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Old 01-28-2009, 07:06 PM   #101
Bill
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Freyja's Family! Welcome! Thanks for joining us around the bon-fire and keeping us posted. Please let Celeste know that we've pulled up a special chair close to the fire for her, with a warm blanket and a pillow for her to snuggle against.
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Old 01-28-2009, 10:09 PM   #102
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Welcome, Freyja's family - now you are also part of the big family here. Be sure to send her our love. The next couple of days she could feel some discomfort. Be sure to take the pain medicine on time.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 01-28-2009, 11:51 PM   #103
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Welcome from me too, Freyja's Family! So good to hear from you!
Please tell Freyja, that we are holding her seat by us waiting for her return.
Wishing her well.....
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 01-29-2009, 05:43 AM   #104
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Glad to hear from Celeste's family about her.

Amelia
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Old 01-29-2009, 07:24 PM   #105
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Thumbs up The new me is here

Howdy folks,
I'm back, new and improved. Thanks for holding down the fort. Glad you heard from my hubby...so sweet. Good thing he eventually noticed he spelled my screen name wrong! He gave me your messages when I awoke. Thank you so much. You've all made this so much easier.
Thanks for the cozy seat! I'll give it up for Laurie when she brings the new baby! I'm gonna "kick" a log on the fire for her and everyone here.
I'm so relieved to be through the hard part. I was always told I was a warrior. Now I feel like one and have the scars to prove it.
Love, C
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"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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Old 01-29-2009, 08:42 PM   #106
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Smile

And beautiful warrior scars those are, Celeste! Thinking of you tonight and gathering some of your strength (maybe we can bottle it) for the roads ahead. I'm so thankful you are doing well and that we have heard from you. Your family has been wonderful here by the campfire...and now here you are, all together. The fire burns sweeter and warmer now. Love, Vickie
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Love and Hugs, Vickie

Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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Old 01-29-2009, 08:44 PM   #107
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Look up into the night sky and you can see the moon and Jupiter together. It looks like someone is smiling and winking at you. The universe is smiling at you at letting you know everything is going to be allright.
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 01-29-2009, 09:09 PM   #108
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Wink The Campfire

Welcome back Celeste !! Bring your family to the campfire anytime they want to come. Take care and eat healthy, so you can get stronger every day.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 01-29-2009, 11:33 PM   #109
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Lee, went out tonight to pick some lettuce for our salad and I saw the moon and Jupiter alone together in the sky! Was a beautiful sight!

Celeste....good to have you back with us again. You did it! You are great, you are tough, and you are beautiful!!
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 01-31-2009, 09:16 PM   #110
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Wink The Campfire

Is the lettuce the lettuce you started planting when we all started spring gardens?
Can you please bring a nice big salad from your garden the next time you join the campfire?
Let's have a pot luck party at the campfire.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 01-31-2009, 09:36 PM   #111
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Are you sure it's Jupiter? I thought it was Venus, but I don't know that much about stuff like that.
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Old 02-01-2009, 01:47 AM   #112
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I have really no idea if it was Jupiter or another planet. All I know is I saw the moon and one planet. Whatever it was...it was nice. I just said Jupiter because that is what Lee said.

And yes Elaine, that it is from the veg garden that I started in the spring.
we have expanded to: bellpeppers, won bok, several types of lettuce, tomatoes, snap peas, soy beans, string beans, spinach, grn onion, cukes, basil, and who knows what else....
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 02-01-2009, 11:33 AM   #113
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Wink The Campfire

Oh boy Maryanne you are the champion gardener over there in Hilo. Just add rice and you have the whole meal !!
Our campfire burns so brightly and our strong spirits shine so much light nobody can tell what is in the sky.
That is okay !! We are here warm by the fire and that is what matters after all.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 02-01-2009, 02:35 PM   #114
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Anybody familiar with the story of 'stone soup'?

Well, I just put a huge, big pot on top of the camp fire - with plenty of water and a big, shining stone. Let's see, I can use all the vegies Maryanne and Elain just mentioned. It will taste so good if I could just have some kind of spices...
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 02-01-2009, 03:49 PM   #115
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yawn

Hi friends,
I'm here in my lounge chair, ready for a nap! I feel great, except for these drains. They should be taken out in a couple more days and I'll be ready to start gardening and add to the soup. For now I'm just observing the world from my little nest here barking orders at people. Thanks for the entertainment.
Love, C
__________________

"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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Old 02-01-2009, 05:52 PM   #116
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No need for gardening, just bring whatever you have...

The Stone Soup Legend

There exists a tale, handed down from times long ago, of two travelers on a pilgrimage. Hungry and tired from a long day’s journey, they come to a small, impoverished, medieval village, where they decide to rest by the side of the road.

One of the travelers builds a small fire, upon which he places a large pot, while the other, having drawn water from the town well, fills the pot and places into the vessel a simple stone. As the two men sit by the fire, bringing their "stone soup" to a boil, the local villagers become inquisitive of the curious antics of these strangers. Eventually, several townsfolk decide to investigate the matter and approach the two travelers to engage them in conversation.

Shortly thereafter, there is heard the sound of merriment, as the visitors, who turn out to be quite friendly, share their tales of the lands and people they have met throughout their journey and pilgrimage with the local villagers.

Finally, a young boy asks the travelers "But why, pray thee, are you boiling a stone?"

One of the pilgrims replies, "So we may eat stone soup."

"It must be terribly bland!" says an old woman. "But I have a cabbage, which will add some flavor!"

"And I, some carrots, which will add color!" says another villager.

"Some potatoes!", offers another, until, shortly, by the contribution of a little by many, a hearty stew was made, upon which the entire village and the weary pilgrims dined... and while doing so, shared their tales, talents, and camaraderie throughout the night.

The very next day, the travelers (who by now could be called "strangers" no more), continued their journey, leaving the little town, and its people, behind. But the villagers never forgot them, and the lesson they had learned. In fact, during the hardest of times, in such a time as this tale, that little village thrived, because the townsfolk never forgot how to make "stone soup".

Such is the legend of the "Stone Soup Story".

[A Swedish fairytale posted on a Japanese website: <www.kousi.gr.jp/kousi/syoukai/hp-siryou/stone-soup.html>]
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-01-2009 at 06:02 PM.. Reason: Give source
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Old 02-01-2009, 08:40 PM   #117
ElaineM
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Wink The Campfire

What a beautiful story Jackie !! We need stone soup.
The nourishment of the stone soup, the warmth of the fire, the lights of our spirits and the flames and the fellowship of each other is a great combination.
Enjoy all the TLC while you can Celeste.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 02-01-2009, 10:44 PM   #118
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Celeste, enjoy the pampering and relaxation because before you know it you will be back to running around like crazy!!
I know what you mean by the drains. But....to look on the other side of the coin....at least it can be a gentle reminder that for now, it is ok to be pampered and you should enjoy it. You deserve it.
BTW, it is really nice having you back at the fire with us.
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 02-02-2009, 01:30 PM   #119
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i'd like a nice warm campfire right now. i am so sick of snow and winter.
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 02-02-2009, 04:48 PM   #120
Bill
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Thanks, Jackie! What a nice story. Here's some fresh oregano for the pot.
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