PM
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#18
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Oh Maryanne, I am over the moon to see this update from you! Many, many healing hugs to you from me. Happy Thanksgiving to you and yours!
Much love,Marcia
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11-21-2006, 04:02 PM
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#19
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Maryanne,
Many, many thanks for updating us again. You a such an inspiration to us and we so appreciate hearing from you. May you have an enjoyable Thanksgiving.
Best wishes,
Barbara H.
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11-21-2006, 06:13 PM
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#20
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Maryanne, I'm so happy to hear your Progress Report!!! As usual, you are focused on the positive and your message is a bright spot for us. Keeping the prayers coming for you and all for a wonderful Thanksgiving.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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