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01-23-2007, 07:53 PM
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#41
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Junior Member
Join Date: Jan 2007
Location: Ohio
Posts: 3
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Every three weeks, triple dose
Hello. I have never commented in here before. Although new to this forum, I am not new to Herceptin or breast cancer. I was diagnosed 4 years ago today with stage 4 breast cancer, with liver mets. I was given 18 months. That was 4 years ago. I started a strong regimen of chemotherapy, starting with 5FU, Epirubicin and Herceptin for 12 rounds, then Taxotere and Gemzare with Herceptin for 12 rounds, followed by Carboplatin and Cisplatin with Herceptin. It was a long year. Then 30 rad treatments. I never had a mastectomy or lumpectomy. They figured since I was stage 4, why bother I guess. Anyway, I have been having Herceptin every 3 weeks, (528) for the last 3 years. I have just started having a type of allergic reation to it though, and was wondering if anyone else experienced it. My blood pressure either drops, or raises. Then I spend the next 3 days with sore bones and headaches. I'm in bed right now actually! Had treatment yesterday and blood pressure sky rocketed. Doc makes it sound like Herceptin is no big deal...it's not "chemo"! Have had MUGA every 3 months, stats are still good 52. Just getting harder and harder to deal with side affects.
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01-23-2007, 09:31 PM
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#42
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Senior Member
Join Date: May 2006
Posts: 144
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I'm just finishing up a year of weekly Herceptin. My blood pressure has increased on it and I have bone & joint pain.
I don't know if putting you on a weekly or biweekly dosage would help.
I take tylenol every day for aches, and also glucosamine.
Maybe you would be a candidate for Tykerb.
- Anna
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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01-23-2007, 09:34 PM
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#43
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Junior Member
Join Date: Jan 2007
Location: Ohio
Posts: 3
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Tykerb
That is a possibility. I would have to do some more research on it. Although I live in Ohio, my complete treatment is dictated by a Doctor in Longbeach, California. Perhaps I should contact him about giving it a try. I must admit, the bone pain is getting old.
Thanks for the fast response. I wish you the best.
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01-23-2007, 11:30 PM
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#44
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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I had A/c every 2 weeks. Is that dose dense? Then I had Taxol every two weeks. Total of 8 treatments over a 16 week period. Then surgery. Started Herceptin after radiation. Get Herceptin every 3 weeks.
I find it interesting that some people get Herceptin and Taxol together. This option was never mentioned to me.
Catherine
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Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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01-24-2007, 07:27 AM
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#45
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Senior Member
Join Date: May 2006
Location: Mesa, Az
Posts: 219
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Every week
I received taxol, carboplatinum,and herceptin weekly for 3 weeks then herceptin only for 1 week for 6 cycles, now I receive my herceptin only 1 per week.
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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01-24-2007, 07:55 AM
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#46
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Steph...
No, I'm not, just curious. Don't really know what point a chart would be as treatment is ALWAYS changing and what we had is now obsolete. Take care and God bless.
rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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