 |
|
02-11-2010, 03:59 AM
|
#21
|
|
Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
|
Re: Only "slight" decrease on PET....is it time
Hi Chelee,
It sounds as if you finally got through to her. She is listening to your needs and she called you back. I don't know enough about TM's, but your view that it would be a good idea to see where they go seems a smart choice to me.
If you feel you can trust your onc's opinion, go with her suggestion. If you feel you would be happier with a 2nd opinion, please seek one. It might be a chance to check out other oncs, as you are looking for one anyway.
Let's hope the cancer cells are dying fast as we speak. I don't want no cancer cells in your body. Tell them to depart a.s.a.p! Tell them they don't want to see me when I'm angry at them! Not a pretty sight at all!
Hugs
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
|
|
|
|
02-11-2010, 05:34 PM
|
#22
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Re: Only "slight" decrease on PET....is it time
Jacqueline, My onc did call me because she knows how mad I was at her the 1st time she ignored my TM'ers inching up for almost a yr. Since we know they are sensitive and work for me it is am important tool to use in my trt. I just pray this increase is really due to dying cancer cells and not that trt is not working.
I am trying to set-up an appt. at City of Hope on the 16th with my 2nd opinion onc up there to discuss this. She is the one that recommended I be on the 2 wk dose of "Bine". I have a Rad Onc appt that same day so I am hoping they can fit me in so I can see both doctors the same day since it's a long drive. Then I need to get out to see Dr. Slamon again & see what he thinks? I wish I knew for sure why my TMs jumped up? Of course I'd like to think it's due to dying cancer cells...but with this darned disease who knows.
------------------------------------------------------------------------
Rich thank you for the time it takes to dig up the links and great information for me. It's so appreciated! I've been on overload lately so it's very helpful.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
02-15-2010, 11:37 AM
|
#23
|
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: Only "slight" decrease on PET....is it time
I hope you get all the appointments and answers you want. Let us know how it goes. Take good care of yourself.
|
|
|
|
|
02-15-2010, 12:14 PM
|
#24
|
|
Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
|
Re: Only "slight" decrease on PET....is it time
Jacqueline,
I like to hear you get mad at cancer cells!!!!!!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
|
|
|
|
|
02-19-2010, 10:19 AM
|
#25
|
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
Re: Only "slight" decrease on PET....is it time
crossing my fingers for you!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 12:40 AM.
|
Linear Mode
