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06-10-2008, 08:19 PM
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#21
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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RB, congratulations! I can't wait to read your book. By the way, what do you think of the "Smart Balanced" products? (wink)
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06-11-2008, 12:19 AM
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#22
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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RB, congratulations on the completion of your book! I read the synopsis and it is very interesting. I quite honestly know very little beyond the fact that Omega 3s are suppose to be good for you. I will pick up your book and educate myself and hopefully it will improve my life and preformance even more.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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06-27-2008, 02:24 PM
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#24
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear RB -
I was just talking with my sister earlier today about your book, which she ordered from Amazon. I asked her if there were any reviews and she told me "no."
The description there was extrememly interesting to my sis who is being treated for her arthritis in her hands with acupuncture. I have had no time to finish it myself.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-27-2008, 02:58 PM
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#25
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Thanks for the reply Steph,
If you need more trial refs on arthritis please P or Email me. I have lots more info.
I am being a bit optimistic I know - it is pretty information dense and not light reading - an it is not yet two weeks old - I just had a moment of doubt.
Again thanks for taking the trouble to reply
RB
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06-27-2008, 10:50 PM
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#26
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Senior Member
Join Date: Apr 2006
Posts: 148
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A quick question for R.B. Did you have HER2+ breast cancer?
Just wondered, as clearly good nutrition is fundamental here.
Mcgle (UK)
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06-28-2008, 02:10 PM
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#27
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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mcgle
Quote:
Did you have HER2+ breast cancer?
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No, I found the board whilst researching breast cancer - fate - and got onto the subject of fats. Other sites provided good information but is was positive to be able to post and interact. I found posting and sharing a positive experience and the responses helped shape the directions I looked in. Searching on diet BC and fats lead into wider areas that eventually turned into the idea of a book - fate maybe.
RB.
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06-28-2008, 09:46 PM
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#28
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Senior Member
Join Date: Apr 2006
Posts: 148
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Thank you for responding, R.B.
Personally, I believe by taking flaxseed and flaxseed oil prior to diagnosis, I unwittingly saved my life. In theory, my (weakly) HER2+ breast cancer should have gone walkabout, but it hadn't (thankfully), and I can only put this down to taking the above supplements which are supposed to be inhibitors of this type of cancer.
Mcgle (UK)
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06-28-2008, 11:29 PM
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#29
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Quote:
Personally, I believe by taking flaxseed and flaxseed oil prior to diagnosis, I unwittingly saved by life.
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Thank you for taking the trouble to post. It is really difficult to get people to understand how hugely influential on a very wide basis Omega 3 [generally not enough in our diet] and 6 [generally too much in our diet because of high vegetable oil consumption] are in almost all body function.
There are a number of trials suggesting significant risk reduction factors in BC for those who take flax oil and or fish oil (long chain Omega 3s). One trial suggested a 70% lower risk in the quartile with the highest levels on long chain Omega 3s in breast tissue.
The ability to convert the mother Omega 3 in flaxseed oil to the long chain fats diminishes with age, may be is reduced by chemo, diminishes with oestrogen loss, etc, so supplementation of the long chain fats DHA and EPA is a sensible risk reduction strategy. [Please talk to your doctor as there are a limited number of health issues particularly with `blood thinning` medication with Omega 3 fish oil supplementation]
It is for me very clear that fats metabolism plays a part in BC and other cancers. Omega 3 and 6 mother fats are unique in that the body cannot make them and they can only be got through diet.
Omega 3 and 6 alter gene expression including HER2 and BRAC.
Herceptin works at least in part through the fats pathways.
Thank you for your kind words
RB
Last edited by R.B.; 06-28-2008 at 11:33 PM..
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