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05-11-2007, 10:26 AM
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#1
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Senior Member
Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
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Good news last week, but...
I got good news last week but now I am unsure. My doctor decided to skip this quarter's CT scans because everything has been staying small, and my 27-29 numbers have been staying in the normal range. I asked for an x-ray of my shoulder just to set my mind at ease, because of some pain. We both thought it was a herceptin side effect, but extra because of previous radiation. He also scheduled a bone scan because it has been a year. He said he would call with the results. Yesterday they called to set up an appointment to go over the results on the 22nd. Can bone mets grow even when the numbers are down? I'm ok with it either way (I think), it's just the waiting to find out. I know you all understand, which is why I posted even though it really is no big deal compared to others. Thanks for being there! Beckie
__________________
Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today
I know Who holds the future, and I know He holds my hand.
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05-11-2007, 10:54 AM
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#2
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Arthritis?
Dear Beckie:
I had a bone scan about 4 moths ago over mets concerns. It turn out to be arthritis on the shoulders, wrists, knees (one worse than the other), etc. Basically it was nothing!!!!, . Do not worry, probably it's nothing. Not sure if you're a Mom, but just in case..... Happy Mother's Day!!!!
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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05-11-2007, 05:20 PM
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#3
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Senior Member
Join Date: Feb 2007
Posts: 108
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Becky,
The waiting is definitely the worst! You can see my dx below, but my onc agreed to do a bone scan and CT scan because of my worries about mets. I am not at high risk, but with HER2, who knows?
So, my bone scan lit up a spot on my back. Then I had an inconclusive xray, and an MRI with contrast to show what ever else they could find. The MRI found a buldging disk and signs of bone degeneration they attributed to arthritis. So, all in all they think I am clear of mets, but they did stop short of saying they KNOW it. They say that with what they found and my low risk for mets they are "99% sure" that it is not mets, but the only way to know 100% is to do a bone biopsy.
It still niggles at the back of my mind now and again.....
Hope you get great results. Keepign my fingers crossed for you.
__________________
Age 50, premenopausal
Dx 1/2/07 DCIS/IDC
Lumpectomy 1/4/07 1.1cm tumor
SNB 3 nodes clear
Stage 1, Grade 2, HER2+++ (FISH 6.8)
ER + / PR +
TCH, 6 rounds, finished 6/1/07!!!
Herceptin to continue for 1 year
36 rads finished 8/22/07
Port out 8/27/07
Switched to Herceptin weekly for joint pain
Ooph 11/13/07
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05-11-2007, 09:36 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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I think it's plain not nice to keep you guessing. Remember to tell them that. The docs told me on the phone the way it was, diagnosis, with the appointment to come in.I prefer tp kick things in the privacy of my own home. I hope it's nothing. Keep us posted. BB
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05-12-2007, 05:13 AM
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#5
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Becky the waiting is torture for all of us.I really hope it's good news,I had convinced myself I had bone mets but the scan showed bone loss on the spine area which explained my back pain along with the Arimidex joint pain. I'll be keeping my fingers crossed for you and hope the time goes quickly.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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05-16-2007, 04:54 PM
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#6
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Senior Member
Join Date: Mar 2007
Location: State Motto='HOPE'
Rhode Island
Posts: 28
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Hello Becky
Becky, could I ask what your CA27/29 numbers are? I am curious to find out. Also, if they are moving up or down, by how much? I will talk to you soon. Our prayers will be with you.>>Waiting For A Miracle>>Marie G
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05-16-2007, 06:52 PM
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#7
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I agree that waiting for any test results is the worst.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-16-2007, 10:45 PM
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#8
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Senior Member
Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
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Marie, My CA27-29 has been back and forth from 24 to 30 for the last nine months , compared to 262 a year ago, so I have much to be thankful for. I am feeling so much better than last year! I will let you all know what I find out next Tuesday. Thanks for everyone's thoughts.
__________________
Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today
I know Who holds the future, and I know He holds my hand.
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