Please post your two cents on Herceptin "side effects" real or perceived!

[dhealey]

kat in dthe delta, I have a woman oncologist by my choice. I am Stage IIA, she told me right up front that my breast cancer would most likely come back at sometime and I would never be "cured", since I was her2pos. Says we have to treat it like a chronic disease. She has always been up front about the side effects. Is particularly watchful of my heart as I was on adramycin/cytoxin first and now herceptin. I have gotten alot of joint pain from the arimidex which is bad for me as I am very active. Walk alot. We have changed this to aromasin but the joint pain is back. I have a hard time defining the new me, but it is a work in progress. I have never felt embarrassed because I have mastctomy scars and I don't feel any less attractive, after all we have the right to chose whether or not we want a particular treatment. For now I chose to live each and every day.

[misskuwait]

Thanks for posting the article on the board. I really agree that the drug companies do not follow up after the drug has been marketed. My onc never asks searching questions its as if they dont want to know the side effects.
I am thankful of course for the Herceptin but my main side effect has been total back pain since one third of the way through the yearly course. I still have it pretty bad and no one can tell me if it is due to the herceptin or a combination of it and Tomaxifen. I often wonder will I have it now for the rest of my life?
Its great we have this board to post our thoughts on. Is there anyone out there with a similar story to tell?

[sandy truett]

stage 2+, her2neu+, 2nodes+, radical mastectomy, AC/taxol Herceptin 5/05-5/06 weekly. I actually felt well during treatment. I do have more floaters in my right eye but that occured after my first AC. I did get bad upper teeth pain in the 11th month of Herceptin. Went to my dentist who couldn't find anything wrong and then to my doctor who sceduled a scan thinking maybe sinus but couldn't find anything wrong either. Teeth pain went away one month after stopping Herceptin.

[dhealey]

Paris, I think my onc says I will never be cured and will have to treat this as a chronic disease for several reasons. I have tested positive for the gene, my tumor was large and grew in a short period of time. Not there in July discovered large lump in Oct., when you are herceptin positive the breast cancer is aggressive. Herceptin in some women can stop working at some point. I am Er/Pr positive and have tried two different hormone therapies both of which have caused me some side effects, only one more to try. It is not that she is giving me a death sentence, just bein up front that it will return at some point and we treat it again and again. I rather like the fact that she is up front about this. My mother's bc was same as mine only she was 58 when she was diagnosised (I was 52) she lasted 8 years, 5 years with no recurrence, then it came back with a vengence. I have done a lot of research on this and there really is no cure. They can keep us in remission for a long time though, and keep treating it with more effective drugs, but like diabetes it is a chronic disease. Many women who are stage IV go in and out of remission and can live for a long time if recurrence is caught early enough. I hope this answered your question

[kat in the delta]

I just read in our local newspaper about someone at Duke Univ. doing a study ...and it mentioned also a DR. Slamon or Slaom-spelling is not correct from UCLA..CAlifornia.
Anyway, he said with a genetic test if you had the TOPELL(sp) then Herceptin could or could not help an Her2 + person... Help me look that up... It should be written in the Oct. issue of the Journal of Oncology... How Adrimycin damages the heart..then, if you add Herceptin, you are 5x's more likely to get heart damage.
I am sure that is what is wrong with me. I have never had the genetic test but I feel WE ALL NEED to TAKE it.....or we may be getting too Many chemos ..making the drug companies richer.. Insur. and Medicare(gov) would SAVE a LOT of MONEY if we all had TARGETED TREATMENT(s). My ankles swell ....and look like a diabetics or worse !!! I need to walk more to get my circulation going.. My OLD ONC.. gave me Herceptin when my Left Ventricle Output was just 47.... I just read the INsert of Herceptin..and the WARNINGS--do not give if less than 50 !! On a teleconference earlier I taped the ONC saying that 60 was really Normal....so you know if they say do NOT give HERCEPTIN if less than 50 or if it dropped 15pts score.
My New onc.. gave me a Circulating Tumor Test... and he was looking at my only 3 heart scans I had for ALL my TREATMENTS which lasted almost 2 yrs... Well, at least you don't have CANCER now... with a bit of a grin..as he was walking out..(like/ as if to say in MY words: THAT OTHER ONC.. GAVE you so much..s__t you did not have 1 CTC ..but the guy bout blew up your poor heart..)
the New onc is sending me to a good group of Heart spectialists, and I looked at that CTC test..and for now it said I had 0 circulating tumor cells in my body..... but like someone said ..you never know when it will Flare back out full force......... and I HURT --lack of circulation and some lymphedema in arm and chest..etc.. ??? Hope the Cardiologists can help kat in the delta

[dhealey]

I have experienced the vaginal dryness also. Onc tells it is from the chemo and now on aromasin. All of these have interfered with the production of the estrogen which causes the dryness. I have tried the k-y vaginal capsules, these helped some. There is also a product out called replense, works the same way as the k-y. Just another annoying side effect of this disease.

[Kathy S in Tokyo]

Gin-tx and Andi,

Thanks for the comments. When I learned that I could have Herceptin I did the math after seeing Andi's history in her signature and was greatly encouraged. Gin-tx, I'm glad that you don't have neoropathy. Is your back pain from bone mets? I had this year's bone scan last Friday and will get results tomorrow at my pre-treatment visit with my onco. It's a little hard to type with my fingers crossed :-).

Every time anything ever hurts I jump to cancer or drug side effect conclusions when lots of stuff is probably from getting older (the goal of the treatments) and overdoing things (playing softball with the PTA or jumping on a trampoline at a park with the kids). I guess I should act my age a little more or work out more often so it isn't such a shock to the system when I do excercise.

I think my oncologist just wanted to make sure that I was really aware that some patients have reactions the first time as I was fairly laid back at the appointment when he may have expected me to be more tense about starting a new drug. I'd heard from members here and on another site about what to expect and hadn't been sitting at the edge of my seat during the appointment. I had no infusion reaction that day and have been on weekly Herceptin since March now. Dryness wasn't so noticeable in the humid summer months but now that it's cooler and more dry, I broke out the Vaseline intensive care healing skin lotion this week and do notice a big difference when I use it after bathtime.

I'm more fatigued after the lengthy Herceptin and Taxol dual treatment days than I am after the Herceptin only days. Some of the fatigue I have may be from the train commute through Tokyo and back once a week as I tend to stay around home and only go where I can cycle or walk. I'm sure that the weekly Taxol which was added to the treatments in June is a big cause of the fatigue too. I have 7 more treatments to go until I reach the magic number 20 and will return to Herceptin only in my maintenance mode. Some of the lung mets are still there, but most of them have disappeared completely thanks to the Taxol. I'm very glad that I haven't had any signs of ejection fraction decrease and that I can remain on the big H for a long time.

Having a weekly (or more if I can't get various tests scheduled on treatment days) expedition downtown has made this year fly by very fast. It seems like I just had a CT scan and it's already time for another. On the Herceptin, the results showed that the cancer was still there but in check. On the Taxol, the results have shown much shrinkage. Once I'm back on Herceptin only, I'm counting on it to keep the reduced mets in check.

Best,

[Lani]

your currently being on an antihormonal

Just be aware of the ingredients of Vaseline Intensive care lotion --including methylparaben, lecithin (often from soy) and "soy sterol"

If you are on Faslodex, which causes the Estrogen receptor to fall off all the cells in the body that it gets to (still unclear to me if that includes the brain),
these may not be a problem. If you are trying to minimize Estrogen and similar compounds (phytoestrogens) you might want to check with your oncologist if it might be. The degree to which these compounds get absorbed varies from what I understand.








Brand Information
Brand Name: Vaseline Intensive Care Lotion, Aloe & Naturals
Form: liquid
Product Category: Personal care/use >> Skin Care >> body/hand moisturizer
Customer Service No.: 800-243-5804
Date Entered: 2001-02-23
Related Items: Products with similar usage in this database



Manufacturer
Manufacturer: Chesebrough Ponds USA Co.
Div., Lever Bros. Co.
Address: 33 Benedict Place
City: Greenwich
State: CT
Zip Code: 06830
Telephone Number: 203-661-2000
Fax Number: 203-625-1602
Toll Free Number: 800-243-5804
Date Info Verified: 2007-02-07
Related Items: Products by this manufacturer



Health Effects
Enter text or highlight term...
The following information (Health Effects, Handling/Disposal, and Ingredients) is taken from the product label and/or the Material Safety Data Sheet (MSDS) prepared by the manufacturer. The National Library of Medicine does not evaluate information from the product label or the Material Safety Data Sheet.
Warning from
Product Label: Keep out reach of children. For external use only, Not to be swallowed. Avoid contact with eyes. Discontinue use if signs of irritation of rash appear. If irritation or rash persists, consult a doctor
MSDS Date: MSDS was not available, or issue date was not indicated on the MSDS.



Handling/Disposal
Handling: No information
Disposal: No information



Ingredients from MSDS/Label
Chemical CAS No / Unique ID Percent
Fragrance(s)/perfume(s) 000000-00-1
Glycerin 000056-81-5
Stearic acid 000057-11-4
Methylparaben 000099-76-3
Triethanolamine 000102-71-6
Butylene glycol 000107-88-0
Glycol stearate 000111-60-4
Glyceryl stearate 000123-94-4
Disodium EDTA 000139-33-3
Aluminum magnesium silicate 001327-43-1
FD&C (or D&C) Yellow #5 001934-21-0
FD&C Blue #1 003844-45-9
DMDM hydantoin 006440-58-0
Tocopheryl acetate 007695-91-2
Water 007732-18-5
Lavender oil 008000-28-0
Eucalyptus oil 008000-48-4
Sunflower seed oil/extract 008001-21-6
Lecithin 008002-43-5
Almond oil 008007-69-0
Orange oil 008008-57-9
Sage oil 008022-56-8
Carbomer 009003-01-4
Dimethicone 350 009006-65-9
Titanium dioxide 013463-67-7
Cetyl alcohol 036653-82-4
3-Iodo-2-propynylbutylcarbamate 055406-53-6
Aloe barbadensis/vera extract/gel 085507-69-3
Soy sterol 999999-32-6
Stearamide AMP 999999-34-6


Note: Brand names are trademarks of their respective holders.
Information is extracted from Consumer Product Information Database ©2001-2007 by DeLima Associates. All rights reserved.

Hope this helps you ask and get the best information possible. I don't have the answers.

[Kathy S in Tokyo]

Hi Lani,

You're right, I'm not doing anything about the hormone side of this cancer right now. I had recurrance while on Tamoxifen so I stopped and blasted with CEF then Taxotere last year. The next attempt at hormonally controlling things was Torimifene but my new onc. decided that Zoladex to stop the menstruation that had not been stopped by chemo and daily Tamoxifen should keep the hormone hungry tumors at bay. This was based on both the original cell work and my new onc.'s lab's examination of my tumor cells. We tried this for 3 months during which the tumors in my lungs basically tripled in size and multiplied so I stopped and got ready to start Herceptin.

The Herceptin stopped the growth in its tracks and I was walking around doing well enough in maintenance mode while I had my weekly IVs. When I caught a cold in June though, my onc. decided that the cough was a symptom that could justify blasting away at the tumors to make more room in my lungs for oxygen so Taxol was added. Unlike the previous chemo regime, my periods have stopped with the Taxol.

I will ask my onc. about the Vaseline Intensive care and other Japanese brand lotions and see if he has any brands and products that he can recommend. Thanks for the advice.

Hugs,

[MAB1943]

was put on herceptin w/taxol and finished taxol in June started herceptin @ 3wk

[MAB1943]

@3 wk intervals for 90 min infusions.
here are my side effects
muga down to 53% in Sept. they want me to cont w/herceptin thru March 08
runny nose/sinus swelling/nose bleeds.
terrible knee joint and muscle pain also in hands and fingers
terrible taste in mouth
foggy brain focus ability bad memory not too bad but decreased and yes I too
stop in the middle of a sentence and forget what I was saying and can not get the proper word out at times.
neuropathy is worse at times and insomnia after treatment for few days
sluggish and very tired. urinary track irritation. and dryness. hair stopped growing back. hope it will start when I am finished my treatments.
that is all I can think of presently.
Mary

[Andrea Barnett Budin]

Did I mention that I have recently discovered, on my own, through a friend who was describing why she went off Effexor -- that my terribly spacey, shaky, foggy brain could well be NOT from my low red bld cell counts, but from Effexor! I called my onc immediately and told him I wanted to go off, knowing you need to wean off.

When my friend described her symptoms in detail, I realized that was exactly how I was feeling. I JUST READ THE POSTS SINCE 10/14 ON THIS THREAD AND AM AGHAST. WHERE HAVE I BEEN? It's like that. Whole segments of my life disappear and when I discover them, I am appalled! I kept thinking what is happening to me? Is it 9 yrs of H? Is it my HGB? Never put the Effexor in question, nor did my onc, who has heard my *complaints* for the last 5 mnths.

I was put on E to help my hot flashes. 37 1/2 mg, then 75, then still flashing up a storm, we added an addl 37 1/2 to nail it. Well, after a while I asked to go back to 75 as I was somewhere OUT THERE. I am now remembering... Slowly... So I got put on 37 1/2 for a wk. Felt better in a day. Even better after two. Now after a wk, I'm on 37 1/2 ev other day for a wk, then 37 1/2 ev 3 days for a wk. Getting better and better.

Now I'm reading these posts, and I am floored. May I say how delighted I am to hear I have been an inspiration. News to me. Also, I wanted to chime in here.

I get H ev 3 wks w/a half hr infusion. I get 500 ccs of saline vs the standard protocol of 250 ccs and I believe I do better this way. It was just the way I always got it since '98, then new pharmacist and I saw this little bag and questioned WHY, and he came out and explained. I felt dizzy and disoriented and wobbly after that infusion and now insist, through my onc, that I return to the old method. I know some do the infusion over an hr and feel better. Every one is different. Find YOUR best niche, I say!

Future -- to clarify -- I was borderline in '95 at initial dx. I was put on Tamoxifen after Adria4 and 8 CMF. When the bc recurred in '98 in my liver, I was told I was ER/PR- and to flush the Tamoxifen, it wasn't for me, could have caused the recurrence in my case. I was in peri-menopause for 6 yrs (age 40-46). My last period was '91. I was dx at age 50, post menopausal for 4 yrs.

I'm intrigued by the essential oils post, as I mentioned that for the last yr perfume does not leave any lingering scent on me as it always has. I am wondering about this annoying new thing and what it means.

Mary, I sent you a PM, but returned to the thread and see you were on Taxol, cousin of Taxotere, which I was on for 9 mnths ('98-'99). I had terrible deep muscle PAIN from the Taxotere during tx and long after. It even occurred at intervals yrs after. My onc confirmed that other patients reported the same thing, yrs after. The same was true of the foggy brain and memory thing, but worsened w/Effexor! I had neuropathy on Taxotere but not w/H. Insomnia across the board, no matter what, as friends who never had bc or chemo are experiencing at this age.

I am sluggish, but take supplements for this that help enormously. SEE *GAINING CONTROL OF YOUR LIFE* THREAD for my list and other important details, please! It's 12 yrs of gathered knowledge and experience I feel compelled to share w/all who'll listen.

Dry eyes started w/Taxotere. I'm talking severe! I had to use REFRESH+ saline drops every hr for wks before the eye pain went away (like ground glass was caught in there). Dry nose, use vaseline at night. Slightly drippy, annoying, mostly when I eat, which is inconvenient. A dab of tissue is good. During Taxotere I had to clutch a tissue every waking hr. I had to keep a ziploc in my bag to gather all the soaking wet tissues from constant tearing running down my face that tickled and drove me nuts! Pp kept thinking I was crying. So many were so kind, even the guy behind the counter at the Motor Vehicle Bureau when I moved from NY to Fla. IT'S OKAY. DON'T CRY. He felt terrible. He thought I was having an emotional reaction, like every did.

My eyebrows never grew back after Taxotere but did after Adria and CMF. My lashes hardly grew back. My hairline is pathetic, like a receding hairline. My widow's peak is gone. My thick wavy hair is gone. Replaced w/someone else's thin, bodyless excuse for hair. But it's hair, and I'm not bald, so I won't complain. Much. Still have dry skin. Use moisturizer lack crazy.

Metallic taste w/Taxotere. Not w/H. NO joint pain and no more muscle pain -- usually, which I attribute to my supplements (listed in detail in GAINING CONTROL OF YOUR LIFE) for those interested.

Nose bleeds w/Taxotere. No more w/H. Echo EF at 50 and holding. Supplements listed keep me from plummeting further I believe. Have doubled my PERFUSIA, explained in my list from nutritional oncologist. The fog is lifting going off Effexor. Who'd have thought that was the culprit?

Onc sent me for Brain MRI the other day. ALL IS GOOD, NORMAL, STABLE. That's a big relief. So -- Effexor. And I may decide to continue on 37 1/2, we'll see because it is supposed to contribute to hot flash relief and because I think I need some anti-depressant to feel more like ME, and because it weirdly has stopped my IBS (which I got from Taxotere, and has stayed w/me all these yrs till Effexor). So that's the good news and the bad. And it's really good to be back on the planet again with all your fabulous Warrior Women whom I've grown to love so.
Andi

[harrie]

For Kat in the delta...regarding the TOPO II and adriamycin. About 20% of br cancer diagnosis are HER2 elevated. Of those, they are either TOPO II positive or negative. If you are lucky enough to be TOPO II negative, then you will not need to receive the Adriamycin regimine. Instead you can go with a taxane such as taxotere which does not have the heart risk that adriamycin has.
I had gone for a second opinion on the chemo issue with Dr. Pegram who works in the same facility as Dr. Salamon. They are both very involved with the HER2 research and herceptin.
Maryanne

[kat in the delta]

Maryanne or Harrie,
Are you one in the same ...or were 2 people on the Hercptin/Tykerb site ?- just wondering.
In that article, I read that of the people with Her2 Positive BC,only 8 % DID NOT / DID have that Topo II genetic factor. Do you know if More " DO" have the Topel IIgene?? --which means they WOULD have to take the ADRIAMYCIN CHEMOTHERAPY ??
I know Adriamy. can caused 5 times the amount of HEART damage,when followed by HERCEPTIN. If your heart's LVF is less than 50 or drops 15 pts, Herceptin should not be given for FEAR of MORE HEART DAMAGE, which if not fixed , could result in a "QUALITY of LIFE" issue. I just read the Package Insert of HERCEPTIN under: "Warnings".-
I did not know this when I was taking it, and never looked at the package insert until NOW after all my treatments are done. I guess I thought the Onc. knew this. I did ask ?'s and even asked several times for my Onc to give me another heart scan- the last months when I was ON HERCEPTIN, but he said I did not need anymore scans..and I always got the same answer: " ARE YOU worried that your cancer is coming back?" I would always anwer, "Yes." Then, my Onc.'s response was always :
"Don't worry...YOU worry too much !!" . ,
I should have switched immediately, but my husband got MAD if I said one negative remark about this Oncologist. My Oncologist NEVER gave me a heart test at the END of my Herceptin Treatments !!! This Oncologist Never mentioned my Heart at all when I complained of pain and showed him the blotchy brown spots on my swollen ankles.. One of the only 2 nurses walked into the room on this visit which was one of my last 2 appointments. She heard me tell this oncologist about my ankles,pain,etc. She told the Onc. that my ankles and feet were very swollen during my Herceptin treatments to collaborate and agree with what I had just said. She told him, "Remember how her(my) ankles and feet were during her Hercptin treatments?" He never said a word... except "YOU ARE going to be Fine, lady."
I think the ONCs will now give Tykerb as the first-line/BASE treatment. WILL you ask your ONC or his associates about this.?..

They seem to be ALL "EXPERTS" on HER2+ positive =breast cancer.
Are they the Originators of HERCEPTIN ? Who is/ARE the originators.. are they even in the GENETECH(DNA) company ?
Does Anyone ON THIS SITE,-- know ?
If these Oncologists, that you see happen to be the originators of the (traszumab -sp?-or better for me to say"Herceptin"), I think they will still keep giving Herceptin as first line/base treatment after a genetic test and a positive Topol II gene in their Her2+ breast cancer patients.
WHY do ONCS in the USA - "NOT" determine the more precise chemotherapy(s) to use by running aGenetic test on every biopsy, in the " first " place??
It is the ONLY LOGICAL THING to DO, as far as I can see.
Is it because the DRUG companies furnish the Oncs some chemos FREE.., which causes a chain reaction for the oncologists and drug companies- BOTH to make more $$$ --as we suffer ...??
IT cannot be because the Genetic test is THAT Expensive..because in the LONG run...
a genetic test would SAVE INSURANCES and the government a lot of $$$ after 1,2, or maybe more years of trying a person out on which Chemotherapy Drug works on each particular person !! What a WASTE of time, suffering and $$$ if this is true.....
What do you think ?
RSVP --(ANYONE to me)= publicly or PRIVATELY.
Kat in the Delta
katcdale@yahoo.com or this site's private messages.
Thanks------------------------- Kat

[theresaw]

What are the blotchy brown spots around the ankles? I have them too but I have been off Herceptin for 8months now...I never mentioned the spots to my Onc because I didn't know if they where caused by the herceptin or not...can someone explain this to me...thank you my her2 sisters..

[kat in the delta]

They are from poor circulation back to your heart...and are iron deposits... probably caused by the herceptin...sometimes you may not notice them until 12 months later.... Do your ankle or feet swell, too ?? Go to a Cardiologist if they do.
kat in the delta

[theresaw]

Yes they do periodically. I will make do that( go see my cardiologist). I had to stop Herceptin before my year was up because of the damage it was and had done to my heart.

[harrie]

I am the same: "harrie" and "maryanne". I am sure you can guess what is my fake name!!
Hope this answers your question, but if you are TOPO II positive, adrymicin is what is recommended over the taxols.
I have an echocardiogram every 3 months due to the herceptin. I had it during chemo and am still having it done with the every 3 wk intervals of herceptin. Basically it checks the oxygen output on the heart. That will indicate damage or not. So far my output is fine. I notice many at this site have MUGA instead of the echocardiogram.
Swelling, edema, around the ankles is a real concern. It may indicate a heart concern. I remember once I had that and they did the echo and at least we could rule out heart problems and then the edema diminished shortly after. It did not last long, maybe a wk or less.
I believe it is very important to ck your heart during herceptin and ESP with adriamycin. I think 3 months intervals is probably the standard unless there is a problem.
Maryanne

[trubev30]

I was on herceptin before I got bone mets but 6 mos into treatment I was hospitalized with congestive heart failure & almost died. I was supposed to be 0n it for a year. It was scarier than the chemo I went thru. The 2nd hospital stay was from a toxic reaction to one of the heart meds. I will forever be stuck with the unenviable title of having CHF. So much for that. My fav song now is "staying alive"
Am on the newest cocktail of Xeloda/tykerb. Hopeful.

[kat in the delta]

Dear ..tube... I have chemobrain..
so I couldn't remember your whole name.. sorry.. but,
How are you doing now? Has your heart recovered? What were your Numbers on the last echo-cardio. you had ?? What was your left Ventricle Output?( not sure of the initials..of the LV...=maybe 3-lettered) but tells you how your heart is functioning... You may have even had a blood test.. that may have detected.. something wrong..like (CHF)let me know....
I agree with Andi that you should get an Echo every 3 mos..but MORE OFTEN if you have problems...like you did.. I think ... some Oncs do not know this and that the Herceptin can be stopped ... or diluted.. for a while.. until your heart builds itself...back up.
I have read recently that , in the long run, the researchers are finding that Herceptin does
more Heart dammage down the road , or (early.).as in your case, ...than they thought..
It may be why I have Chemobrain..
It is Probably the LACK OF OXYGEN to my BRAIN..... from getting the Adriamycin, radiation and then Herceptin..I took 12 weekly.. then 1 every 3 weeks at a strong level for the next whole year.
Now, I cannot even think straight or clean up this house.. I think the MORE of these bad chemos..you get the worse you are.. OR really how these drugs affect each of us personally.
Now, that I have finished the IV's ..(can't remember the date.... but it has been a while now...,
my men(husband& 3 sons), give me these terrible downcasted.. looks of disgust...
I did not choose to be like this.. like THEY think...!!!!!!. I wish I COULD go to work.. but I'd never get there.
It is .so frustrating to be like this !!!
I am unvocused... I am so slow..now. I feel like I am 83..but just 53... I used to go to the gym 5 x's a week....and/or Walk.. I have got to make myself.. somehow get going...little by little.... I think this would help my HEART too.-- better than some unknown 3rd pill as I already take Norvasc..and a diurectic...now...
I do get frustrated..with... ME.. being this way, and with them complaining about what ALL I am NOT doing...
It gets down right oppressive around here.. !!
They want me to be mopping and cooking and cleaning and .. acting like SUPERwoman.. in this messy house. The fact is that ..I can NOT do things as before..,
and NEVER WILL BE THE SAME.!!!

They DO NOT TRY TO UNDERSTAND, and will never understand....
I also think that MDs just give too many RX's...and should give you just one at a time... and look at any other ailments you have had in the past... I have had reynauds syndrome, and I know I do NOT want to be given
a BETA BLOCKER..heart med.
I am NO EXPERT on Heart meds.., though..but read the warning of each heart med. that you are, or were given...
I am so sorry it is in your Bones....
Where and When did the C. appear in your bones.. ???
Hope you are doing better ..heartwise..now. That also scares me more than C., but - you are now the wiser one.. on that..
How are you feeling today ???
I'll keep you in my thoughts and prayers...
R.S.V.P.
Kat in the delta