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06-25-2009, 06:44 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Whew! Big scary and emotional day...
1. Saw the doctor today. My ca2729 rose almost 200 pts from last month, from 392 - 570. Not good news. This test seems to be a good indicator in my case. I've been on Gemzar/herceptin/zometa now only since the end of Feb. Markers fell from 590 to 390 & now in 1 month climbed right back. I was praying I'd get a long run on gemzar - for me it has been without any nasty side effects. But only 4 months - NOT FAIR! The plan is stay on gemzar for this coming month, (3 more treatments then another tm test). Then I have a pet/ct on July 21 & see doctor again on July 23 to go over results. Of course he's already talking about switching chemos. He mentioned either abfrazane/herceptin, taxol/carbo/herceptin, ixempra/herceptin or doxil. At least I have some options left. I'm scared and panicky again With this hanging over my head & wondering what the scans will show it will be a tough month. I know I need to enjoy each day and not let the what if's rob me of the NOW but so much easier said than done.
2. As you know if you've read my recent posts I've been deliberating (agonizing) over whether to take a medical leave of absence and apply for disability insurance. I gave myself a deadline of today when I saw the dr. to decide. I brought the paperwork along he needs to complete and I gave it to him. And then I went to work & gave formal notice of my request for a leave effective July 1. YIKES! I did it.... like jumping off a cliff into the unknown. I'm obsessing over the thought that my deciding to do this is an unwitting move to prepare for a rapid downhill slide in health due to the above tm news. Not logical I know, but my mind is going there.
3, I met a woman, Debbie Gardner, about 7 yrs ago at a bc support group meeting. We've been friends ever since (I almost said bosom buddies - pun intended). She and her husband go to FL for the winter & come home in May. It just occured to me I hadn't heard from her & its the end of June. I called & her husband told me she died on May 12. Oh, what a blow. She had multiple involvement in bones, & organs, but had a decent scan in March.... things happened fast I guess.
I'm headed for my 3rd glass of wine (very rare for me!). Thank you dear friends for listening.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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06-25-2009, 07:09 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear Pam -
It all seems strange at this moment, but you have closed one chapter and are opening another. That does not mean that things will "slide," but it is a time of adjustment. Part of that adjustment is for you to redirect your energy to concentrate on your body's efforts to fight and heal.
There is a nice soft mattress at the bottom of that short cliff. Easy landing.
Very sorry about your friend. Bad timing to find out what happened to her. You still have many of us who are still around to bug you!
I'll join you in that glass of wine ...
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-25-2009, 07:43 PM
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#3
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Senior Member
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
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Dear Pam,
I will hold positive thoughts and prayers for your healing and for a good outcome of your scans next month.
I am sorry for the loss of your friend.
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED
12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line
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06-25-2009, 07:50 PM
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#4
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Uuuuuuugh! Pam, I am sorry to hear of the newest of fights but I will not allow you to get too down about it. With the last several months being a full time research job and the DFCI visit with Dr Burstein, no I will not let you get too sad. I seen so much hope and I look at just some of the ideas your doctors has. No, you do still have options Lovey. Let me know if I can help you in any way, please.
As for jumping off the cliff feeling, sometimes jumping off is the best gift you can give yourself. I have faith things will fall into place with your patience and a little time. Keep yourself focused and busy for now as you move forward. We will all be here for you as you adjust to many new things in your life. I am sincerely sorry about the loss of your friend, Debbie. None of my words could even start to help you with this.
Please hang in there and remember to give me a shout if you need anything I can help you with.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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06-25-2009, 08:29 PM
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#5
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Sorry about the loss of your friend. Take this time to concentrate on your own healing now that you don't have to worry about work.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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06-25-2009, 08:37 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Pam,
I was sad to read about your friend Debbie, as you wrote it was a terrible blow. We never get used to the emotion of the sadness when losing a sister.
Please take this time from work and as a healing time.
Do some of the things you could get to when working, like taking nice fun walks, reading some great books,
and relaxing.
Your new treatment will do the job of crushing those pesty cells. The mind helps heal the body, so rest your body and feed your soul.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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06-25-2009, 09:11 PM
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#7
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Pam,
Please think of your decision to stop working as a window opening, so you can concentrate on your treatment and healing yourself.
Sounds like your dr. has many options for you, and I know that one of them will work. Take each day at a time, we will be there for you.
I too offer my condolences on the loss of your friend.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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06-25-2009, 09:20 PM
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#8
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Senior Member
Join Date: May 2006
Posts: 3,142
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Whew! Big scary and emotional day...
I am sorry to hear about your news and your friend. However, there does seem to be several options, so hang in there and keep putting one foot in front of the other.
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06-25-2009, 09:29 PM
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#9
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Pam,
When you are 'free' from work, do remember to stay active - exercise and keep yourself mentally sharp. Work can be a burden during treatment, but it's not without benefit. You might want to make a schedule for yourself at home so you will have a routine to go by.
Sorry about the loss of your friend.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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06-26-2009, 05:06 AM
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#10
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Pam, I'm seeing you as so dog gone brave! I think you're making the move to take really good care of yourself. Wow, it's hard to shift from "working wonder" to self care, isn't it? But I think you're running with courage! I'm so sorry to hear that your friend has earned her wings, Pam. But I'll bet your friendship has been a real blessing to you both.
I'm prayin' that you and the doctor hit the right choice the very 1st time on finding the chemo that will knock the socks off those pesky bc cells.
Peaceful moments to you, Pam. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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06-26-2009, 06:39 AM
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#11
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Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
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Pam,
I'm thinking about you, and praying for you. Poor thing. What a double whammy. You are strong.
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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06-26-2009, 07:47 AM
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#12
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Pam
Thinking of you and hope now you will have time to
devote to the good fight and rest and renew. I am
so sorry about your friend. Wine is good sometime.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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06-26-2009, 09:53 AM
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#13
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Praying hard for you, dear Pam! I am so sorry to hear about your friend. May God give you the courage to fight on and win this battle!
love,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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06-26-2009, 10:13 AM
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#14
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Wow Pam,
that is definitely an emotional day. Any one of those things would be too much for a normal person to handle - good thing you are extraordinary.
As I recall, your long considered decision to go on disability was to give yourself the opportunity to do what YOU need and want to do for your well being. That doesn't sound like signing up for a license to slide. I really admire your decision and the courage it took to make that jump.
Hope by now that you have finished with the wine and moved on to chocolate...
Hang in there my friend.
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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06-26-2009, 11:57 AM
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#15
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Hi Pam,
Somewhere in the world it's time for a drink, I'll join you in a glass as it's 8pm here in Ireland and celebrate your new lady of leisure status 
I think now you've done it, deep inside you're taking the time you know you need whether to rest relax or do what makes you happy. I did the same and never regretted it despite the drop in income. It sounds like you need, and deserve a break so don't feel guilty about allowing yourself one.
I'm very sorry to hear about your friend too, it's sad when we lose touch with someone and sadly find the reason is this damned disease has robbed them of years.
I'll be thinking of you..slainte!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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06-26-2009, 12:29 PM
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#16
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Thank you to each of you for your kind words and encouragement. I'm putting myself through torment on the job decision and the fear of what the cancer is up to. Breathe, breathe, focus on the moment, one day at a time... I'm trying to do this!
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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06-26-2009, 12:51 PM
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#17
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hey Pam! I'm wishing for something really sensationally fun to stop by and pay you a visit soon. You deserve a break, girl! I must admit that in the past year I have lost all confidence in my ability to make decisions....the great decider herself!
You can do this! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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06-26-2009, 01:02 PM
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#18
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Pam after reading your post all I wanted to do was come here to give you a hug and a shoulder to cry on. You need that. A good cry is cleansing (along with a few glasses of wine)
Pam, I'm sorry that this day was so bad. Please know I care and my hugs and heartfelt love are truly "real."
Love and blessings,
Mary Jo
P.S. Tomorrow is a new day....grab a hold of it ..... talk to God and move forward. My prayers go with you.
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"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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06-27-2009, 07:38 AM
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#19
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Senior Member
Join Date: Jul 2006
Posts: 869
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Pam, I am sorry for the loss of your friend. It gives me the same feeling as when we lose someone here. I think your decision to put a hold on work is a good one-take time for yourself. xo Ceesun
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06-27-2009, 11:29 AM
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#20
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Pam, it must sure be a difficult move. I am convinced that if you decided to stop working , it is because it is a good step for you. I am sorry about your friend. It must be difficult thinking about her and then finding out the terrible news.
Stay strong. (I know, easy to say).I will be thinking of you and hoping for good scan results. Love, Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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