Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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04-23-2009, 08:56 PM
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#381
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Just dropping by to sit awhile and leave a bag of fresh spinach from my garden for whoever wants it.
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04-24-2009, 11:16 AM
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#382
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Man I am in the mood for some junk food. I have some tiny kosher hot dogs to roast over this fire and I am willing to share. Sure could use a beer here! Maybe even some pickled eggs!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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04-24-2009, 12:19 PM
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#383
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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I second the junk food. I wonder what happens when you warm spray cheese on the fire? Everyone who isn't real brave or real stupid (sometimes there is a thin line between the two) better back away.
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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04-24-2009, 04:23 PM
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#384
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Why don't we splash out, live dangerously and have some fries, sausages and ketchup mmmmm????
Followed by some apple tart which I've freshly baked, now if some one brings the cream
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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04-26-2009, 04:33 PM
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#385
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Y'all are making me hungry again. Aaaaaaannnndddd, if you recall, the campfire is very close to a beautiful mountain stream. That's why I keep slipping away every so often to check my lines. And, I've got a great recipe for pickled eggs, WOS, if you want it. Hope everyone is having a peaceful evening.......
__________________
For Nicola
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04-26-2009, 04:36 PM
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#386
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Bill that would be great. I love trying new recipes! I haven't had a good pickled egg in a lomg time.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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04-26-2009, 06:06 PM
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#387
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Hahaha....then you guys will not mind if I stay waaaaay over here right?>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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04-26-2009, 08:46 PM
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#388
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
That's okay Marie. I will make us a nice omlet over the fire.I like mine with fresh veggies and rice. I will add a slice of cheese once in awhile. If you would like some potatoes please bring some.
What kind of fish do you get in that lake Bill?
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04-26-2009, 08:57 PM
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#389
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Whewww.....Good save Elaine, you always come to my rescue and I really do not know what I would do without you.
I have brought some Lyonnaise potatoes for us since we are doing French tonight. I also made some of my famous crepes and fresh berries for us to nibble on.
On my back I have one of Ed's Stratocaster guitars, I am hoping it distracts 'Wild Bill'. Where is Harrie? I miss her musical talents and she is just the one to keep Bill under control.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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04-26-2009, 11:01 PM
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#390
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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I wouldn't mind a nice fat juicy hamburger, fries and a choc shake!
WB!!! I hear your bell ringing!! Let's all run over and see what he's bringing in!!
Marie, is Ed a musician? Both my husband and daughter have stratocasters. My daughters was made in Mexico, my husbands in Japan.
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
Last edited by harrie; 04-26-2009 at 11:07 PM..
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04-26-2009, 11:34 PM
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#391
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
|
Harrie, my husband is very musically inclined and has always made the music come alive for me. He has an antique folk guitar from his grandfather that he holds dear. When we first started dating he had just moved from California and was living with his Mom. On a night I went over to visit he took me into the music room which housed instruments that cost more than my car. We sat there while he sang a song about me, had my name in it and everything and I felt so special. As time went on I missed my song and asked him to sing it to me as he played his guitar again........he told me that he gets into playing and the music just flows to his head, his fingers just move. This was just the feelings he had that moment. All that time I thought he had spend time writing something special for me.....well he did...that moment, wish he wrote it down. I was comically crushed (smiling fondly).
Now let me get to making you your hamburger, that story must have made you hungry. Want to try a coffee shake? In Rhode Island we have a company that makes coffee extract and we put it in milk like others use chocolate. Even if you are not a coffee drinker it is good. I also have a company started in RI that is called Del's Lemonade, they make an awesome slushie-type frozen drink in lemon, watermelon, cherry and blueberry. Mmmmm, thank goodness summer is on the way!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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04-27-2009, 12:00 AM
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#392
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Marie, Ed sounds very talented! Is this a hobby of his or is it his profession? My family is very much in to music also. Our living room is transformed into a music room with guitars, amps, drums, keyboard, etc. My daughter was just in India and while at the ashram, she and her friend wrote music and later had it recorded in Mumbai.
Those drinks sounds awesome!! I am ready for my burger now and that coffee shake sounds great!!
That slush sounds REALLY GOOD TOO!! I think I would like a green apple if avail!!!
Marie, is that you in the pix? Very cute pix!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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04-27-2009, 12:16 AM
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#393
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
|
It was a profession but mostly a hobby now, actually he does not play as much as I would like to see him play. I am sure after this chemo kicks the cancers tail he will resume.
Your daughter sounds like someday she will be famous. Music is such a powerful way to express oneself and a talent that keeps on giving....forever. Someday we will have to leave the campsite long enough to spend some time in your living room. Do you think she could write a song with my name in it? (LOL)
And yes to the picture, that is little 'ole me at one of Ed's and my walking spots, woods and the ocean in the same coastline. If I can ever learn how to put pictures in my posts I would like to share some pictures. I'm getting there though.
Close your eyes, taste this......smell it? I made it special for you.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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04-27-2009, 12:34 AM
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#394
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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HHHmmmmm Marie......YUMMY!!!!
The song she wrote at the Ashram is called Karmas Best Idea. Wish you could hear it.
Marie, you look like you are about 30 yrs old if that!!
If you don't mind me asking, do you know if Ed is a carrier of BRCA?
Going to bed now....goodnight Marie and sweet dreams!
HarrieCanarie
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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04-27-2009, 11:12 AM
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#395
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hey Harrie -
Can your daughter put her music on You Tube? Al from Canada's son had his group's songs up there. It was fun to see it, although I am not a You Tube junkie, I will go to see something interesting I am directed to.
Or perhaps her own web site?
Your living room sounds like my nephew Shane's. He has at least 10 different guitars, plus keyboards, my brother's drums and other various items of music. He has a very nice wall mounted rack for his guitars. His stepson is only 6 and is taking to the guitar like a duck to water. Such a cutie with that adultsized guitar!
Yes, let's have some music for the flames to dance to. Might be kind of hypnotic ...
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
Last edited by StephN; 04-27-2009 at 09:09 PM..
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04-27-2009, 08:14 PM
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#396
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Yum. Those crepes and berries are delicious. I could go for a coffee shake or smoothie. Sounds terrific. I think I will try to make one.
I will bring one of my smoothies next time. I make all kinds of fruit smoothies and mixed veggie juices.
Good idea Steph. Harrie please ask your family to put some of their music on Youtube.
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04-27-2009, 11:56 PM
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#397
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Steph, I will ask her if she is on Youtube. I doubt it though. She is on Facebook and Myspace, but I think you need to be her friend to view it.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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04-28-2009, 08:32 PM
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#398
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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At night, we fish for cat-fish (steak of the sea) in the deeper pools and during the day we fly-fish for trout in our little stream by the campfire. Just close your eyes and lay back and listen to the crackling fire and the water tinkling over the rocks nearby. This is your time, and nothing and no one can take it. It's yours. Let the aroma of sweet-grass and pine and good foods fill your nostrils, as the hearty laughter of true friends merges with the sounds of the sweet Earth. Peek at the star-filled sky as the fire pops and crackles and sends our fears and concerns skyward to merge with the glory of the heavens. It's ok to doze and dream by the warm fire. Your friends will watch after you.
__________________
For Nicola
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04-28-2009, 08:40 PM
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#399
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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"Aunt Betty's Rosy Pickled Eggs" 2 cups water, 1 cup beet juice,1 cup vinegar, 1 clove garlic,1 bay leaf, 2 Tsp pickling spices, 12 hardboiled eggs, 1 onion (rings). Just mix it all up and refrigerate for several days. I like to throw a whole can of small beets in it and pickle them and eat 'em too. Go to the store and buy a very large jar of dill pickles and eat them all up as fast as you can with a little cheddar cheese while you watch the game, and then after washing the jar and lid, you have your pickled egg jar. Try it and let me know!
__________________
For Nicola
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04-28-2009, 08:40 PM
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#400
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Yes. It is lovely to get away from the city and enjoy nature where we can let our concerns go up in smoke while we relax with friends and enjoy nature as we sleep, eat and enjoy the natural environment around us.
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