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Old 06-18-2012, 09:34 AM   #21
sarah
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Re: My Freak Accident

Well Denise,well it's better than more cancer but horrible to have happened. Loved the way you told it! hope the pain pills work well.
hugs
Sarah
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Old 06-18-2012, 12:08 PM   #22
cienna
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Re: My Freak Accident

Wishing you a speedy recovery.

Take care of yourself,

Cienna
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Mum Diagnosed: 11/11/2011 (Left breast CA)
Age: 59yrs

Lumpectomy done: 23/11/2011 (Tumour 1.2cm, Grade 2, 2 nodes removed. All negative)
Results: ER+, PR+, HER2 +++
Started treatment: RADS on 20/12/2011 (Finished on 02/02/12)
Will be going onto Femara for 5 years and receive once in 3 weeks Herceptin for 1 year.
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Old 06-18-2012, 12:22 PM   #23
chrisy
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Re: My Freak Accident

Well, although I am SO sorry you had to be the victim of this freak accident, at least you did it spectacularly. I'd expect nothing less from you.

I hope the pain meds are doing their job and that you can get into surgery and healing mode soon.

I'm also dealing with a freak accident but am embarrassed to say it was nearly invisible to the outside world when I stepped off a curb and ended up with a ruptured tendon in my calf. This was in April and it's only last week I started physical therapy to be able to walk again!

Hope your rehab is unglamorous, dull, and speedy,

Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 06-18-2012, 12:29 PM   #24
BonnieR
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Re: My Freak Accident

If I were you, I might be having a conversation with a lawyer regarding the liability the bowling alley has regarding that oily floor. That is a real hazard.Their insurance should at least pay for it.
Keep the faith.
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 06-18-2012, 12:40 PM   #25
Estelle
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Re: My Freak Accident

Denise,

How awful. As if you don't have enough to deal with! Now just get though your surgery and take care of yourself!

Estelle
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DX 1/09
two tumors; .7 cm and 1.0 cm, same duct
lumpectomy 2/09
10 positive nodes; scans show no further metastasis, Stage IIIc
AC completed 5/09
Tykerb/Taxol (trial) 6/09, terminated from trial (due to bad reaction to Tykerb) 8/09; switched to Herceptin/Taxol
Taxol finished 10/09
Bilateral mastectomy 11/09
Radiation 12/09 to 1/10
Herceptin finished 7/10
NED
Start Vaccine Trial at Hopkins 2/11
Finished Vaccine Trial 11/11
Continue NED
Port Out 11/11
DEIP Flap 4/17)
8 Years NED 2/17
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Old 06-18-2012, 08:47 PM   #26
7andcounting
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Re: My Freak Accident

Denise, I am truly sorry, you didn't need that. The one thing that gives me comfort, when things go awry, is that we have bad surprises AND good surprises. You are definently in need of a good surprise. Hoping you can keep a positive attitude and know we are all thinking about you and wish we could give you a big comforting hug.
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Old 06-19-2012, 05:53 AM   #27
twosenuf99
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Re: My Freak Accident

Denise,

So sorry to hear about your accident. Like so many before me I can not believe they sent you home without surgery. WOW. The nerve of the nurse to whine about you not having a port. Please keep us informed of your surgery and recovery. Hoping for a speedy recovery.
Take care of yourself..
Tracy
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Baseline Mammogram November 2010, found 2 suspicious calcifications (right side).
Second Mammogram April 2011, found 2 masses in the right breast, 1 in the lymph node and 1 in the left breast.
3 Biopsies May 11, 2011
Diagnosed right Invasive Ductal Breast Cancer which spread to my lymph node 5-13-2011.
Between Stage 2 and 3 with tumors grade III. ER/PR- but Her2neu+++
PET Scan clear
Breast MRI showed 2 masses in left, 5 in the right and 2 in the lymph node.
Biopsy of left mass benign
Joined clinical trial which required second biopsy of one of the right masses
Port placed May 27, 2011
Began Chemo (Taxol, Herceptin and Tykerb) on June 1, 2011 - September 12, 2011
Bi-lateral Mastectomy with reconstruction (expanders) October 3, 2011
FEC 12 weeks
Radiation 6 weeks
Herceptin 8 months finish September 2012
Exchange surgery August 3, 2012
Been NED since October 2011
Lymphedema right arm since Nov 2013
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Old 06-19-2012, 06:33 AM   #28
jml
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Re: My Freak Accident

Oh Denise!
I'm so sorry that happened. How frightening for you and your family! You mentioned that you hit your head twice, so I hope they paid close attention to that too.
Rest easy, heal quickly & please keep us posted if you're able to type!
Keep the Faith~

Jml
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Old 06-19-2012, 12:55 PM   #29
tricia keegan
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Re: My Freak Accident

Ouch!! Sorry to read this Denise but could'nt help a sly smile on reading your story lol, I know it was'nt funny and do wish you well and please keep us posted!
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-20-2012, 04:44 AM   #30
chekmark
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Re: My Freak Accident

OMG you poor thing. I slightly chuckled at your candor and picturing it but then as I read further I thought WOW. Really, a lecture for no port. People amaze me. You my friend need to take care of yourself. I wish I was close so that I could help you. And if I am not mistaking, didn't you just go back to work or are getting ready to. I hope things go well with the surgery, will you need physical therapy? Did the bowling alley have you file an incident report? Please keep us posted if you are able to type after surgery. I am always here for you sista. God Bless. Darlene
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DX Sept 30 2010 at the age of 49. Oh crap! 1.5 cm idc, stage 1 grade 3 er/pr+, her2+ no lymph nodes, mastectomy Oct/10. Started 6 rounds of TCH Dec/10 and will continue herceptin until Nov /11 and just started femara.
Stray kitten found my lump while I was playing with it. It is now my pet and my dog is not real happy about that.
Mammo good
last herceptin 11/21/11 YAY
reconstruction 12/09/11
Chapter closed 12/10/11, hopefully, fingers crossed
Bone scan, chest xray, clear
04/27/12 Expander removed, implant put in, ahh sigh of relief, much more comfortable
Sept 30, 2014, 4 years NED
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Old 06-21-2012, 02:27 AM   #31
Jackie07
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Re: My Freak Accident

Any update? (You mentioned about possibly hearing something Tuesday...)

Reminded me of your own motto: "“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ”
– Cavett Robert


Take care and be sure to keep us updated...
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Old 06-21-2012, 09:41 AM   #32
NEDenise
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Re: My Freak Accident

Is it any wonder I love you guys!?
With everything else you have going on...you still reach out to me. If someone had told me 2 years ago that I would feel genuine love and friendship for a group of people I'd never actually met...I'd have rolled my eyes, and thought, "Yeah, right...and tomorrow night, the sun's gonna set in my back pocket.
But, here we are...and once again, I find myself feeling cyberhugs coming at me from my HER2 friends all over the world.
God is certainly good.
And I love my life!

And that's not the drugs talking either! As Jackie pointed out...I'm being "polished up again"!! At this point parts of me have achieved a nice high gloss...but it sets off all the bruises rather nicely, even if I do say so myself.

Since the ER doc's face went all ashen as he looked at my x-ray...and he said, "you really need someone who's dealt with a break this bad before, to fix this."
"I wouldn't mess around out here, in the suburbs", he continued, Get one of the guys in the city...and soon."
"This has to be fixed by the end of the week, or you might not ever regain full use of that hand."
...I got the idea this was not something to take lightly. Naturally, I then found the humor in it anyway...and posted the highlights for all of you to enjoy! (I know, you're all shocked by this! Since I'm usually so serious about things!) I'm sorry if I made anyone worry. I just couldn't pass up the opportunity to share the whole mess with all of you.

To those of you who sent compliments about my story telling...thank you, sincerely. I'm very flattered by your praise. To those of you who smiled, or laughed...thanks to you too...I really like to make people laugh...especially at my own goofiness.
And, for all of you who sent warm wishes and prayers...thank you, thank you, thank you!

So...here's the latest in my saga...

I saw the surgeon late yesterday afternoon...nice man, very compassionate. And, my surgery is scheduled for tomorrow morning...at his insistence. (His scheduler initially said next Tuesday was the earliest opening in his schedule. He said, "Move something, this can't wait.")
He's done many, many breaks like this one, but said the pieces of my bone have migrated into the actual wrist joint...making my case a little bit of a challenge. And, yes, if you're wondering, it's every bit as painful as it sounds...and twice as disgusting to look at!

Thank you Jesus for modern medicine! (Again!) Fifty years ago...if BC didn't finish me off before this spectacular feat of acrobatic bowling prowess occurred...I would have had to live out my days with a disfigured and virtually useless hand.

Instead, I'll be able to set off TSA alarms from 50 paces... because they'll be reinforcing my poor bone with a metal plate, and a bunch of screws.

The bad news yesterday was that the osteopenia I knew I had...has progressed to the full-blown osteoporosis I've been dreading. So, once my arm heals, I'll be looking into some fairly aggressive treatment to try to prevent more of these pesky fractures.

At least it wasn't my lymphedema arm...which is also the hand I write with...but that means for the next 6-8 weeks...I don't have a "good" arm to do things with. It also means I can't put on, or take off my compression sleeve by myself. Sheesh!

Today's conundrum is...I can't take Advil for the pain, because of the risk of bleeding during surgery tomorrow. And while Percocet makes me sleepy...it really doesn't to anything to alleviate my pain. So...
whiney,
whiney,
moan, complain,
whine some more...
my aaaaaaaarm hurts.
Thanks for letting me share that...I feel much better now.

I'll let you know how things work out tomorrow. Prayers would be most appreciated!

Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 06-21-2012, 10:02 AM   #33
karen z
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Re: My Freak Accident

Thanks for the update and good luck on your surgery. I know it will go fine. You can do this !
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Old 06-21-2012, 10:17 AM   #34
LeahM
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Re: My Freak Accident

Thanks for the update. Glad to "hear" your smile. Good luck with the surgery, I know you will be great. Good vibes and prayers coming your way.
__________________
39 year old wife, mother of one and nurse.
April 20, 2012: Dx Invasive Ductal Carcinoma
April 25, 2012: ER+(5%), PR-, HER2+++
May 10, 2012: BRCA 1,2 Negative
May 23, 2012: MUGA Scan EF 70%
May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed
June 5, 2012: Drains OUT! Ahhhh..
June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early"
July 10, 2012: Started 6 rounds of TCH with weekly H
Sept 5, 2012: MUGA 65%
Sept 20, 2012: CAT scan of brain clear!
Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013.
Nov 19, 2012: Port out!
Dec 5, 2012: Started radiation
Dec. 10, 2012: MUGA 65%
Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER!
Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013.
Jan 29, 2013: Begin 5 years of Tamoxifen.
Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months.
Mar 6, 2013: EF 60%
May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good!
June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms...
June 11, 2013: EF 60%
June 25, 2013: Last Herceptin. wow...
Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures.
Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on.
Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this.
Feb 2014: Tumor markers within normal limits.
May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts.
Oct 2014: Tumor markers within normal limits.
May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt?
Nov 2015: Tumor markers WNL. Follow up bone scan clear.
Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know.
June 2016: Tumor markers WNL.
Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia.
Nov 2016 Brain MRI clear.
Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know.
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Old 06-21-2012, 03:58 PM   #35
JennyB
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Re: My Freak Accident

Good luck hope it all goes well.

When I was young ie years ago - we had a show on telly about a storyteller called Jackanory you just reminded me of it!!

Hugs Jenny x
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy

Praying the Herceptin is as good as its hype!!
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Old 06-21-2012, 05:15 PM   #36
Laurel
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Re: My Freak Accident

Hey Denise, while I am truly sorry you had a less than graceful outing at the alley I cannot help laughing at your description of the event! So well was your story written I could picture it all right down to the oily smear on your butt!

I am very sorry you are in pain and inconvenienced, but I just want to thank you for the mental images! Here's to hopin' you heal amazingly fast!

BTW, how did you manage to type your post?
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 06-21-2012, 05:25 PM   #37
NEDenise
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Re: My Freak Accident

How did I manage to type my post?

Slowly...v-e-r-y s-l-o-w-l-y!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 06-21-2012, 07:09 PM   #38
Becky
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Re: My Freak Accident

I know everything will go fine. Also, my daughter has a metal plate in her arm (upper) and has only set off alarms once. I will be thinking of you.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 06-21-2012, 07:24 PM   #39
7andcounting
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Re: My Freak Accident

Denise, you are so right...that's what I tell myself as I go into every surgery....atleast we can be "fixed". I am glad this surgeon is getting right to things and not waiting. I'm glad for your humor, it's our best defense sometimes! I am praying for you that your surgery is successful and that you heal very quickly. We all love you and look forward to more of your descriptive, and encouraging posts!
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Old 06-21-2012, 08:48 PM   #40
Pray
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Re: My Freak Accident

Gods blessings Denise! I am so sorry you have to go through all of this! Please, I do not expect you to respond to my pms. I will be thinking, hoping and praying for you tomorrow!
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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