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Old 03-06-2013, 04:32 PM   #21
jaykay
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Join Date: Oct 2012
Posts: 646
Re: I think cancer treatment can be in humane

When I had radiation the first time around, they recommended I wear an all cotton bra, no underwire, while I was going thru radiation and for a bit aftwards to allow the skin to heal. Which was tough to find because when I had my own breasts, I always needed an underwired bra. The cotton really helped and others have mentioned less restrictive and forgiving bras.

I think you're doing great. I know I "skated" through my first radiation 13 years ago, but had no chemo. I don't expect rads following chemo to be as easy.

My "boyfriend" keeps on saying that I'll be better when the treatment is over, meaning chemo. I've explained that treatment won't be over for quite a while and it's not just the physical aspects (crappy nails, the big d, achy legs, teary eyes, runny nose, fatigue, etc.) it's the emotional aspects.

As an fyi, my husband was alive the first time around and was my rock. But still freaked out and I had to calm him down quite a bit. I miss him this time around - he was a natural born caregiver - but in all honesty, I haven't had the energy to deal with a relationship and cancer and me.

But my girlfriends and family have been great; I can't complain.

Oh jeez - just got on my soapbox, too ;-)

Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 03-06-2013, 05:51 PM   #22
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: I think cancer treatment can be in humane

Regarding comfortable bras. A friend gave me a "sleep bra." It was SO comfortable, as I did wear it to bed when I had a bandage on my lumpectomy site. It became sort of a 24-hour bra for a while. It had hooks so I could adjust it for day and night.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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