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04-09-2011, 04:26 AM
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#1
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Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
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Re: Prayers For Sheila
Sheila, I think your middle name must be 'Feisty', welcome back!!!!!!!!!!!
And TriciaK, I think you are just as feisty as Sheila, I think you are great at kicking cancers butt so often, you will find a way around this latest chemo. Very best wishes to you both. xxxxxxxxxxxxxxxxxxxxxxxx
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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04-09-2011, 06:31 AM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: Prayers For Sheila
Again, thank you all so much for the support, love and prayers, there is no doubt in my mind that is why I am still here to type this. Got home late yesterday. The only diagnosis the specialists can come up with was a pneumonia and flash pulmonary edema, a rare occurence from a sudden spike in B/P. As I am piecing more together, I evidently collapsed and quit breathing after feeling like my lungs filled with fluid, and was bagged until the ER when they placed me on a ventilator. Since I am not a fan of vents or helicopters, glad I do not remember anything...I do remember the scary feeling of not being able to breathe as my lungs rapidly filled, and nothing after that. Thank heavens for the Diprovan, which I of course called the Michael Jackson drug they gave me. Go back to see the oncologist next Tuesday, to see if I will stay on the Halaven...i have missed 3 now and my neck is showing it. On an up note, my white counts have recovered quite nicely. Ordered to now keep low key for a while, and hope to get my sea legs back....I feel like I have been drug through a knot hole....so thankful again for all your prayers and support, that is why you are all part of my Her2 FAMILY!, and it is a FAMILY!
Much Love
Sheila
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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04-09-2011, 10:21 AM
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#3
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: Prayers For Sheila
Sheila, just a joy and relief to hear from you. Get plenty of rest....God heard our collective prayers. Ceesun
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04-09-2011, 05:15 PM
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#4
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Prayers For Sheila
I am officially declaring you our Timex Energizer Bunny! You take a lickin' and keep on tickin'!!!!
Hope you can get back on the Halaven and I am awfully glad you are doing so well. Love ya.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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04-10-2011, 03:39 AM
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#5
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Prayers For Sheila
Glad to have you back on board. We were all really worried but sooooooooooooooo happy you're on the road to recovery!!
Ellie
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04-10-2011, 11:24 AM
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#6
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Senior Member
Join Date: Mar 2010
Location: Thornhill Ontario
Canada
Posts: 266
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Re: Prayers For Sheila
Sheila so great to see you right back at it posting and giving us the update. You are amazing and your fighting spirit and strength is oh so inspiring. I have thought of you often and I feel as though you have these big soft angel wings softly encircling you. So glad to see you back. Best wishes Shiela.
__________________
August 2008
Lumpectomy left breast
1 tumour 0.9 cm
Her2 negative
lymph nodes negative
venous/lymphatic invasion absent
ER+PR-
Stage I Grade 2
Radiation and Femara
November 2008
Lumpectomy right breast
2 tumours .03 cm and .05 cm and extensive DCIS
.05 tumour Her2+
lymph node negative
venous/lymphatic invasion "indeterminate"
ER+PR low postive
Stage 1 Grade 2
January 2009
bilateral mastectomy
chemotherapy taxotere
Herceptin one year
Femara
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04-10-2011, 03:04 PM
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#7
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Senior Member
Join Date: Aug 2006
Posts: 492
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Re: Prayers For Sheila
Sheila, wishing you boring but blissful days ahead, too much excitement there for you 
Glad you are home and best of luck on your upcoming appointment and treatment!
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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04-10-2011, 03:06 PM
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#8
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: Prayers For Sheila
Fantastic to hear from you. Hope recovery continues apace.
Trish
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04-10-2011, 03:17 PM
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#9
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Prayers For Sheila
Great to hear you bounced back! Keep bouncing back, but please remember you don't have to prove anything to us. So enough already with the heroics! You scared us with tales of helicopters and ventilators.
Keep getting better & may the Halaven work it's miracle once more.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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04-23-2011, 10:22 AM
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#10
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Senior Member
Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
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Re: Prayers For Sheila
Wow! what a story to read....a cliffhanger really! Those doctors that thought you wouldn't make it just simply don't know you - a tough fighter who has been at it a long, long time! So grateful this story has a good ending and will continue! Keep going Sheila! And thank you Jen for your posts, that was a wonderful thing you did!
Love to you, Donna
__________________
Donna in the Sierra Foothills of California
Diagnosed 6/7/06 invasive ductal carcinoma/ductal carcinoma in situ
Lumpectomy 6/21/06
Pathology: Er 99% Pr 10% Her2/neu 3+
DNA Index 1.0
S-Phase 3/High
Primary Tumor 2.4 cm Sentinel Node Tumor 2.1cm
A/C/T+ Herceptin + rads + Arimidex
stopped Herceptin after 7 mos. due to low MUGA
Surgery for thickened uterine tissue May 2008 - conclusion: side effect of Arimidex
Switched from Arimidex to Femara - joint/tendon problems significantly better!
2 year mark Pet scan and Echo shows all clear!
5 year mammogram with ultrasound shows no sign of cancer - yay!
11 years, 11 months new breast cancer - found lump
Mastectomy 4/30/2018
Pathology: Er99%, PR 28%, Her2 negative! (new type)
Faslodex
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04-23-2011, 08:40 PM
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#11
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Re: Prayers For Sheila
Sometimes I am afraid to check in on the forum for fear of finding out something too sad. However, if I don't check in from time to time I also miss the wonderful postings as well. Sheila, no more scares please. You are way too important to all of us here and mean so much to all of your sisters here. Please get stronger with each day and fight with all I know you possess. You are one of the strongest and most positive person I have had the pleasure of meeting. Get well quick so we can finally get back to lunching again, been too long. You are in my prayers. Thanks Jen for doing such a great job at keeping everyone up to date but so sorry you had to do so. Sheila we are all rooting for you and I know you are going to bounce back in record time.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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04-24-2011, 09:26 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Re: Prayers For Sheila
Sheila, you have soooo many people sending prayers and well wishes by the ooodles. So good to hear that you are on the mend. Rest lots, and take care of yourself. Happy Easter!
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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04-25-2011, 07:23 AM
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#13
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Prayers For Sheila
Thinking of you Sheila, and hoping that you are gaining strength daily.
Barb A.
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04-25-2011, 05:36 PM
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#14
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Prayers For Sheila
Talked to Mom earlier she said she thought she had a fever and was feeling "achey" my sister just called and said Mom went to ER to get checked out. She is stable hopefully they will do labs and figure out whats going on. Please continue to keep her in your prayers. Thank you~Jennifer
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04-25-2011, 10:41 PM
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#15
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Prayers For Sheila
Rats! I was hoping she would continue to get better. Let's hope they fix whatever is ailing her soon.
Sending healing vibes and energy.
Thank you for letting us know. We care.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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04-26-2011, 12:05 AM
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#16
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: Prayers For Sheila
Jen, thank you for giving us news. Not ER again! I hope it is nothing and that the fever will fade away. Please tell Sheila we are all thinking of her hoping to see her next post. Sending love and hugs. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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04-26-2011, 02:48 AM
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#17
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Prayers For Sheila
I hope it's nothing serious...maybe just needs a few antibiotic's or something. I sure know alot of ppl that have been sick lately...maybe she picked up a bug of some sort? Plus I don't think Shelia ever stops does she. Maybe this will force her to rest! I will be keeping her in my thoughts and prayers. Get well sooon Shelia. Sending lots of love and hugs. Jen...thank YOU so much for letting us know about your Mom. We so appreciate it.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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04-26-2011, 03:57 AM
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#18
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Prayers For Sheila
Praying for Sheila this morning. Please God give healing and rejuvenation to our special Sheila.
Love you Sheila.....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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04-26-2011, 08:12 AM
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#19
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: Prayers For Sheila
Sheila.....
much love and many prayers, as always!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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04-26-2011, 08:26 AM
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#20
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: Prayers For Sheila
Thoughts and prayers from me Sheila. Kick this to the road!
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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