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02-04-2011, 01:40 AM
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#61
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Senior Member
Join Date: May 2006
Posts: 157
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Re: Help! Brain mets besides lung mets
Update on Xknife
Hi, my friends,
I had the xknife procedure this Wednesday morning to burn the 3 tumors, and I stayed there for 12 hours. What a long day.
First they attached a light metal mask to my forehead and the back of my head. I heard that the needles are the most painful, but it was not that bad at all, and the screws are not bad either, no headache, very duable, and I stayed with the mask all day long until around 7 pm. I was sleeping on and off during the actual procedure, and I'm still tired, but getting better. I'm still on decadron and now on Keppra too, anti-seizure medication for 3 months. Is is anybody on it?
I will see my radiation oncologist in two weeks to see how things are going. Praying for the best.
Thanks again for your prayers, help and kind words.
Love you all.
KarlaV.
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02-04-2011, 10:57 AM
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#62
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Senior Member
Join Date: Oct 2010
Posts: 229
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Re: Help! Brain mets besides lung mets
So glad to know you made it through. I will be praying your recovery is quick and easy. You are very brave to be dealing with this so well!
__________________
Diagnosed: Feb 2010 @ 46 yrs old
Invasive Ductual Carcinoma, left
2/28/10 Bilateral Mastectomy (tissue saving for future reconstruction)
3.2 cm 2/18 +lymph nodes
Stage 2b; E+/P+/Her2 +++
Nottingham score grade 2
Ki67 30%
3/2010 A/C 4 DD/2wks
5/2010 Herceptin/Taxotere 4D/3wks
8/2010 Herceptin until May 2011
Tamoxifin 20mg
9/2010 RAD 34 treatments
Pet scan Aug 2010 clear
Port removed July 2011
Bone scan, chest MRI 12/11 clear
Vaccine trial began Oct 2011
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02-04-2011, 04:04 PM
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#63
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Help! Brain mets besides lung mets
Karla,
I'm glad that the procedure is over and the three tumors were zapped. You've had a long day. Now take some time to relax and pat yourself on the back for a job well done.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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02-04-2011, 05:23 PM
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#64
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Help! Brain mets besides lung mets
Karla,
Glad this day is done and you can rest and just wanted to send good wishes to you x
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-04-2011, 05:47 PM
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#65
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: Help! Brain mets besides lung mets
My thoughts and prayers are with you, what a trooper
you have been. I read all the posts just today as I had
missed them. Take care and keep your spirit going.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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02-05-2011, 03:29 AM
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#66
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: Help! Brain mets besides lung mets
Great stuff Karla you give us all hope.
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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02-05-2011, 04:12 AM
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#67
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: Help! Brain mets besides lung mets
Karla, I'm happy it's behind you. What a day! Now that these tumors are zapped I am hoping you will have a quick recovery and only good news in 2 weeks. Hugs for being so brave! Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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02-05-2011, 09:18 AM
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#68
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: Help! Brain mets besides lung mets
Great Job!!! Now rest and recover. Sending you my best wishes. Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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02-06-2011, 12:26 PM
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#69
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Senior Member
Join Date: Jul 2010
Posts: 42
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Re: Help! Brain mets besides lung mets
Hi Karla,
Great to hear that you had a successful X-knife. It was indeed a long day for you. When I had my Gamma knife, it took 6 hours overall and I felt exhausted afterward. My pin sites on forehead are still painful now when I touch/press on them- . Glad to know you tolerated those well. Love, Grace
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07-19-2011, 06:52 AM
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#70
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Member
Join Date: Dec 2010
Posts: 11
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Re: Help! Brain mets besides lung mets
Dear Karla,
God bless you for your courage in fighting this disease. Know that God will never let go of your hand. I pray that the results will be good.
One day at a time.
Elizabeth1227
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07-20-2011, 06:58 AM
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#71
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: Help! Brain mets besides lung mets
Karla - how are you doing? ???
Could you give an update? :-)
Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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