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Old 12-11-2016, 11:27 AM   #1
Gabrielle
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Re: Gabrielle diagnosed Dec 1999 - Still Here

Hi friends....still here NED. Finishing 17 years after Dec 1999 diagnosis. The years have gone by quickly and am so grateful for each one. My husband and I are actually talking about retirement in 3 years and I never thought I'd live long enough to have that conversation. Was stage 3 with 9 positive nodes.

I've seen my 12 and 9 year old grow into adulthood, finish college and get good jobs. My daughter is getting married in May. Only we, in here, know what a gift that is.

I don't have special secrets for survival except that I was very aggressive about my treatment. I took a year of herceptin after the conventional chemo; opted for full mastectomy even for the non-cancerous breast and requested a hysterectomy a year after diagnosis (I was 45 then). I have no idea why I survived and other worthy women didn't. Cancer is mysterious.

I still work full time and teach part time. Go to the Y about 3x a week. My weight is normal and I eat everything: nothing is off limits including bacon and chocolate. 61 years old now.

God bless you all. Much love, Gabrielle
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Old 12-11-2016, 03:12 PM   #2
lkc Gumby
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Re: Gabrielle diagnosed Dec 1999 - Still Here

Hi Gabrielle, so glad to see your post, and know you are doing well. I am behind you by 5 years, and I too sought out aggressive treatment.
You know we are blessed and thankful everyday for bring so beyond this
Life changing experience. Wishing you a very blessed holiday season!
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 12-15-2016, 03:52 PM   #3
meo
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Re: Gabrielle diagnosed Dec 1999 - Still Here

Thanks so much for sharing! It gives hope to those of us in the early years of survivorhood to hear of the pioneers ahead of us.

You rock - even got a PhD!
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dx 7/2011
open incisional biopsy w/o clear margins
IDC IIa Her2+++ ER-PR- Ki-67 72%
changed doctors
9/2011 Rt breast mast w/expander
Sentinel node neg
scans clear
10/2011 port in
10/2011 began TCH
2/2012 last TC. Herceptin through 10/2012
severe osteopenia
7/2012 prophylatic left mast, node clear
11/2012 anemic
12/2012 began MDAnderson clinical trial
1/2013 implants in, port out!
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Old 12-31-2017, 08:21 PM   #4
Gabrielle
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Re: Gabrielle diagnosed Dec 1999 - Still Here

Happy 2018 friends. Still here, no recurrence. Keep the faith. Daughter married this year and we’ve moved to Florida. 18 years out, Stage III. God bless you all.
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Old 02-02-2019, 09:24 PM   #5
Gabrielle
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Re: Gabrielle diagnosed Dec 1999 - Still Here

Still here. God bless!
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Old 02-22-2019, 07:33 PM   #6
StephN
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Location: Misty woods of WA State
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Wink Re: Gabrielle diagnosed Dec 1999 - Still Here

Glad you stopped in with a brief hello. Keep up the good work and enjoy your good health in Florida!
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-19-2019, 05:39 AM   #7
Ben88
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Re: Gabrielle diagnosed Dec 1999 - Still Here

Thanks for sharing this awesome news.
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Old 12-15-2019, 05:47 PM   #8
Gabrielle
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Re: Gabrielle diagnosed Dec 1999 - Still Here

Hi friends,


Well, it will be 20 years in about a week. The memories of those first few days in 1999 are seared into my memory. I wish all those struggling with their initial diagnosis peace and strength as they set out on this journey. I was diagnosed Stage III, so don't give up hope.



For all of you, I wish you continued blessings. A few emotional setbacks this year for me but nothing I can't handle. About to be published for the first time in my academic career...that's an unexpected gift.



Much love and peace during the upcoming season. Keep the faith.


All the best,
Gabrielle
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