HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 12-01-2014, 11:51 AM   #1
'lizbeth
Senior Member
 
'lizbeth's Avatar
 
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: The Army of Women cancelled webinar response from Dr. Joanne Weidhaas

Rhondalea, whether you realize it or not, you brought up a lot of the information on 23andme. I thought that you were discussing The Genome Project that my friend is participating in. I asked questions to get to the bottom of why you were linking it with the KRAS variant research. I now see the motivations behind the conversation.

Dr. Weidhaas did not charge study participants to receive DNA results. Like most studies the results are not directly disclosed to the participant. In a blind study the testing results are linked to a number, not an individual. Studies were designed this way to protect the identity of participants. If the study was originally approved this way, then she would not be allowed to disclose the information.

She made arrangements for those who participated to have a physician ordered test outside the study for a reduced cost. Unlike those who were offended, I personally greatly appreciated this effort.
'lizbeth is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 01:06 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter