HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 10-24-2012, 12:30 PM   #1
kristen50
Member
 
Join Date: Oct 2012
Posts: 6
Need help with possible padgets

Hello everyone....
I am a little stressed out and need some help on anyone with experience with padgets.
I went to my 6 month check and she said my nipple on my cancer side is funky and in need of a biopsy.
Does anyone have experience with this. I am 9 years out with lumpectomy her2+++ ER/PR + chemo and rads and late herceptin. My tumor was on the corner of the nipple and i have a large indention from the removal, that is why I though the nipple started to invert. It is also slightly red and slightly flacky but its does not hurt/itch or burn.
Does anyone have any experience with this?
Thanks....
kristen50 is offline   Reply With Quote
Old 10-24-2012, 01:15 PM   #2
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: Need help with possible padgets

Kristen my tumour was roughly in the same area but didn't have this experience and just wanted to send you good wishes! x
I do however have an indentation too since I quit smoking and went up a bra size!!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Old 10-24-2012, 02:55 PM   #3
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: Need help with possible padgets

Believe it or not, there's a thread on padget's that was started by a member with the same name as yours:

http://her2support.org/vbulletin/sho...hlight=padgets

ps. Looks like it was a thread started by you last year.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 10-24-2012 at 03:08 PM..
Jackie07 is offline   Reply With Quote
Old 10-24-2012, 09:36 PM   #4
'lizbeth
Senior Member
 
'lizbeth's Avatar
 
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: Need help with possible padgets

Based on your history a biopsy is prudent. I had the flaking, and eventually the nipple turned a smooth red color as the cancer grew. I also could express a yellowish to light orange discharge from the nipple with manipulation. The other breast expressed more of a milky white.

I also had underlying lesions, multifocal - but had not had a mammogram for many years (bad idea). In my own experience, the pagetoid spread did not show on a mammogram. A MRI showed an additional 2 lesions in addition to a large IDC lesion.

I hope it isn't cancer - if it is, it sounds like you and your oncologist are right on top of it.

You can do a Google search for Paget's of the breast and select images. If you just search Paget's - the bone disease the same doctor discovered will pop up. Interesting photos - some obviously very advanced cases.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
'lizbeth is offline   Reply With Quote
Old 11-07-2012, 11:27 AM   #5
kristen50
Member
 
Join Date: Oct 2012
Posts: 6
Re: Need help with possible padgets

Hi Jackie.....Yes that is me!! I could not remember my prevous user name and am not that familiar using the website so I didn't realize their was a search box. Also have changed emails. Thank you for your reply..
I have had a biopsy and it seems as though it padgets....
I have an appointment with the surgeon today. All I know right now is that we cannot do radiation because I had prevous radiation....does anybody know why?
I am faced with surgery but will know more later today.
Kristen
kristen50 is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 03:25 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter