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10-16-2007, 01:14 PM
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#1
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Senior Member
Join Date: Dec 2006
Location: WHITESTOWN IN
Posts: 148
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Not the news I wanted
Today I had the first set of mammograms since DX. I was really hoping for the best . And I guess it is not as bad as it could be so I should count my blessings. My left , the bc boob, was beautiful. The scar, which is now where my nipple used to be did not even show up. Yeah! Unfortunatly my right breast showed a dozen or so teeny tiny spots. They were not there last year. Most likey they are just calcifications but the center called my surgeon and we are back to surgery next week. Remove the cluster and then off to path. He says there is only a 10percent chance that it is the very begining of bc but with my history why chance it. Get it out and find out what it is. So here we go again. I am really starting to feel some major battle fatigue here. So I went out and bought a new puppy. Gwendolyn is a three month old miniture long haired Dachsund and is as cute as can be. We lost our 15 yr old last month and my mastiff has been so lonley since. So I cheered both of us up today. Please keep me in your thoughts next tuesday, I need all the help I can get.
__________________
DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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10-16-2007, 01:21 PM
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#2
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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sorry
Hi Kriss
Sorry you didn't get the news you were hoping for. There is a good chance these tiny spots are nothing, but you are very wise to get them checked out.
I'll keep my fingers and toes crossed for you. Another wise move -- new puppy!!! I'm jealous....
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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10-16-2007, 01:28 PM
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#3
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Oh, Kriss, rats, rats, rats! Didn't those pictures know to be clear. But you have a "better safe than sorry" kinda guy taking care of you and you have a squillion warriors who will be praying for you. Wish you didn't have to do it, but so glad it is soon and will be over and you will know the game plan. And the puppy. What a lucky duck that little pup is! You did soooooo good! Lots of love and belief for clear pictures coming up! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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10-16-2007, 01:43 PM
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#4
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Senior Member
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
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Kriss,
I am sorry that you got your news. I will be praying for you that it is just pesky benign stuff (and I really do think that it is) and that you are through all of the surgery and testing asap. I am very happy that you have a doc that is on top of things and checking everything out.
As far as the puppy goes.... I'm jealous!!!!! I want one!! Snuggle lots and keep your chin up!
Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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10-16-2007, 02:28 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Hi Kriss!
Your doc is doing what my b surg does. Never wait and see. Always take out any thing and every thing. Just have to. It's the wisest course. And I too think this is *pesky benign stuff*. Will say a prayer for you anyway. And reaching for LOVE in Gwendolyn form so healing and nurturing. Give her lots of cuddles. She is a lucky pup. Be well. Stay well. Do what you have to. Sorry, but you'll be so glad to learn it is definitely nothing to worry about... With love,
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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10-16-2007, 02:31 PM
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#6
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Senior Member
Join Date: Aug 2006
Posts: 492
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Sorry you didn't get both breasts spotless. I will be thinking of you next Tuesday. I hope it is a benign bump in the road and you are not too weary- but this does get old!
I also want to see a pic of your Mastiff and a little mini puppy! I bet that is too cute.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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10-16-2007, 02:47 PM
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#7
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I am also sorry that you did not get the results you wanted, but I am hoping and praying that the small spots are benign. Best wishes to you and enjoy your new puppy. Keep up posted!
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10-16-2007, 03:04 PM
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#8
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Senior Member
Join Date: Oct 2005
Posts: 215
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Sorry about the results, but I am sure it is benign. Hang in there. It's good that your doc. is on top of things. will keep you in my prayers, Hugs, Jeanette
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10-16-2007, 03:15 PM
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#9
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Dear Kriss,
I am so sorry too. You are in my thoughts and prayers my friend I am praying that these tiny spots are nothing.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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10-16-2007, 03:34 PM
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#10
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Kriss,
I know you didn't get the news you were hoping for but at least your doctor is doing something quickly. I'm sure that it'll turn out to be benign. I'll keep you in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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10-16-2007, 03:35 PM
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#11
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I can relate.................
Hi Kriss,
I know exactly how you feel. Exactly!!! The same thing happened to me. Six months after my mastectomy of my right breast cancer breast, I had a mammogram of my "good" breast - the left one. When we got home from the mammogram appointment there was a message on my machine from my surgeon saying "call me!" Oh my gosh, I about died. I called and was told "don't worry BUT.......................(ya right?) we found calcification near your chest wall that we would like to biopsy." I couldn't believe it. Just couldn't believe it. Even my oncologist called and left a message saying "I'm sorry you are having to go through this. I'm sure it's nothing. I will not be concerned until I know what it is."
So, I did the stereotactic biopsy and THANKFULLY it was benign. I did go ahead and have that breast removed also BUT that's another story.
I'm sure it is nothing Kriss. I'm just sure. My prayers are with you. I'm really sorry you had to experience this today. I really am. Snuggle that puppy and TRY to let it go (ya I know - wayyyyyyyy easier said than done)
Love you,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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10-16-2007, 03:39 PM
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#12
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Best wishes Kriss - I know that is a bit of ambiguous news... but there is always the chance that it is not the bad stuff! But no matter what it is, you are seeing it early which will give you so many more options...
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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10-16-2007, 05:35 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Oh fiddle
A cluster of calcifications is something they have to be sure of. I will not tell you not to worry because I know you will because we all do. Just know that we are all worrying with you.
One more thing you didn't need while you were recovering from your hysterectomy.
I am thinking of you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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10-16-2007, 06:59 PM
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#14
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Kriss,
I am sorry that you had that report. Hopefully it will turn out to be nothing. What a full swing for you, that news and then the other
extreme of pure happiness with your new baby puppy. I am a major
dog lover - and when I was going through radiation my son purchased
a baby American Bull that I named Bernie. He was my constant shadow
along with my other dog Merlin, during the entire time.
Enjoy your new sweetheart - and try to remain positive, my prayers
are with you.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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10-16-2007, 07:15 PM
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#15
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Kriss,
A week can seem like an eternity, that new puppy should keep you busy though. Heres hoping that the teeny tiny spots are a great big nothing!
All my best,
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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10-16-2007, 08:33 PM
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#16
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Kriss,
I went throught this angst myself at the end of August, it all turned out fine. I'm sure it will all be okay. Keep us posted, we are all thinking of you.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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10-17-2007, 07:21 AM
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#17
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Senior Member
Join Date: Dec 2006
Location: WHITESTOWN IN
Posts: 148
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Thank you Ladies for all your sweet words. It is just the road we travel but I want a new scenic drive. I hope you all have a wonderful day. It is beautiful in Indy today. So myself, Gwendolyn (the Doxie puppy) and Beatrice (the Mastiff) will be enjoying the lovely fall weather. We are a sight to see. Blessings to all, Kriss
__________________
DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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10-17-2007, 07:51 AM
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#18
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I have my second mammogram after diagnosis on Nov. 5 and thanks to this board, I am prepared for anything -- cyst, calcifications, etc. I remember my 1994 mammogram showing calcifications and the radiologist telling me not to worry. I tried to give up coffee as a remedy (!) -- lasted about one month. I am glad the surgeon is going to biopsy your calcifications. I hope I don't have any, but I will be as proactive as you are about them if I do.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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10-17-2007, 09:33 AM
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#19
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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Kriss,
Keep busy, stay positive and we are all praying that the results will be good!
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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10-17-2007, 10:22 AM
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#20
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Kriss,
I so hope that you get some good news when you follow up. Snuggle up with your new "baby" every chance you get...there's just something about that puppy smell thats makes one feel better!
Hugs,marcia
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