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Old 06-23-2008, 03:44 PM   #21
harrie
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MJ,
In regards to how long it will take to get physically active. From 4 - 6 weeks my physical activity was limited to walking, and I mean LOTS of walking. I did some gentle stretching at home, but that was it. After 6 wks was when I started back with the yoga and wt training at the gym. The wt training btw was started conservatively with significantly lighter wts.
I found yoga to be extremely beneficial for stretching out the chest and arm areas. YOu can also consider physical therapy if you feel like you need it to for your range of motion.
Maryanne
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 06-23-2008, 07:40 PM   #22
jones7676
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Glad to hear you are well and recovering! Enjoy!
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Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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Old 06-24-2008, 02:19 PM   #23
caya
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Hi Mary Jo,

I am so happy for you - you sound great, recovering well. I'm sure the "girls" are amazing - does it feel weird having them back again - or is it like riding a bike, you just get back on and don't remember what it was like without?

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 06-24-2008, 05:42 PM   #24
Mary Jo
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You know Caya, it's amazing but it doesn't feel wierd. I'm not sure why but it doesn't. They feel so natural and look so "real" that it just feels right. So, in answer to your question, I guess it's like just getting back on the bicycle.

I find myself checking them out like every 10 minutes as I'm amazed. I always want to make sure they are still there and didn't leave or pop. Hahahahahahaha! So far so good.

Love to you,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-24-2008, 06:42 PM   #25
Bill
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Maryjo, it's so good to have you back with us and hear the happy, positive tone in your "voice". I'm so happy for you. It sounds like your healthy lifestyle and God, of course, is healing you right up. Love, Bill
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Old 06-24-2008, 07:01 PM   #26
Mary Jo
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Thanks Bill. I appreciate that. It's good to be back as well. Yes, I do try to take good care of myself and of course, yes, God has been good to me. Why? I'm not quite sure but He continues to use me where He wants me and I just keep following. Not a bad gig I guess.

Today was a good day but a bit rougher because I think I pushed myself a bit much. That's my personality, unfortunately, and I need to learn that rest is my friend. Ugh!

I have no pain in the front anywhere - just a bit of pulling from where they pulled my stomach tissue back together but because of that pulling and tightness I have developed some lower and middle back issues. Just some achiness and a bit of spasming if I bend to much or over do. Today I overdid. Walked outside about 1/2 - 3/4 of a mile - plus all the walking around the house and doing a bit much. My husband says I need patience but you know what........................when God was handing out patience...I got impatient and left the line and never got any....so I'm workin' on that.

So would you mind keepin' those prayers coming....continued good recovery and healing? I know you will and I thank you from the bottom of my heart.

Love to you...

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-24-2008, 07:09 PM   #27
sassy
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So glad to hear things are going well and you are home and happy with the girls. Just like two old friends, huh!? I'll be following your experience in case I decide to do the same! Thanks for leading the way.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 06-25-2008, 12:34 PM   #28
TriciaK
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Hi Mary Jo! I've changed emails and was offline a few days, but the first thing I did today was check for a post from you about your surgery. I did a lot of praying for your on your surgery day and thought of you all day. I am so happy to hear all is well and you are happy with the results. I had silicone replacement 23 years ago and have had a lot of problems since, so I am glad your new procedure is a much better improvement than the old way. Such good news! You are truly an inspiration with your positive, cheerful attitude. I always love to read your posts. Hugs, Tricia
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Old 06-25-2008, 03:12 PM   #29
swimangel72
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Way to go Mary Jo!! You sound so fantastic - you're STILL making me feel better, when it should be the other way around! Not to rush things (I'm the one who said take it very slowly, lol) but when did your surgeon say you should get Stage 2? Or don't you need Stage 2 revision surgery? Will you go for fipples??
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xxoo
Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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Old 06-25-2008, 03:27 PM   #30
Mary Jo
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Well Kathy, I know it's too early to tell yet (it's only been 8 days) so far they look perfect. Perfectly symmetrical and contoured. Dr. Hijjawi did an absolutely beautiful job and as I've stated before I couldn't be more pleased. However, time will tell.............but my guess is that stage 2 won't be happening to me. All has went so wonderfully I believe it will just continue.

On a side note.........for those of you midwestern girls that are looking into DIEP reconstruction I would highly recomment Dr. John Hijjawi. His credentials are awesome - he's done about 200 of them now - hey, Prevention Magazine just did a piece on this and talked with him - he must not be a schmuck. LOL LOL! I'm just kidding. Seriously, he is a very intelligent and gifted man - known for his "work" and the results he produces. He has not had a failure. To top that all off, his mother had breast cancer and reconstruction so breast cancer and reconstruction are near and dear to his heart. As we've all said before......having a smart doctor that is on top of new things is the most important thing BUT if they are kind and caring, well, that's the whole package and he definitely is that.

Thanks guys........

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-25-2008, 04:00 PM   #31
swimangel72
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Mary Jo I just found this video of your wonderful doctor and his partner. I like how they said they perform a special cat scan on your abdomen BEFORE they begin surgery in order to find the perforator vessels which gives them more time to sculpt the new breast (the area where my PS seemed to have less skill, as evidenced by my hamburger foob.) I'm going to tell my PS about your doctor's use of the cat scan so that, even if he didn't use it for me, he'll think about using it for his future patients so they can have better Stage 1 outcomes.

http://www.froedtert.com/SpecialtyAr...dWhitfield.htm
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xxoo
Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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Old 06-25-2008, 07:31 PM   #32
mimiflower07
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hi Marejeo
just wanted to let you know that i to have been through recon..also have had the mid to lower back pain. It really is a pain but does get better over a longer period of time. When you over do it your body will let you know. It takes time...but ice packs work wonders!! I must admit its nice having breast!
Good luck..if you have any questions just write. It will one yr in Sept since my surgery.
Suzanne
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suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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Old 06-25-2008, 11:49 PM   #33
harrie
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Swimangel, how are you doing with the recuperation from your DIEP?

MaryJo, are you noticing any significant improvements in your lower back? I know you are a lot like me and we tend to overdo it. Rest is as important as exercising, so please make sure you get enough. In fact it is during rest, that the body is able to build and heal itself. Your body has been through a lot and there are significant amounts of healing and adjustments needs to take place. Listen to your body.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 06-26-2008, 03:40 AM   #34
Mary Jo
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Thanks Suzanne and Maryanne....

You are right Maryanne...I am like you and pushing myself is what I do best. Haha! But, seriously, I have been MAKING myself rest and know it's what I need to be doing. I even took a nap twice this week and I NEVER take naps. So, I'm being a pretty good patient.

Yesterday my lower/mid back felt better but I listened to my body more and didn't PUSH as hard. The day before (when my lower/mid back really ached me) I took a 1/2 - 3/4 mile slow walk outside plus whatever other things I did inside....so I did NOT take a walk outside yesterday. So, yes, it did feel better. My docs PA did prescripe me a muscle relaxer if I needed to take it but I didn't take it yet.

Suzanne, so the ice really does work huh? My docs office told me that also but haven't tried it yet. Did you just rest with ice periodically throughout the day?

Thanks Ladies....I appreciate your input. Afterall, you're completed with reconstruction I'm first going through it so it's nice to compare notes.

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-26-2008, 04:13 AM   #35
dhealey
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Welcome home Marejo. I am so glad things went well for you. Praying you have a speedy recovery and can get those drains out. I thought 2 were bad when I had my mastectomy, I can't imagine 6! Take care of yourself. God Bless.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 06-26-2008, 04:22 AM   #36
Mary Jo
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Hi Debbie,

I hear ya on the drains BUT it hasn't been just too bad. On Monday I had 3 more of the 5 remaining drains removed. So only have the 2 abdominal ones in yet. They can be put in my pants pocket - so - not bad. After stripping and draining those 2 this a.m. I may call because I think at least one may be able to be pulled. It will feel so awesome to have them all out. Oh well, I'm not complaining though - it all went so well so drains are just part of the package. I know women who had to have abdominal drains in for 4 or more weeks so I feel fortunate that 9 days later mine are ALMOST finished.

Love to you debbie,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-26-2008, 09:20 AM   #37
harrie
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MaryJo, you can experiment with the ice packs. Ice is generally used to reduce inflammation. Heat is good for increasing circulation and loosening up tight muscles.
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 06-26-2008, 10:53 AM   #38
Mary Jo
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Hi Maryanne,

I think inflammation in my back muscles is what the problem is. When I sit or lay down it feels fine - after being active the muscles like to give me a bit of trouble. Not too bad, just a nuisance.

So today I started taking 3 - 200mg. ibuprofans at a time - every 4 hours. This morning I took a 1 mile walk outside....naturally, I took it easy and didn't "push" but walked a nice, slow pace concentrating the whole time on pulling my ribcage up and staying straight. It was fabulous.

My scars are starting to itch and things are just super duper. Feeling great 9 days out. I'm totally back on the "healthy eating train" and that too makes me feel fabulous - not only physically but mentally.

So happy I made the decision that I did. It was a scary decision to make and a hard thing to "walk" into but I'm so glad I did. I kind of feel like I smacked cancer in the face....it's a GREAT feeling.

Love you guys...................

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-26-2008, 11:21 AM   #39
StephN
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Wink

Hey Brave Lady!

So glad you are feeling like a champ and ready to spar.
Must be a great feeling to have those "curves" back in the right places. I am sure it does give you a feeling of winning another round.

Just in time for tank tops, too.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 06-29-2008, 03:10 PM   #40
naturaleigh
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Posts: 183
How ya doing?

I was thinking about you today and just wondering how you were doing? I hope all of your drains are out and you are able to slowly get back to you naturally active self!!

Any word on doctors for your friend?

God bless you and everyone on this site!!

Anita
__________________
Anita

er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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