| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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07-17-2009, 09:33 PM
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#1
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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i think it's so cold here right now i'd be laying in the fire. we might set a record low high temperature tomorrow. feels more like october than july!
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-17-2009, 10:57 PM
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#2
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Freyja girl....come over here with your hammock, Mighty Oak is singing again. It is very sedating. Not to mention we have to guard Juanita, can't have her in the fire. (lol)>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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07-18-2009, 08:12 AM
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#3
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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hey what happened to this global warming they keep talking about?
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-18-2009, 02:05 PM
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#4
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Juanita, I think we will have to head west for that heat you speak of. I was just going to relax with some hot stones on my back but I am afraid of removing my sweatshirt....yes, I said sweatshirt. I am not complaining though, my head, neck and back get really bad in the heat and humidity and migraines come 3-4x per week for certain. So far this season has been half way decent for the body.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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07-18-2009, 02:12 PM
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#5
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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No kidding Juanita....Global warming, ya right? The temp. (for the high) today and yesterday is a whoppin' 64 degrees. Oh well...could be worse....tornadoes...hurricanes....earthquakes! So, will not grumble over these temps (or I'll TRY not too. ) PLUS like Marie said...some people do better with cooler temps... so.... for those folks we'll be happy  )
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
Last edited by Mary Jo; 07-18-2009 at 02:14 PM..
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07-18-2009, 04:01 PM
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#6
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
I have been here behind a few trees in my hammock. I just woke up and since I am getting my lunch out of the cooler I will share it with you guys. Anyone for a Tofuky sandwhich, vegetable drink, and some yoghurt with blueberries and knox unflavored gellatin I made with natural fruit juice?
Maybe Mighty Oak will be in the mood to sing us all to sleep for a nice afternoon nap among the beautiful trees.
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07-18-2009, 07:44 PM
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#7
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Elaine, that sounds delicious, except for the Tofuky part, unless there's some bacon and barbecue sauce involved, no offense. I just threw a few sticks onto our fire. I lit off some fireworks a few hours ago, and not on the 4th of July, like I wanted to, because Joe told me that if I wasn't careful, I'd blow my fingers off. That'll get a man to thinkin'. Anyhow, everything went real smooth. We had a great time!
__________________
For Nicola
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07-20-2009, 05:53 PM
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#8
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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it's warmer here now so i don't have to lay in the fire anymore. that was starting to get a little hot.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-21-2009, 03:12 PM
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#9
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Did you write lay "in" the fire? Oh please don't do that !!
I found a lake quite a walk away for those who need to cool off. I sure wish Bill would hook up some kind of portable shower behind those trees over there or set a backyard swimming pool full of water on weekends for those of us who want to stay close and cool.
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07-21-2009, 03:33 PM
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#10
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Mmmm, thanks for the oatmeal and wonderful garnishes, Elaine! Don't worry, I'm working on the hot shower for our campfire. It will be located behind the boulders to the northeast of of fire. Thanks for tending to our needs.
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For Nicola
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07-21-2009, 09:05 PM
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#11
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Oh. Thank you so much for the shower Bill !!!!!! You are so sweet.
I have very happy memories of taking outdoor showers at my friend's place on the Big Island. It was so refreshing to take showers with a view of big pine trees. Yes. We have pine trees in the higher elevation of all islands.
I will try to make breakfast again next Sunday for you guys.
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07-23-2009, 10:06 AM
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#12
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
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I've got some figs from my backyard. Anybody cares for some?
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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07-23-2009, 03:31 PM
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#13
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Can I have a couple figs please? I haven't them in a long time. Thanks.
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07-26-2009, 10:07 AM
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#14
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Okay Guys!! Breakfast !! There is some hot water on the fire. There are some cups, tea bags and instant coffee over there. I brought fresh bagels, freshly ground nut butter (no added oil, just ground up nuts), vanilla yoghurt with macadamia honey, and freshly made papaya orange juice. Eat up and enjoy !!
I will be enjoying mine over there by my hammock under the trees. Take a break from building our shower and have some breakfast Bill. We are all looking forward to a nice shower later.
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07-27-2009, 11:56 AM
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#15
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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cleaning up the yard from the last good winds we had and have LOTS of small limbs to throw on the fire.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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08-07-2009, 11:14 AM
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#16
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: The Campfire
I just put a few small twigs on the campfire to keep it going, but not too hot to sit around. Now I am going over to my hammock under the trees where it is nice and cool to take a nap. I am going to see if Bill finished the outdoor shower when I wake up from my nap.
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08-09-2009, 06:42 PM
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#17
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Re: The Campfire
Elaine,I came to the campfire tonight because i know I can always find you here, keeping the flame going. Just wanted to share some fresh peaches with you, throw on a few logs, and tell stories of hope and encouragement and mostly to thank you for keeping our flame alive and burning (even when you're asleep in the hammock!).
Much love and hugs,
Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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08-28-2009, 08:34 PM
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#18
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Re: The Campfire
Who's got a good ghost story? I know we're burning our fears away...but maybe a good spook story would be the perfect distraction from them.
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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08-30-2009, 04:02 PM
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#19
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: The Campfire
Hold that thought. Ghost stories would be good in October around Halloween. I can share one from where I live. It might be chilly enough to gather enough people around the campfire then too. We could imagine all kinds of scary things in the woods. Oh did I scare everybody away with that comment?
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09-04-2009, 05:02 PM
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#20
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Re: The Campfire
Building up the fire for Ed and Marie tonight. Big hugs to you guys!
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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