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Old 09-17-2012, 05:10 PM   #1
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
New to stage 4, what do I do now?

Hi, this sucks that I'm writing this, but i got the news today that i have one single brain met. I can hardly see, and this is why i went to emergency on the weekend. Anyway, I see the surgeon tomorrow morning. My oncologist isn't in until Thursday, so I would like to ask your advice. What should I expect for treatment? Should I be asking for a specific drug? I'm feeling very lost and I'm reaching out to you guys to help me out a little for some guidance. Thanks my friends.
Jill xo
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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