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Hi Maryanne,
I'm glad the port and liver procedures went well and I'm praying that the liver tests turn out okay. I love the tee-shirt!
I know we mentioned about getting together for lunch sometime at the end of May or in June. I'll send you a messge about that. I've been rushing around a lot myself working full time and running back and forth on weekends to New Hop, Pa. to see my mom whose in an Alzheimer's residence. Thank goodness both my brothers live near her and do a lot to help out.
Also, there's been a recurrence in my lung again and I've seen several docs to try to determine the best course of action -- surgery again, radiofrequency ablation, stereotatic body surgery -- I still have a few more appointments. Anyway none of this is going to happen before a few graduation parties in mid June, and my last appointment is on June 11.
Best, Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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