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Old 01-01-2008, 03:24 PM   #1
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Exclamation Havah!

Okay, Havah! I had extensive liver mets in Aug of '98. I was given Taxotere and Herceptin and I was NED by the end of May '99. I remain STABLE, and still taking H ev 3 wks! So, please don't give yourself a sentence! I did suspect I was dying, feeling the effects of T on my body, bringing me to my knees, but I reminded myself of what the T (& H) must be doing to my cancer cells! I picked myself up off the floor and fought w/everything I had, my mind (and thoughts), my body (weakened but under command to a good degree) and my Spirit (which is capable of bringing miraculous results to you!). I prayed, I meditated, I took supplements, I rescripted my inner dialogue and mental imagery. I decided to see myself far into the future in vivid detail. I lived AS IF what I wanted was already a reality! And, consequently, I found myself living with a kind of joy and peace, KNOWING with all my heart and Soul that I was calling my desired goal to me!

You may feel that you are deep in the woods, but you are not lost! Don't even think that! YOUR BODY HEARS EVERYTHING YOU THINK, OR WHISPER, AND TAKES IT PERSONALLY. Your body does as your mind commands. Don't forget that! It's a mighty tool you have at your disposal! Fight, Havah, fight! And yes, I, like Maryann, am yelling... With love...
Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 01-01-2008, 07:24 PM   #2
Bill
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Wink Hi Havah!

Hey Sweetheart! I know you've been hit with an awful lot of really bad news lately, but please re-read the posts of these wonderful women. Take a deep breath and try to relax in whatever way you normally relax. These brave women have been right where you are right now and they will give you good counsel. Nobody can tell you that you have 4 months. There are so many treatment options out there. If your liver mets are only in one lobe or localized, liver resection is an option. Please try to get a second or third opinion. Sometimes, if you keep asking an onc. for a prognosis, all they tell you are averages and statistics. There are so many different variables and controllables in your situation. Each person is unique. You must fight the good fight. Do not despair. Love to you, Bill
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Old 01-01-2008, 07:56 PM   #3
HavahJ
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Liver Mets

Hi Bill, I have 15 liver mets in both lobes that I got in 1 month. In that same month my mrker went up 14 points. Before this I had one skull bone met for 2 and a half years. That was the only met. What do you think of the situation? I am starting chemo Monday, but I don't understand how this happened so fast. What does that mean? My liver function is norma and no symptoms. If I don't respond to chemo, am I just going to die? I 'm scared to death. This was totally unexpected at this time. I still have staples in my head from the last surgery! Doesn't this sudden windfall of liver mets seem weird to you? Write me if you can, HavahJ@aol.com. Sincerely, Jan
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Old 01-01-2008, 08:05 PM   #4
Karen W
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If I am correct, I think Gina had extensive mets to the liver back in 1999 and as far as I know she is doing well.

Karen
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Old 01-02-2008, 03:33 AM   #5
RhondaH
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I attached the post and sent it to Gina...

as she is quite busy and doesn't visit the board as much, BUT keeps up to date on all the latest.

Rhonda
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Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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