 |
10-17-2007, 11:55 AM
|
#1
|
|
Senior Member
Join Date: Jan 2007
Posts: 368
|
Maybe good news
Well girls, I had my Pet/CT scan and don't have the results yet, but I always get a copy and from what I can (or should I say can't) see, it looks clear.
Obviously I'm not a rad tech, but comparing the new scan to the old one, I can't see any obvious hot spots.
I'll know in about a week.
However, I'm having terrible hip joint and back (SI joint) pain. Also knees, ankles wrists, but not as bad.
I'm also having problems with a toe, which I thought was an ingrown nail. Add a couple red and silvery spots on my radiated breast, to that and the symptoms may mean I am developing PA (psoriatic arthritis), which is not good.
I have a doctor's appt. Friday and will see what she says.
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
|
|
|
|
10-17-2007, 12:55 PM
|
#2
|
|
Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
|
Hi Brenda D
We'll take "maybe" good news!! I'm sure you're feeling better about the scans
after seeing them yourself.
I'm sorry about all the pain you are having in your joints - that's no fun.
Good luck with the doc. appointment and the arthritis dx.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
|
|
|
|
|
10-17-2007, 03:14 PM
|
#3
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Brenda
I love how we read our ownb scans, lab work...we could darn near be Dr's. Hoping your scan is all clear, and the pain you are having is due to arthritis or meds....I think part of mine is age, but it seems like new places hurt every day.....as my Dad always says, old age is not for sissies!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
10-17-2007, 04:54 PM
|
#4
|
|
Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
|
Shelia:
I have to laugh at your post. It is so true. I looked at the monitor during my bone scan, determined I could read it, and convinced myself that the cancer had spread. I went home and told my husband so, only to find out later, I had a clear scan. Oh, gosh, the things we go through.
Brenda: Glad you feel better about your scans and believing that you get the good news soon.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
|
|
|
|
|
10-17-2007, 05:33 PM
|
#5
|
|
Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
|
Brenda,
Interested in what happens with your pain & swelling. I had terrible hip/sciatic pain after 1 year of Herceptin. Needed a total hip replacement and had wacky blood work & SED rate then shortly after the hip -wrists, hands, knees & ankles painful and swollen. Saw a rheumatologist who categorizes me in the arthritis that is inflammatory - he is thinking it is psoriatic but no clear answers as I do not have the skin problems. To the best of my knowledge arthritis of this type does not run in my family. I will always wonder if it is Herceptin.
Good luck I will be thinking about you.
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:44 PM.
|
Linear Mode
