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Can of Worms
I may be opening a huge can of worms here but were looking for some input or advice. We talked to the coordinator at the hospital today about Barb getting the TDM-1. She was totally shocked to learn that we havent filed for disability or Mdcd. I talked to Barb about this when she was first diagnosed in Aug 2010. Her feeling and I dont totally disagree is that there are so many people out there that are taking advantage of the system that the country is in the shape its in. My question if not to personal is do the majority of you with stage IV collect a disability check or Mdcd benefits. Believe me when I say we arent lacking for anything nor are we swimming in money. The Onco bill and the hospital bill continue to grow and they seem to be patient enough with our meager attempts to pay each month. My insurance pays 80% until a certain point then 100% but by then the damage is done. I guess Im looking for confirmation that this is what most are doing. Thanks for all the encouraging words in the past and I hope to hear more in the future.
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Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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