HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 05-30-2012, 07:20 AM   #21
NEDenise
Senior Member
 
NEDenise's Avatar
 
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Dating when Stage IV

Marie,
In the spirit of full disclosure...I haven't been on a first date in over 30 years.
That said...my advice is...go for it! You deserve fun as much, and maybe more than, any woman your age. You are lovely, charming, warm, and you have a terrific sense of humor! What man wouldn't want to spend time with you!?

As many of our friends have queried...why do you want to date?

If it's for fun and companionship...

...then, I think you should tell your new 'friend' about your cancer on the date after the one when you reveal your annual salary, and your weight...which is to say, on the first Tuesday after NEVER!! He's not going to pay your bills or take care of you physically, so it's none of his business!

If however, you stumble across a gentleman that you find you'd like to spend your life with...

...then he has a right to know what he's signing up for. He needs to know how vastly underpaid you are (aren't we all) and, how many extra pounds you're carrying (you can safely shave a few off - and still feel honest). If he's sticks around after those two tidbits...then, and only then, you might want to share your diagnosis.

That's just my opinion...I could be wrong.
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
NEDenise is offline   Reply With Quote
Old 05-30-2012, 10:38 AM   #22
greenacres
Senior Member
 
greenacres's Avatar
 
Join Date: Jan 2010
Location: Wisconsin
Posts: 80
Re: Dating when Stage IV

I also say GO FOR IT - do you what you feel is right in your heart, be upfront and honest and I agree that if they can't handle what you are going through, they don't deserve you!

Jacqueline, you story of the man you met is very heartwarming!
__________________
Sandra from WI
Stage 1, Tumor 1.4 cm, Grade 3, ER-/PR-/HER2+++
Poorly Differentiated IDC with comedo type necrosis with DCIS/ALH :(
Mammogram: 11/12/09
Call Back Mammo: 11/17/09
Biopsy: 11/25/09
Diagnosis Call: 12/2/09
Partial MX: 12/16/09. 3 LN clean.
6 Cycles Chemo (TCH) Jan-April/10; Herceptin all of 2010; 33 Rads complete 7/10. Herceptin done 12/10.
FOLLOW UPS:
Bil mammo, and Breast MRI 12/10 - CLEAN! (after a second lump was biopsied and BENIGN - showed giant cell reaction?).
Bil mammo 6/11 - CLEAN!
Left mammo 12/11 - CLEAN!
PET/CT scan 4/6/12 - CLEAN!
Bil mammo 8/12 - CLEAN!
November 2012 - Gallbladder Removed.
Bil MRI 2/13 - CLEAN!

http://www.caringbridge.org/visit/sandragreen
greenacres is offline   Reply With Quote
Old 06-01-2012, 08:23 AM   #23
Bunty
Senior Member
 
Join Date: Jul 2011
Location: Sydney, Australia
Posts: 473
Re: Dating when Stage IV

Where is the "Like" button??? I like so many of your replies - they have provided me with much food for thought, strategies, smiles, and hope! This is the kind of conversation I would love to be sitting with you all over a glass of wine sharing our stories face to face - I'll just have to imagine that's the way it is.

A number of you have asked 'why do I want to date'? I'm not sure I have an absolutely clear answer, but as I said in my original post, intimacy (physically and mentally), is something that I'm seeking. I have some very close friends (female and male), and we are very close and they would do anything for me, but it's just knowing that there is someone who will be there for the good times and the bad. And yes, I've been in a few very long time de-facto relationships, and I know it's not always that 'dream'. (Also, I think my friends might not be that keen on the physical intimacy side of things - there's only so many things you can expect from your friends!)

I see the merits in your opinions about when to disclose, how much to disclose, etc. Denise, you are funny, but it does make sense when you liken it to salaries etc. It's just I think there will be some questions, as my port is quite prominent, and unless I want to dress like a nun for the next few months, I may have to be ready with some replies. (Thank goodness we are heading into winter!) But at the end of the day, I'm aiming to keep it fun and easy going to start with, and just play it all by ear.

I suppose I would like to meet someone to share big ideas with, and also importantly the small stuff too. I'm not lonely by any means, but just want a change from being alone. Lately I've been thinking of taking up some new interests such as going back to doing some charity work, or going back to study a little more philosophy. I have wondered whether this interest in dating again might be linked somehow - that it's an adventure, and something to take an interest in.... I'll have to think about that more as it's probably not the best intention!

Anyway, I've done a 360 degree turn on my online dating profile this week and radically re-wrote it, and then activated it tonight before I went to a book club dinner party. I'm home now about 6 hours later, but I'm not checking in until tomorrow!

Amy, you are right about it being like a resume - we really do sell ourselves all the time I reckon in life, either consciously or unconsciously. And there's the start of possibly another big conversation about co-dependency etc, but I'm going to bed!

Good night!
Marie
__________________
dx Dec 2000 dcis 2.5cm clear sentinel node, ER/PR- Her-2+
lumpectomy, 6 cycles AC, 6 weeks rads
October 2007 three x 2.5cm lung mets. 8 months Taxol, started Herceptin and continue. Significant reduction in lung mets.
June 2011 3cm x 4cm liver tumour. Started Abraxane and continue with Herceptin.
November 2011. Finished with Abraxane, continue with just Herceptin. Liver tumour now reduced to 15mm x 12mm. Lung tumour now 10mm x 0.5mm
February 2012. Scans show everything stable, and brain scan clear.
July 2012. PET/CT scans show I'm in remission - no active cancer!
]Dec CT brain cllear, lungs stable, liver tumour has increased to 20mm. PET scans showed active liver met and active lung thinglet, and possible bone met.
Jan 2013 recommence Abraxane, continue with Herceptin.
June 2013 finish Cycle 6 Abraxane, continue with Herceptin. 30% reduction in liver tumour, everything stable.
December 2013. CA15-3 on rise.
February 2014. PET and CT scans show single liver tumour has increased to 35mm. No other activity.
March 2014. Planned for SBRT for liver met, but couldn't have treatment as tumour too close to bowel. Continue Herceptin.
April 2014. Surgeon advises that I am a good candidate for liver resection, so will have operation early May (after camping holiday). Tumour now 44mm x 29mm.
May 7, 2014. Two liver tumours surgically removed. Third of liver removed, and gall bladder. Am I NED?May 2014. Pathology of tumour shows it's now ER+ (95% staining).
June 2014. CA15-3 has decreased to 18 from a pre-surgery reading of 59!
June 2014. Started Femara, continue with Herceptin.
July 2014. Stop Femara due to severe Osteoporosis. Commence Tamoxifen, continue Herceptin. Waiting to hear if I can have Aclasta infusion.
August 2014. CA15-3 has decreased further to 12 - YAY!
October 2014. Aclasta infusion for Osteoporosis. November 2014, CA15-3 decreased to 11. Scans of liver all clear, something new showing up on lung, but just watching at the moment.
November 2015. Started SBRT on solitary lung met.
November 2015. Bone density scan showed very good improvement so back on Femara - yay!
December 2016. 6 treatments of SBRT radiation on lung. Seems to have had some effect.
June 2016. CA15-3 still stable and low at 9.
June 2016. Started subcutaneous Herceptin replacing infusion.
Jan 2017. LVEF dropped to 46%. Stopped Herceptin.
Feb 2017. Started ACE Inhibitor and BETA Blocker. Still off Herceptin.
Aug 2017. Two new mets - Portacaval lymph node and mediastinal lymph node.
Aug 2017. Blood tests show extremely elevated liver enzyme levels. Many tests to investigate.
Sept 2017. Portacaval lymph node blocking liver bile duct causing liver enzyme and Bilirubin problems.
Oct 2017. 8cm stent inserted into liver bile duct. Procedure caused pancreatitis, and hospitalised for 3 days. Liver enzymes improving rapidly.
Nov 2017. Commenced 4 weeks of radiation on Portacaval lymph node. 5 week break before chemo.
Jan 2018. CT scan. 11 new small liver mets, and new superclavical lymph node med.
Jan 2018. Start Kadcyla. CA15-3 426.
Apr 2018. First scans since starting Kadcyla. All tumours reducing. CA15-3 dropped to 30 from 426.
Dec 2019. Still on Kadcyla, but two small brain mets have been treated in the past month with SRS. CA15-3 stable for 12 months at 11.
Bunty is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 08:51 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter